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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes


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About JohnnyOh

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  1. I had by gluten-free sandwich taken away at the gates of Sea World. They don't allow outside food, and although they told me they make exceptions for children, the guard wouldn't accept food allergies as reason to bring in a sandwich. What happened is the following: My wife's company paid for families to go to Sea World in San Antonio for a Saturday (May 12, 2012). We bussed there, and got dropped off to be picked up later. Since we would be there all day I made a sandwich with gluten-free bread and certified gluten-free sandwich meat. The guards at the gate search peoples' bags and one guard found the gluten-free sandwich in my backpack and asked, "Do you two have a child?" My wife and I responded, "No." She then said, "Unless you have a child I can't let you bring that inside." I told her, "I have food allergies, I can't eat the food served here safely. I need this." She looked at me and said, "Sir, I can't let you take this inside." I repeated, "But I have food allergies - ". She interrupted and said, "You can bring it back to your car and eat it there." I told her I was dropped off by a bus with a large group and the bus left already. She told me again that I couldn't take the sandwich inside, she grabbed it and then asked me, "So do you want me to throw this away?" I said, "I guess if you want me to go hungry!" And she took it. Fruit and smoothies are very hard to find at Sea World, so I went hungry that day. I wrote a letter to Sea World, starting off with "I'm writing to try to encourage Sea World to add an exception for people with food allergies to its 'no outside food' policy." I went on to describe Celiac disease, what happened at the gate, etc. Sea World's response to my letter:
  2. That depends on the facility and their manufacturing practices. I've eaten some products that have given me terrible reactions, most recently frozen spinach, and I later contacted the company and found out that their spinach is manufactured in a facility that also processes wheat. (They're probably packaged on shared equipment.) So I don't think one can make the general statement that the risk of contamination is low. It really depends on the company, the manufactures, and even employees, to know how to avoid cross contamination issues. If there are possibilities for cross-contamination, the most thorough companies do regular testing of their gluten free products to make sure they really are gluten free. Many companies don't do that however.
  3. I contacted Whole Foods recently to ask if they had a list of cooking oils that are not processed in facilities that also process wheat/gluten. The list is below. They don't show these in their standard gluten-free list because these oils don't undergo routine testing for gluten. But, like they say, they are processed in facilities that don't process wheat/gluten, so there's no risk of cross contamination. The reason I asked them is because there are some oils from other companies (like Spectrum) that are processed in facilities that also process wheat, and have been a problem for me. -------------------- From: DO NOT REPLY <noreply@wholefoods.com> Date: July 16, 2010 9:24:19 AM CDT To: xxx Subject: Whole Foods Market (Customer Service) Reply-To: DO NOT REPLY <noreply@wholefoods.com>, DO NOT REPLY - USE LINK IN EMAIL <customer.questions@wholefoods.com> Hello, the following Whole Foods Market and 365 brand cooking oils are processed in facilities that do not process wheat or gluten: 99482-42898 Whole Foods Market Peanut Oil 8 oz FL OZ 99482-42899 Whole Foods Market Organic Sesame Oil 8 oz FL OZ 99482-42900 Whole Foods Market Toasted Sesame Oil 8 oz FL OZ 99482-42901 Whole Foods Market Refined Almond Oil 8 oz FL OZ 99482-42902 Whole Foods Market Refined Walnut Oil 8 oz FL OZ 99482-42903 Whole Foods Market Avocado Oil 8 oz FL OZ 99482-42904 365 Organic High Heat Sunflower Oil 16 oz FL OZ 99482-42905 365 Safflower Oil HH 16 oz FL OZ 99482-42906 365 Safflower Oil HH 32 oz FL OZ 99482-42908 365 Expeller Pressed Grapeseed Oil 16 oz FL OZ 99482-40006 365 EVOO Blend 1 liter 99482-42226 365 EVOO 100% Italian 1 liter 99482-42320 365 EVOO 100% Italian 0.5 liter 99482-42321 365 EVOO 100% Italian 3 liter 99482-42225 365 EVOO 100% Greek 1 liter 99482-42224 365 EVOO 100% Spanish 1 liter 99482-40551 365 Organic EVOO 1 liter 99482-40550 365 Organic EVOO 0.5 liter 99482-40298-3 365 Expeller Canola 32 oz. ounces 99482-40502-1 365 Organic Canola Oil 16 oz. ounces These oils are considered inherently gluten free. Because of this, these products do not undergo routine gluten testing. For this reason, they are not included on the gluten free special diets list. If you have any further questions please use our on-line response form. Best regards
  4. The Whole Foods brand tomato paste says it's manufactured in a facility that also processes things with milk and wheat in them. So in that case it's possible to have cross-contamination.
  5. I have just created a map of downtown Washington DC restaurants that are at least gluten free friendly: Gluten Free in DC (google map) I got the list of restaurants from Washington DC Gluten-Free Restaurant Guide Let me know if you have other ideas of what to add to the map - or if some restaurants should be removed.
  6. Here is my letter asking about cross contamination, and the relevant part of their response follows. They basically say they would use a "May Contain" statement if the juice is made on shared equipment with wheat containing products. ===== Hi, I have heard good things about Naked Juices, and would love to try them out! I just had a quick question first, though. I have an allergy to wheat, and so I was wondering if any Naked Juice drinks or their ingredients (like the Protein Zone) are handled on the same machines/equipment that also process Naked Juices or other items that have wheat in them (like Green Machine which has "wheat grass" in it). Basically I'm just curious if there is any possibility of cross-contamination, or if some juices are made separately. Thanks for any info! ===== ===== From: ConsumerRelations@nakedjuice.com Date: January 20, 2009 9:15:16 AM CST We appreciate your interest in trying Naked Juice and understand your concern over the possible presence of wheat in our juices. Here at Naked Juice we follow all FDA guidelines and that includes the labeling of the top eight allergens. If a product contains any of the top eight allergens (Milk, Egg, Fish, Peanuts, Tree Nuts, Shellfish, Soy, Wheat) , it will be listed in the ingredient list as well as bolded at the end of the ingredient list. This includes all natural and artificial flavors. We also use a May Contain' statement that would be listed on the package in the event a product is run on a line that also produces a product that contains a top eight allergen and we cannot be 100% confident that the allergen would not carry over resulting in incidental exposure. Therefore, we suggest that you review the ingredient list of our products before enjoying them to be sure they are wheat free. =====
  7. I've had Annie's Italian dressing and have a slight reaction every time I use it. It's quite disappointing. I finally emailed customer service and asked if they regularly test their products for gluten and if they test below 20 parts per million. Here's part of their response (emphasis made by me) --- From: Brian <brian@annies.com> Date: November 11, 2008 6:22:29 PM CST Annie