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diane h

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About diane h

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  1. Thanks for all the info. I am feeling better, and i am no longer anemic so i know that my gut is better then it was before. I have doubled checked all the pills and vitamins I take, calling about each lot number, to make sure they are gluten free. I have gotten rid of old wood kitchen spoons and other things that gluten could be hanging out at. My husband and daughter still eat gluten foods, i am wondering if they are somehow cross contaminating me. I see my Dr in April and until then I guess I will be living a non processed food life trying to eliminate any possibility of cross contamination and see where that leads me on the blood work. This is has been such a roller coaster ride for me. Felling like crap for so long without a correct diagnosis, & then finding out that it was celiac, then freaking out that it was celiac, then accepting it and being happy about being able to control my health, then finding out I'm still positive for antibodies despite all the changes.
  2. So is it possible that for the last 6 months I have had enough cross contamination to make me positive for antibodies? I have had lays chips a few times, but I generally eat healthy foods. So should I only be eating things that say gluten free on them? I have been so careful reading every label for gluten ingredients, only eaten out maybe once a month at the most & then i get burgers without buns, no fries just meat & lettuce and tomato. Are there other ingredients that can cause a positive antibody test? I am discouraged and confused. I thought I was doing so good on this diet. Yikes.
  3. A little background: I was diagnosed with celiac 6 months ago from a small bowel biopsy. I had been referred to a gastro specialist because of elevated liver enzymes and anemia that was not responding to iron suppliments. They did an endoscopy & colonoscopy looking for a reason for the anemia. No bleeding- but a biopsy revealed celiac. So 6 months later, I've been gluten free since Aug. I have had two blood tests that show I still have antibodies for gluten. My Dr wants to do another endoscopy. What would this do since I am already diagnosed with celiac? I am very discouraged. I can't imagine where I am picking up this mystery gluten, or what is going on. Does anyone one have any ideas & what questions should I be asking my Dr.? Is this what refractory sprue is?