ecitizen

Hi, I'm wondering how many of you have more neurological symptoms than gut? For example, tingling in the extremities, numbness in the face/tongue or the same feeling in your mouth when you are coming off of anesthesia at the dentist? Also, achy joints or headaches. Just curious as I get these regularly even after a few years of being gluten-free. ...

So I guess that's why the prometheus was negative since I've been gluten free? I had been gluten free for about a month when I got the endoscopy so maybe that's why it also showed up negative. Anyway, at least I'm feeling better with the neuropathy so it must be the gluten.

Thanks. My first non-prometheus blood test showed an elevated anti-gliadin IGA level of 38 H so I guess it was positive. This test above was after being gluten free for about 4 months. I also had an endoscopy which the GI specialist said was negative for celiac. I don't know what to think anymore. All I know is that my neuropathy is going away after...

Hi, I'm hoping you can help me. My GI is useless and won't call me back to explain my prometheus test results to me. I finally had to have them email me the results since he wouldn't respond. The test results say the following: Summary Interpretation: Results do not exclude a diagnosis of celiac disease Serological markers for celiac disease not...

Thanks for your response. Yes, I'm beginning to understand more about this as I go. I'm still "undiagnosed" but feeling more and more confident that my neuropathy is from gluten. I'm hoping it goes away completely eventually, although it is hard not knowing for sure while staying on such a strict diet. Because I have no other symptoms, I'm not sure how...

Over the last year, I've experienced small fiber-like neuropathy, mainly in my legs but also arms and face occasionally. It all started out one time after eating at an indian restaurant. I'm a 35 year old male and otherwise in great health. This was a sudden onset. I did every test possible, from B12 to MRIs to all kinds of blood work. The only thing...