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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes


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  1. Hi, I'm wondering how many of you have more neurological symptoms than gut? For example, tingling in the extremities, numbness in the face/tongue or the same feeling in your mouth when you are coming off of anesthesia at the dentist? Also, achy joints or headaches. Just curious as I get these regularly even after a few years of being gluten-free. Thanks.
  2. So I guess that's why the prometheus was negative since I've been gluten free? I had been gluten free for about a month when I got the endoscopy so maybe that's why it also showed up negative. Anyway, at least I'm feeling better with the neuropathy so it must be the gluten.
  3. Thanks. My first non-prometheus blood test showed an elevated anti-gliadin IGA level of 38 H so I guess it was positive. This test above was after being gluten free for about 4 months. I also had an endoscopy which the GI specialist said was negative for celiac. I don't know what to think anymore. All I know is that my neuropathy is going away after being gluten free so it must be that. Any other thoughts?
  4. Hi, I'm hoping you can help me. My GI is useless and won't call me back to explain my prometheus test results to me. I finally had to have them email me the results since he wouldn't respond. The test results say the following: Summary Interpretation: Results do not exclude a diagnosis of celiac disease Serological markers for celiac disease not detected. Assay Name: Anti-Gliadin IgG ELISA (AGA IgG) < 1.2 U/ml (Range <10.0 U/ml) Anit-Gliadin IgA ELISA (AGA IgA) 2.2 U/ml (Range <5.0 U/ml) Anti-Human Tissue Transglutaminase IgA ELISA (TTG IgA) <1.2 U/ml (Range <4.0 U/ml) Anti-Endomysial IgA IFA (EMA IgA) Negative (Reference Negative) Total Serum IgA by Nephelometry (TOTAL IgA) 254 mg/dl Alleles Detected: DQ2 heterodimer and DQ8 DQ2/DQ8 - 14X (Increased Risk Over Gen Pop) Very High (Relative Risk) Your help in interpreting this results would be greatly appreciated.
  5. Thanks for your response. Yes, I'm beginning to understand more about this as I go. I'm still "undiagnosed" but feeling more and more confident that my neuropathy is from gluten. I'm hoping it goes away completely eventually, although it is hard not knowing for sure while staying on such a strict diet. Because I have no other symptoms, I'm not sure how I know when even a trace of gluten found its way into my food. I'm doing the best I can on the diet from knowledge I've gained on the internet. I just wish I had a definitive diagnosis. I guess I should be grateful that through all the other tests, I was given a clean bill of health. I'm really disappointed with the whole experience with the healthcare system. If I didn't push, I would have not gotten anywhere.
  6. Over the last year, I've experienced small fiber-like neuropathy, mainly in my legs but also arms and face occasionally. It all started out one time after eating at an indian restaurant. I'm a 35 year old male and otherwise in great health. This was a sudden onset. I did every test possible, from B12 to MRIs to all kinds of blood work. The only thing that came out abnormal was a positive gliadin reading of 38. My neuro thought I might have Celiac so I went to a GI specialist. I had an endoscopy and the results were negative for celiac (according to him). So they did a prometheus blood test to check me for a celiac gene called DQ alpha and beta 1. The results say "yes" for celiac gene pairs present. I've been gluten free for about 4 months now and the neuropathy is diminishing, although not completely gone. My question is could I just have gluten sensitivity and not have Celiac? Are they different? I have no other symptoms. Thanks.