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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes


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About girlygirl

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  1. Not that I plan to post on this board anymore since I have seen some pretty rude and snide comments made (HUH?), but I have recently read that yeast extract was made of barley which in my humble opinion made it off limit to celiacs. Unless that is if someone here wants to press the point that it is NOT. Because of confusing data such as this a forum is needed . I was excited to share some of the info I had, but that changed to disappointment quickly based on the way I was ridiculed. The purpose here is supposed to be one of support not to be chastised. The only way anyone here will learn is through others experiences that is the whole purpose of a forum. How do foods make it on the "safe" list? I would think that trial and error is the way. I would think that some foods on the list today may not be on the list tomorrow or vice versa. If there isn't a venue to share this info then why even have this board. It appears to me that from some of the responses I've read that the whole purpose it to be "right". I feel that being open minded to new considerations and then doing your research is always in order and everyone has to do what is the best for them. I do wish everyone here good health!! FYI, I have had some people email privately telling me that they too have had reactions to the additives that I had responded to.
  2. Citric Acid

    On celiac.com it is stated "Soy and Msg are examples of products that many celiacs have trouble with". I have been reading over and over again that MSG is a problem. Not only is it a problem for celiacs but it is a problem for many people. MSG is not in any way shape or form healthy. Just because something is gluten free doesn't mean that it is always healthy i.e. soda, ice cream,cake, cookies, candy bars, potato chips, etc.... On allergiesabout.com: On celiac/gluten intolerance; "Other key words to watch for are farina, flour, caramel coloring, enriched flour, cereal, malt flavoring and extracts, MSG, modified food starch, emulisfiers, stabilizers, distilled vinegar, semolina, durum and tritcale". It seems like many celiacs are asking about some of these ingredients that I have responded to because they may have already had a reaction or suspected something about the additive. I know that NOT everyone will experience a reaction but to just plain say that MSG is not a problem for celiacs at all is not the case.
  3. The MSGtruth.org site in reference to celiac sprue writes; "We have recently found that many persons who report a sensitivity to MSG also report an inability to tolerate wheat products in general. This seems an odd coincidence until we realized that grain products have been bred to contain more and more gluten which is very high in the amount of glutamic acid bound to its protein chains". Wheat, soy and corn are good sources of glutamic acid and msg is often made from these foods.
  4. Maltodextrin (I hate to burst anyones bubble here) many times contains MSG. Just because something may be labled MSG free it doesn't mean that there isn't any hidden msg in the product. The truth in labeling campaign (you can find them on them web) has been trying to fight this for years. In order to find out for sure if it is msg free you need to call the manufacturer and specifically ask if the product contains any free glutamic acid. Believe me no one will be able to answer that one for you right away, it will always have to be looked into. They can't lie about that one. Good Luck.
  5. I have been using a suplement called Living Fuel which is similar to the supplement you have been referring to. Living Fuel does have barley grass and wheat grass. It is also claimed to be gluten free. I emailed the manufacturer about the Vanilla ingredient and I was assured that the product is gluten free. I have not had a problem with it at all. I am taking the one that is the Super Berry (I figured I could stand the flavor alot better). It is equally as nutritious as the Greens. I have also been taking the Garden of Life probiotic Primal Defense, it is wonderful, no problems from it. I had to quit my other multi and calcium supplements due to citric acid being an ingredient. So it is imparative that all vitamins be looked at thoroughly. These two companies Living Fuel and Garden of Life have wonderful reputations and I highly doubt that either of them would risk thier reputations to label something gluten free if in fact it wasn't. I understand what you are saying about eating junk. I can not tolerate anything that is not a whole food. Onereal big thing is that just because something is labeled gluten free it dosen't mean that it is healthy (i.e. cookies, cakes, breads, etc...) I NEVER eat anything processed nor am I tempted, my health is the most important thing to me and as I learn new things I could never go back. I am studing holostic nutrition because the subject is of such interest to me. If you ever to discuss nutrition email me.
  6. Yeast extract has MSG in it so it NOT safe to eat for celiacs.
  7. The reason that you had such a reaction to the modifed food starch is more than likely because it contained MSG. As I have already posted MSG is hidden in many foods with innocent names such as calcium caseinate,autolyzed yeast,rice syrup,caramel flavoring,stock,dry milk solids, milk powder, natural chicken flavoring,citric acid (if made from corn). These are only a few of the things to look out for or the question. I'm sorry to here that you had a bad reaction, been there done that, it really stinks and it shoud be illegal!
  8. Maltodextrin often contains MSG which is a big NONO for celiacs (really MSG should be a big nono to all human beings). Many items that contain MSG hide that it is in the product. Carrageenan which is in alot of dairy products including icecream many times contain MSG. People need to contact the manufactuer when not sure. But do not call and ask if there is MSG in the food, they will say no. Ask instead if there is any "free glutamic acid" they can't lie at that point. Good luck.
  9. Citric Acid

    As a matter of fact citric acid is a problem. Citric acid many times contains MSG which is off limits to many celiacs. MSGmyth.com and truthinlabeling.org are excellent sites that will give you a wealth of information on how msg is hidden in your foods. I recently had a rash that would not go away (good old comming back DH), I was very perplexed as to how I getting gluten since my diet has very little room for improvemnt. I found that citric acid was in my vitamins and calcium supplements. I found that the butter I porchased from Whole Foods (thier own brand) contained annatto. I also found out the the TAZO Zen tea I was drinking was not considered gluten free after calling the manufacturer to question what the spices on the label were all about. So unfortunately it gets very tricky these days!!
  10. Joint Pain

    Someone mentioned Vitamin D supplements, Cod Liver oil is the best vitamin d supplementation choice. Before starting any vitamin D supplementation however, it would be a good idea to get your levels checked. It would also be a good idea to read up on the benefits of Cod Liver Oil, Mercola.com and Westonaprice.org is a great place to start. Cod Liver Oil helps with RA and a host of other diseases. Good Luck!!
  11. Homeopathic Remedy

    Hi! I am so interested in nutrition since finding out I had hypothyroidism (which I diagnosed and my dr. finally confirmed). I also diagnosed my celiac disease, my DH rash totally disappeared after I tried a gluten free diet. And I must say I feel great!!! I am currently studying holistic nutrition, I see a holistic nutritionist to double check what I am doing (so far so good!) Glutamine is an amino acid that will aid in healing your villi. Taking Vitamin B supplements are suggested as well. Calcium supplements with magnesium are also very important. Many celiacs are vitamin d deficient so it would be a good idea to have these levels tested. Cod liver oil is a great source of vitamin d. It would be very beneficial to take probotics 3 times a day. Eating plain or Vanilla yogurt daily is also a must (Stonyfield Farm is one of the best). Make sure that you are rotating your foods and not eating the same foods over and over as that can cause food allergies also. Of course a good multi vitamin is essential. Keep in mind that when starting supplementation that you do it slowly, don't go crazy and start everything at once. Good Luck!
  12. Oats

    The reason so many people start to gain weight is that many glutenfree products have high glycemic ingredients in them. I have to read the ingredient list carefully to avoid this pitfall. I won't buy anything with potato flour or tapioca flours as they are just as bad for you as eating white bread. Many of the breads have these high glycemic flours in them. Many gluten free products have alot of added sugars as well. It is very challenging to say the least. The important thing to remember or else you will go crazy is to focus on what you can have instead of what you can't have.
  13. Soy Intolerance

    There is a website Westonaprice.org that tells how soy is processed . The site also gives other excellent nutrition information. I have learned alot from that site. There is a mayo in Whole Foods that is in the gourmet section from France that is soyfree and my finace says it is delicious. It is in a plastic container.