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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.


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About earthmama2k

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  1. Nope. I was not on any steroids at the time of the test, nor have I ever been. Thanks, everyone, for the input. I have started my gluten free trial. We'll see how it goes.
  2. Thank you. I do have a basic understanding of genetics, and I realize that simply having one of the genes associated with Celiac doesn't necessarily mean I have (or will develop) the disease. I guess what I'm trying to find out here is, A.) Is it possible that the specialists are wrong and I really do have Celiac? Or, if that is unlikely, B.) Is there any other reason (besides gluten sensitivity) for having a positive IgA result?
  3. I just received a message from my doctor saying that she misinterpreted my genetic tests. I'm actually positive for HLA-DQ8 - not DQ2. Not sure if that makes any difference or not, but there it is. She seemed to think it made it even less likely that I would go on to develop full blown Celiac Disease. Is it possible that the IgA test result was a false positive? Because that is what they are suggesting now...
  4. I went to my family doctor at the beginning of February because I have been experiencing IBS like symptoms off and on for years. She agreed that it sounded like IBS, but ordered a blood test to check for Celiac. When it came back positive, she referred me to the Celiac Clinic at Mayo (luckily I live in MN less than an hour away from Rochester). To make a long story short, my test results are very conflicting. First round of labs: IgA Tissue Transglut <1.2 (negative) IgG Gliadin <1.0 (negative) IgA Gliadin 65.2 (strongly positive) Reticulin Ab(s) - negative Endomysial Ab(s) - negative Interestingly, I also came back positive for Rheumatoid Factor (41 - normal: <15). I was scheduled for an Endoscopy & Flexible Sigmoidoscopy. Biopsies from both came back normal (no damage). Visual examination during the scopes was also 'normal'. On the second round of labs, I came back positive for HLA-DQ2 and negative for HLA-DQ8. My 'Celiac markers' (whatever that means - I wasn't able to get a clear explanation over the phone) were negative. Vitamin D was 'low'. Iron was 'good'. My official diagnosis? IBS (with a possible susceptibility towards Celiac Disease). I was, however, told it wouldn't hurt to try a gluten free diet for a while and see if it resolves any of my symptoms. I am confused. The Celiac specialists obviously don't think that I have celiac disease, but I'm symptomatic. I don't have any family history of Celiac that I'm aware of (though my mom has similar symptoms, as did my grandmother, and I have a son with Crohn's who's been tested for Celiac and is also negative). Is it possible that this is simply a gluten 'sensitivity'?