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About gypsy

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  1. Hi Michelle, Thanks for your words of encouragement. I have had to avoid dairy, eggs, and soy for the last 4 years (when I was diagnosed with the gluten sensitivity). I appreciate how hard it is for you to also have to give up dairy. That was tougher for me to do than to give up gluten. Since I posted my message from the other day, I've had a UGI and it showed I may have an ulcer as well as some reflux problems. I'm scheduled for an endoscopy next week, so hopefully, I'll find out what is going on with me. I've had gluten pain that has lasted for up to 3 weeks at a time, but this seems to be different. Thanks and hang in there! Gypsy
  2. I've been gluten free for 4 years. I travel constantly so I take some risks by eating out. I try to explain my needs to the restaurant employees and pick the safest foods, but I occasionally get glutened anyway. I think this may have happened to my about 2 weeks ago. In the past when this has happened I had abdominal pain that was always more intense in the early morning (right when I wake up) and right after eating a meal. This type of pain would occur on and off for about 1-3 weeks then go away. In the last 2 weeks I've had a gradual buildup of intense pain and bloating. I am in so much pain that I cannot sleep lying down at all. I have been trying to sleep sitting up in an easy chair for the last few nights (not a great way to get any sleep). Two days ago I was in so much stinging abdominal pain that I could not eat or drink and I threw up several times. I did not have any diarrhea. I felt like I had a slight fever with a headache later that night. My abdominal pain is not as severe and I'm able to eat a little bit now, but I can tell I still have a great deal of inflammation and bloating reminiscent of when I had a hiatal hernia plus untreated celiac disease 7 years ago. I had surgery for the hiatal hernia but I know it has come somewhat "undone" in the last couple of years, based on an endoscopy 2 years ago. Here is my question - Has anyone else experienced this as part of a gluten attack? I don't know if I'm having a complete relapse and inflammation from: a) my hiatal hernia a gluten attack c) the recent stomach virus that others have been getting or d) some combination of all the above. The earliest that I can get an appointment with a gastroenterologist is on Feb. 8th. Can someone give me some hope that this will resolve on its own? Gypsy
  3. [****************************************** Being called borderline narcoleptic or full blown requires a sleep study. 99% of all doctors in general practise know nothing about this disease. There is no cure that I know of....those that are extreme take stimulants (amphetimines) to get through the day. I could get them but don't want to get addicted to them. I can cope for the most part with no problems....boring meetings were a problem though.
  4. Hi Angie, Lynxear and All, My father and brother have narcolepsy and my mother has MS, which are autoimmune disorders as noted by others on this forum. I was diagnosed as having borderline narcolepsy some years ago. I took Provigil for it, but could still barely function and eventually had to quit my job. I was also misdiagnosed as having irritable bowel syndrome over 30 years ago. I was diagnosed with gluten sensitivity 3 years ago through testing by Enterolab, and since I stopped eating gluten my sleep disorder has gone away! I believe that my "sleep disorder" was due to the malabsorption and brain fog caused by eating gluten. If I accidentally eat gluten I'm slammed by the same overwhelming fatigue and brain fog that I experienced when I was diagnosed with narcolepsy (not to mention abdominal cramps for 3 weeks). I also avoid dairy (casein), eggs, yeast, and soy due to having tested positive for antibodies to these. Unfortunately, no one else in my family will get tested for gluten sensitivity/celiac disease, but I believe it may be at the root of their narcolepsy and possibly MS, as well. I just wanted you to know that you are not alone in what you are experiencing. I also want you to know that there is hope of feeling much better. Not only did my "borderline narcolepsy" go away, I have so much energy now that I've changed careers and started my own successful business. Gypsy
  5. Nothing that I know of will stop the reaction until it runs its course in me; however, I have found that taking Pepto Bismol tablets and using a heating pad on my abdomen helps relieve the pain. I hope you find something that helps you.
  6. I usually start to feel stomach/abdominal pain and bloating within about 3 hours of gluten ingestion. I then have pain, bloating and cramping for about 3 weeks afterward. It's enough to keep me pretty vigilant about avoiding gluten!
  7. Does anyone know if Mr. & Mrs. T Pina Colada Mix is gluten-free? I bought some today thinking that I had read somewhere that it is gluten-free, but apparently I had it confused with another brand. Please let me know if you have any information on it. Thanks, Maryann