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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes


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  1. I usually write down a few phrases in whatever language I am visiting. And try to look up foods from that country to see if I need to watch for any hidden things. I haven't had any issues yet but am as careful as I can be. I haven't heard of these dining cards. This sounds great! I will check it out.
  2. I have heard a lot of different things. For me, I was lucky. I felt better after 3 days. For years I couldn't figure out why I was so bloated all the time. And why my jeans fit perfectly but not the waist (I'm very thin). I have heard of other people taking longer to feel better. some a couple months. Everyone is different. Be very careful with foods that can be cross contaminated. Some products that are labeled gluten free are still made of equipment that makes wheat products. I checked a lot of websites in the beginning and still need to check on new stuff I buy. This is a great forum to check if others have issues with certain brands. I have also heard that as your body heals you may react to certain vegetables and things differently than maybe 2 months from now. One thing might give you gas today but weeks from now it might not. Give your system a chance to reset itself and heal. If down the road you still have issues you can look into other things like dairy or some other food issues you might have on top of Celiac. Sounds like you are doing everything right so far. My brother also has Celaic and we have very different symptoms and issues. And it took him a lot longer to feel better than me. Good luck!
  3. I have stayed clear of Amy's as well. It's funny I used to buy that brand before I knew I had Celiac because I liked the food. I had issues with it once I changed my diet. I emailed them and they said they take it very seriously and test between runs to make sure it is safe. Well it's not working very well. Most people with Gluten issues have complained. A year later I did try one of their rice dishes and it seemed ok but I still don't trust them. I can't afford to risk it so I just avoid it.
  4. Need Good Doctor Se Michigan

    I was originally diagnosed by Dr. Dahlstedt in Sterling Heights (endoscopy & blood test). I really liked him a lot and he was familiar with Celiac but couldn't answer a lot of questions. It seems there is so much info they don't know. My brother was also diagnosed by him before me. He chose to then see the leading specialist in NY (Dr. Peter Green) and even he couldn't answer questions. They just don't know enough about it yet it seems. Of course he was better than most. I searched around for another doctor that might be a little more knowledgeable closer to me and the name Dr. Thomas J. Alexander in Troy came up. I went to him for my colonoscopy a year after my diagnosis. He seems the best case scenario around the metro Detroit area. He has been diagnosing Celiac for almost 30 years I think. I will go back to him for any follow ups I will need. I wish I could find a gastro doc with Celiac I also want to add Dr. Alexander was not hesitant for any testing I wanted done and he was very thorough in making sure I had a full blood workup, making sure my numbers were down for transglutaminase, bone density test, etc. And said to make sure I come back every year for bloodwork so that I am 100% where I should be.
  5. i haven't ordered from the gluten free mall yet but i think i may have to start. i was hoping to find stuff locally. i do have a lot of markets in my area with a decent selection of gluten free stuff. the tough part is finding out about the manufacturing practices.
  6. Does anyone know which brands do not have cross contamination? I'm not looking for brands people don't have issues with. I'm surprisingly sensitive and I'm really getting tired of buying products that are "gluten free" only to find out they share equipment with other products that contain gluten. I've heard just about every company swear they test and numbers come back with 0. Well I'm not buying it. I have still have reactions. I do NOT have dairy issues. I keep a pretty strict diet and know which products bother me. I've been on the diet for 5 months now. i feel like i cant eat anything unless i make it myself. And even then I find out products are bad. I'm mainly looking for at least some chip brands that are either in a dedicated facility or are made in a separate facility from their products that contain wheat. I'm not interested in products that share equipment that don't give people issues. I need to stay away from that. Thanks for any help!!!
  7. I had a biopsy done last month. It was the easiest thing. A lot of people seem to be concerned with getting one. It's not really surgery. I don't find it to be invasive. But that's just me. The main reason was I had symptoms for what I thought was an ulcer all these years. So naturally I decided to get a gastroscopy done plus my brother was diagnosed with celiac months before. So I wanted to knock out both. Turns out it wasn't an ulcer at all. Just celiac. The biopsy took 30 minutes. 15 minutes for the scope to look around and 15 minutes for me to wake up. My throat wasn't scratchy or sore at all. I felt perfect. I'm glad I had the scope. Just looking at my lower intestine he could tell right off the bat there was damage consistant with celiac. The biopsy confirmed celiac. I felt better being able to see the amount of damage done to my villi (photo) so I had a better idea of what I was dealing with. He then followed it with a blood test where my tissue transglutaminase was off the charts. Also your grocery bill can be tax deductible. http://www.celiac.org/index.php?option=com_content&view=article&id=116&Itemid=207
  8. Gluten free foods can be pricey. Apparently your grocery bill can be tax deductible as well as your mileage to and from the store. http://www.celiac.org/index.php?option=com_content&view=article&id=116&Itemid=207
  9. Who's From Michigan?

    Royal Oak, MI - diagnosed with celiac 1 month ago. I feel great since the diet change but still going through some trial and error with products that claim to be under 20ppm.