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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes


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About LyndaLou

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  1. Communion Wafer

    My daughter and I have celiac, and when we go to church, we take our own gluten-free communion wafer in a small ziplock bag and I got us each a small (almost shot glass type) cup. Our wafers get blessed with the other wafers but stay in the baggies. We've talked with our priest and deacon, so they know to hand us the baggie without taking the wafer out, thus avoiding cross contamination by hands that have handled the regular wafers. Also, they pour wine into our cups before offering any to the congregation. Our church uses the common cup, and others dip wafers into the wine. This has worked out well for us, and allows us to participate without worrying that we will get sick. Hope this helps! Let me know if you have any questions I didn't answer. Lynda
  2. I'm a nurse. My daughter has celiac and I either have it too, or serious gluten intolerance. Anyway, I would not want to be a gluten free patient in my hospital. We have an option to order a gluten free menu for patients, but I would be highly suspicious of cross-contamination issues. If I ever have to be an overnight patient in any facility, I'll have family bring food in for me. The only things I'll buy in our hospital cafeteria are boiled eggs and baked potatoes.
  3. Good idea about the staff turnover. Katherine has already started to keep a diary/log of what happens, etc. If we have to revisit this (and I'm sure we will) she'll have actual data to back up her concerns. I keep telling her she needs to do "x" (with x being whatever celiac related thing we need at the moment!). She does want to go into product design/industrial design, so maybe something will come of it. Thanks again for the encouragement!
  4. Hey everyone! I've been at work all day, with no internet access, so I'm just now getting caught up. The school's student affairs director and the school director met with the head of food services today and they came up with a better plan for Katherine. They will have a plate ready for her at 11:00 each day and are meeting with the staff to further educate them about gluten and how to avoid cross contamination. They are also going to move the bread products to the end of the line to try to avoid having the bread fall into the veggies (yes, she's seen it happen!). They honestly seem to be trying to make this work. They immediately act upon any concerns I have, and hopefully it will get better, at least for a while. Thanks everyone for your ideas and input. As I said before, this is a learning experience for everyone involved. Including the university. It's small, and Katherine is the only student on campus(college or high school) on a gluten free diet. Maybe this will make someone's journey easier down the road!
  5. Thanks for the replies. I'm sending an email to the student affairs dean. She's been very responsive in the past, and I expect a phone call from her tomorrow. Katherine is just so tired of fighting it. She's getting frustrated, and is ready to just fend for herself. I understand. I've not been through the testing, but I either have celiac myself, or am very gluten intolerant. I know how I feel when my food is coming to me through other hands. Especially if I feel that the other hands either don't know or don't care about my issues. I cannot imagine if every meal was dependent on others. This is just the beginning, I know, because next year she goes off to college!
  6. This is my first post ever, but I've learned so much from this site. I hope you all can give me some much needed guidance. My 18 year-old daughter is a senior in high school. She attends a public, residential high school about 3 hours from home. (It's a school for students that have shown academic talent in math and science.) It's an amazing opportunity for her. It's a 2 year school (juniors & seniors) located on a public university campus. The university cafeteria supplies the meals for all the students. Since she lives in a dorm situation, she is limited in the food she can make for herself. She was diagnosed with Celiac this summer about 2 weeks before she moved back to school. We met with the student affairs head of the high school, the head of food services for the university, and the head chef of the cafeteria, and were assured they would work with us. What has actually happened, has been less than ideal. The main problem comes from what I call the "front line workers". They keep telling Katherine to "just get something off the line" rather than make her a special plate. And even when they do make a special plate, we think they probably just get food off the line. She has said that she feels like she keeps a low level of glutening all the time. She has missed classes because of full on glutening. I have once again sent an email to the "powers that be", but wondered if anyone has any advice. We are in an unusual situation, in that she's still under the public high school jurisdiction, and the regulations they have to provide for students, and yet on a university campus, and I'm not sure how much they have to do to accommodate her. Sorry this is so long, but I'm out of ideas. Lynda