I just got diagnosed with lichen planus about five days ago and was looking for information about that together with celiacs and came across your post.
I've seen a lot recently about people with celiacs having oral ulcers, though the dentist I saw said she didn't believe the two were related (I'm not convinced). It doesn't seem like gluten is playing a role in my outbreaks though because I am super careful with my diet and mostly eat only food I've prepared myself.
The lichen planus is miserable though. I was to the point of not being able to eat at all. Prednisone is clearing it up, but now I'm dealing with the side effects from that...
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Hi there all
I'm a newbie and I think it is wonderful that websites like this exist helping people understand and share experiences which otherwise might be a very lonely time not to mention, frightening and uncertain.
I was wondering if anybody here also suffers from oral lichen planus?
I was diagnosed in 2007 with oral lichen planus and then that November I had an overwhelmingly postive blood test for celiac disease. I had a biopsy taken early January 08 but the biopsy showed only minor atrophy of the villi. My specialist could not recommend me to go gluten free due to the biopsy but I know the blood test itself is substantial enough on its own.
I did go gluten free for three months at that stage but because I didn't really notice any of the more familiar symptons I thought perhaps, maybe, more like hoping that perhaps the blood test was simply a red herring and it could have possibly been mistaken for something else. I decided though to go gluten free mid March this year because I had diahorrea only in the mornings mainly since Xmas time.
However I got a bad chest infection just after going gluten free and with it, I experienced a very bad episode of reflux and heartburn which previously I never had. I am also continuing to lose unnecessary weight. (I wish I had more meat on my bones to say yeah but unfortunately I don't lol) On top of all this, I had a chest x-ray on Saturday just to check that I didn't have pneumonia and it was noted that I have over inflated lungs due to asthma possibly although I've never used an inhaler to date.
What I really wanted to know if anyone else out there suffers from this horrible condition oral lichen planus and how does this sit alongside their gluten sensitivity issue. I really find the lichen planus plays absolute havoc with my body, with all the inflammation and I would be interested to know if anyone else has similar experiences.
Thanks everyone for taking the time to read this and I hope to make some wonderful celiac friends.