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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes

klosmo

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  1. Well my heart goes out to your daughter. I felt sorry for myself being diagnosed (asymptomatic) at age 43.... but for kids it is so much tougher. Until you or a loved one are diagnosed with Celiac you don't realize/think about how just about everything at a party/get-together contains gluten. Always having to habe a "back-up plan" gets old quickly. You're a good mom to be looking out for her long term health despite all the inconvenience/cost. Hope she's okay.
  2. Thanks for the input Beachbirdie... I do get copies of my Thyroid bloodwork, and next time i get it done I'll examine the free T3/T4 closely. Like you, I also have Hashimoto's. I do consume "some" gluten-free cookies and pizza, but not excessively. I realized right away that they have more calories than their Gluten-ful counterparts. For pasta I have found only one that I like (Scharr's corn pasta) and i have that maybe once a week. I am due for an appointment with the endocrinologist... I guess i'll ask for a very thorough blood screening (T3 /T4/ sugar)...anything you can think of that i should ask for specifically? I do eat fresh foods (meats, potatos, raw veggies, dairy, eggs) but i am not a huge fan of cooked vegetables (ok-- i don't eat any) and not a big fruit eater either. I know i should eat more fruits/veggies, i just dont like their taste/texture. At the end of the day, candy is my downfall. I know...not good! Thanks again for your comments. :-)
  3. Thanks, but I already know I'm hypothyroid. Have been for >10 years and have been taking levoxyl ever since diagnosed with that. I get my TSH checked every 6-12 months...as of now it's "normal". Antibodies have been checked twice in the past nine months...due to have them checked again next month. Not sure exactly what blood test i had but upon diagnosis my "number" was > 800, six months later it was 49 and three months after that it was 26. Hopefully when i get tested next month they will be in the "normal" range. thanks for the comment.
  4. I'm sure this topic has been addressed before, but i could not figure out how/where to find it. I was diagnosed with Celiac about a year ago. Completely asymptomatic. If you forced me to name a symptom, I'd say I was a bit gassy...but not to the point that i felt it was a problem. Favorite (most consumed) foods were pizza, pasta, cookies etc... Diagnosed due to some "routine" bloodwork related to my hypothyroidism. Have been 20-25 lbs OVERweight my entire adult life. Could not believe the diagnosis, but bloodwork numbers were "off the chart" and endocscopy confirmed severe damage to small intestine. So.... I begin gluten-free diet July 2011. My GI had mentioned that "I might feel better in ways that I didn't know I felt bad" . Well, sadly, he was wrong... Both BEFORE and AFTER gluten-free diet I have fatigue, migraines, joint pain, mild depression, overweight etc... None of these things are debilitating, but they each come-and-go enough and have not lessened since going gluten-free. At the very least I had hoped I'd LOSE a few pounds, but no...i have in fact gained about 5 lbs since going gluten-free 11 months ago. I have been extremely vigilant with my diet, never intentionally consuming gluten. problem is that if i do consume any gluten (via cross contamination) I have no way of knowing. I do not become ill, no GI symptoms etc... So... my question is...anybody else out there like me? It's so frustrating following this strict diet when i have/had no symptoms. Most annoying is the feeling that I'm so alone b/c I seem to be that "one" Celiac who does not exhibit symptoms. Family has been supportive, but deep down i don't think they "get it". There are times when i question my diagnosis, but my GI is the head of local celiac group in my area (ie- well respected, well informed etc...). Any advice for the lonely asymptomatic celiac?