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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes


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About D-borealis

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  1. I'm sure each kid is different but when we put our 2 and a half year old on a gluten free diet, her vocabularly actually doubled within weeks. With her the celiac disease has expressed itself almost entirely as neurological symptoms and I am certain gluten was delaying her speech. Best wishes!
  2. Yes this also happened with my daughter. Unfortunately it hasn't improved and it's been 6 months.
  3. We found out our daughter has celiac disease about 6 months ago and have made all the necessary changes in our diet. Eating gluten free has been a positive change for our whole family and we've enjoyed finding new foods to eat instead of bread, pasta, etc. Unfortunately I am having trouble keeping our grocery budget under control (especially difficult during holiday season) and still keeping everyone happy and fed. Specifically I am looking for any ideas as far as affordable protein foods. Would love any advice on how folks shop and specific food ideas that are celiac-friendly but will allow us to continue paying our mortgage.
  4. I wouldn't rule it out! I am still amazed at how many annoying behaviors in my 3 year old have been resolved since going gluten free. Alot of them were behaviors that I just thought were "due to her age" but they have completely gone away (and come back if she eats something she shouldn't have!) An example that relates to your situation is that my daughter was incredibly, incredibly picky about the clothing she would wear before, and literally we had a meltdown about it every single morning because we'd be unable to find a SINGLE ITEM OF CLOTHING she would agree to. That stopped probably after a month of gluten-free eating. So, you never know.
  5. we saw improvements with our 2 year old within 2 days
  6. I've used two brands one is prOatina and one is the Bob's red mill, both are certified gluten-free however apparently 20% of celiacs react to oat protein in and of itself and I think that is what's going on here.
  7. Sounds exactly like my daughter, she also never complained of belly aches. Most of her symptoms were behavioral as well as her not having any appetite (perhaps nausea) and the dark circles/sleeplessness. I am so glad you may have found out how to help your son! It will change your life. The biggest struggle for our family is realizing and accepting that we cannot eat out (or if we do, we must prepare a seperate meal for our daughter) and learning that foods that say "gluten free" are not necessarily gluten free. Alot of trial and error there but it's getting better and better.
  8. Purely by accident, I believe I have discovered what was causing my daughter's drunken symptoms explained in a previous post. OATS. We had been having certified gluten free oatmeal every morning for quite some time, and then just happened to run out. 3 days after not eating it for breakfast I realized the loopy behavior seemed to be diminishing. We are going to give it more time to see if things continue to improve, but I am quite hopeful that this is the ticket, and my daughter is one of those 20% of celiacs that also reacts to oats. I hope this discovery can help someone else that someday might experience the same, so I wanted to update.
  9. I was wondering about this possibility too and I think I am going to bring it up at our next appointment with our naturopath. We have her on probiotics currently.
  10. We got the results back from the urine analysis: everything was completely normal. Not sure whether to be sad or happy, the weird behaviors are still happening daily.
  11. The only other symptom besides the "loopiness" is that she is literally constantly hungry (or says she is). I mean, she will eat a meal, and then 5 minutes later ask to have breakfast again (or whatever) and eat a whole bunch more food. ALL DAY LONG. Which is completely opposite of how she was with food before we found out about the celiac: back then she would go days eating nothing but tiny pieces of banana.
  12. Went to see another doctor today and she suspects it is blood sugar related. We are going to do urinalysis over the next few days to see if anything turns up
  13. I brought her in to our doctor a few days after it started happening and he didn't seem too concerned. He suggested hypo-glycemia related or due to exhaustion. After reading everyone's comments I feel like I ought to get a second opinion however. It does seem to always be worse in the morning, and then again it comes back before bedtime. Will keep everyone updated as I find out more.
  14. My daughter has been gluten-free for almost 4 months. For the most part her previous symptoms of clinginess, refusal to eat, frequent crying, etc. have resolved. There has been alot of trial and error as far as learning which foods are REALLY gluten free and which just say they are but we are getting better and better at eliminating all sources from her diet. Her health is improving more and more. However, a new "symptom" has popped up in the last week that we didn't experience before. She has started to appear and act "drunk" or heavily drugged for long stretches of time throughout the day. She isn't in a bad mood per se, but just acts very loopy and uncoordinated, and even slurs her words. She also plays in a much more destructive and haphazard way during these times, and her speech is not only slurred but doesn't make sense. In her normal state, it is possible to have a mostly reasonable conversation with her (for her age) and her sentences mean something. During this "drunken" state, she will say things that make no sense, and repeat them over and over, sometimes just talking to herself. The drunken state seems to switch both on and off quite suddenly, however once it has started it typically lasts for at least a few hours. Then suddenly it will be done, and she will be back to her regular self. She hasn't been sleeping well at all and I wonder if it is possible that she is just so exhausted at times and this is causing her to be slap-happy. But part of me wonders if I am STILL missing some gluten somewhere (we have been SO scrupulous, it seems impossible!) or if this is a symptom of something else altogether. Any insight?
  15. I am trying to pinpoint what has been causing reactions in my daughter over the last 2 weeks and I am down to Adam's peanut Butter. Our home is gluten-free so no chance a glutened utensil was double dipped into the jar. Apparently adam's doesn't have wheat in their facility but now I'm driving myself crazy wondering if the peanuts themselves were contaminated in the first place. Anyone?