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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes


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About AuburnAmy

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  1. I take that back. In my headline I said newly diagnosed. Smh. I bow in apologies I totally missed that. Coming up with a clever tag line is not something I am all that great with, but I am type a crap ton. Lol.
  2. Allergy/intolerance/sensitivity... They're all pretty much the same word for me. She described it as a "heightened sensitivity." I don't see the need to be too technical for my purposes and Allergy is a word that everyone understands so I'll probably continue to describe it and label it as such. I'll check out that website, thanks for that suggestion. I wanted to have the post under products or something along those lines so people who were discussing what they ate, what brands they recommend amongst each other, etc might see mine and offer suggestions. I never stated I had a diagnosis in my first post and just listed the foods my allergist told me to avoid for fear of gastro issues, hives, or worse (foods I tested positive for and had reactions to) and said gluten, dairy and peanut allergies. I'll probably delete this post tomorrow when I am more awake and start over. Thanks for your help.
  3. Thank you! When I found this site I knew it was a celiac website but I also saw several postings about gluten allergies and the tab for gluten forums. I thought I was posting this under that part of the site and I guess now that is not the case so I apologize for getting worked up. You are right, I do want to know if there is something else going on as well, but I would have assumed that I had been tested in the past because I honestly cannot remember everything I was tested for. One quack had me scared to death for a week or so because he mentioned l leukemia. After that, I lost faith in the MD world and decided to just eat raw for awhile. So I've been through a lot, I've had many people tell me what to do and what I should be doing assuming I didn't have a clue, so I do get defensive when someone I don't know does the same. I know you have good intentions and I'll try to react to ways in more of a lady like manner, if my red head temper doesn't get the best of me again. thanks for the link! I've been doing a lot of reading lately and I'll add it to the lists! Have a good night.
  4. All I really wanted from this posting was advice from people who have been going through something similar to myself who could offer their widsom on how to change my lifestyle and what to look after. I wasnt looking for additional medical advice or to have anyone question what my doctor told me.To be honest and perfectly blunt, Kareng, I've been going through this for so long that I dont care how reliable you feel allergists are with their diagnosis. I've been screwed out of probably about $10K over the years from MD's and specialists (some of which were in the top of their field here in Atlanta) who want me to come back every two weeks for additional blood work or tests. None of them have been able to tell me specifically WHY I have been feeling the way I have. My last GI and I saw each other every two weeks for over a year. A YEAR. and nothing. Yes, it may be a hard thing to diagnose and I am a shining example of the difficult diagnosis, but dont beat around the bush... just say you don't know. This allergist was the first person who has actually listened to me, took what I said into consideration, ran some $1,000 test and said 'hey, guess what... stop eating this and you'll feel 100% better.' I learned more from her in the three hours I was with her than I did in all of the years and countless visits I've had to these other doctors. I'm sorry if this seems rash, but I dont appricate the underminded tone. I may not have Celiac, but there is an obvious issue that at least someone had the brains to acknowledge and offered a legit possible fix for instead of wanting to medicate it, treat the symptom - not the problem, or poke and prod me over and over and over again. So, with that being said, if you have any helpful suggestions you may want to offer on how to change my diet without getting even more overwhelmed than I already am, I would greatly appricate it.
  5. Honestly, I think I've had everything in the book tested, but I gave up a couple of years ago in finding out what my cause was. I want to say that I was tested for Crohn's Disease and Ulcerative Colitis, but I do not recall Celiac specifically. I've had a colonoscopy, sigmoidoscopy, upper GI's, an endoscopy and ultrasounds of my insides within the last two years and I was always border-line this or border-line that, but never definitively diagnosed with anything.
  6. Hello Everyone! So I am new too all of this and I'm not really sure where to start, so I'll give you a little background on me and how I got here and hopefully you kind people can give me suggestions! I am 32 years old and for YEARS, I mean YEARS (probably 20) I have been dealing with the most frustrating tummy issues. I would throw up nearly every day for what I thought was no reason, my weight fluctuated by the 10's on a monthly basis, severe cramps, bloating, bubbles... etc etc. I went to every doctor imaginable and spent thousands of dollars on tests, bloodwork, special foods, and procedures with everthing coming back 'normal' and 'within range.' It got to the point where my co-workers dubbed my illnesses as amyfowleritis. I felt for sure that I was dying some slow, painful death and some scientist would name my unknown issues after me and I would be in medical journals. Okay, so that is a bit of an exaggeration, but its how I honestly felt for a long, long time. On my birthday last month I decided I wanted shrimp and grits, one of God's finer creations, and I broke out in pretty impressive hives that three benadryl could not tackle and I was sent to the allergist to get an epipen. Only there, at the glorious allergist, did I learn that I not only had a shellfish allergy, but I also have a gluten and dairy intolerance, peanut allergy, and I should also be avoiding other nuts, citrus, mint, strawberries, chocolate, pork, and all salt-water fish. Needless to say, a giant light bulb went off over my head and I had a coming to Jesus moment once I realized that yes, this is why I feel like crap all the time. All of my favorite foods are torturing me and my GI system. I really wanted to go back and yell at all of the other doctors I have had the pleasure of knowing over the years for chaulking it up to severe IBS, but I decided to take the higher road and sulk in my own misery for the time being. My allergist appointment happened earlier this week (Monday, actually) and I am still in a shock type state of mind and I really do not have a clue as to where to begin. I am asking you, fellow gluten (and maybe other allergies like mine) suffers; where did you begin? Did you stop everything cold turkey like a bad drug? Did you start to ween yourself off the foods you cannot eat? How did you change your life and all of the eating habits you have had so long? What was the best piece of advice you received? As of right this second, I have a bag of gluten free pasta and veggies I can eat in my home. I cant really afford to replace everything in my pantry and fridge all at once, but I also dont want to starve myself. Anything, everything, whatever you have in your lovely brain of yours that you can share with me while I start this lifestyle change, I would truly and forever appreciate. I apologize for my novel, but I hope you made it through the end... or at least skimmed over it enough to pick up my cry for help. Thanks!!!!!