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Kathinsearch

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Kathinsearch

  1. Kathinsearch
    By the way, University of Maryland had nothing to do with me getting involved in this study. I found out about the clinical trials in my local newspaper and contacted the in-charge of the trials in Hagerstown, MD, who placed the ad.
  2. Kathinsearch
    Hey, look, if you have some kind of a beef with all this, why not voice it to Alba and Fasano? I have not seen Fasano since 1999 so I have no clue what you are complaining about. All I know is that I am in the study because I wanted to help in the efforts to get a means for Celiacs to eat gluten or become cured of the disease. Here is an article by a...
  3. Kathinsearch
    The trial I am on wanted me to document my last biopsy from 1999, which showed recovery from the 1st one done in the 80's. I also brought lab tests showing negative results from different periods of time over the past 10 years. This was to document that I have celiac disease but have recovered. I was lab tested by the researchers and found to be negative...
  4. Kathinsearch
    Hi Flourgirl, I live up near the Berkeley Springs / Hancock area and there is nothing in the way of support groups where we are. You are about 45 mins from me. If you need some support or have questions or concerns, I am most certainly willing to help by telephone and email. Maybe we can meet and go out to Outback or Carabas for a gluten-free meal periodically...
  5. Kathinsearch
    Yes, you are correct. "Alba's study, the first Phase IIa trial in celiac disease and the first to assess dosing requirements for larazotide acetate, was designed to evaluate the safety, tolerability and efficacy of multiple doses of larazotide acetate in celiac disease subjects during a 2 week gluten challenge. The randomized, double-blind, placebo-controlled...
  6. Kathinsearch
    Dear emeraldskies, You said you enjoy www.emedicine.com so here is a good reference on what a physiatrist is & does. They usually work in rehabilitation centers, aas well as in most state dept Vocational Rehabilitation centers. ~Kathy Link: Open Original Shared Link Adult Physiatric History and ExaminationLast Updated: October 29, 2003 Rate...
  7. Kathinsearch
    Hi emeraldskies! I'm glad the information is of some help to you! You don't owe me anything......and I'm doing pretty good these days with the resources I have available to me now and cannot think of anything in particular I need help with at this time but I will email you should something come up. I am sure that you will come upon someone in need of your...
  8. Kathinsearch
    Hi Emeraldeyes.. sorry about the error. FD diet should have been gluten-free diet. Here are a few links for info on the neuropsychological testing... Open Original Shared Link Open Original Shared Link Here is a wonderful 'Brain Map'of the functions of each area of the brain: Open Original Shared Link I would definately get a medical...
  9. Kathinsearch
    Hi Emeraldskies, yes I did have blood tests taken and the thyroid tests normalized. I still get checked yearly for TSH to make sure it does not creep back up on me but it's not been positive since early 1987. Your head injuries could have produced complications that you hav acomodated yourself to but which make dealing with life more difficult. ...
  10. Kathinsearch
    Hi Emeraldskies, I was on Synthroid and was told before celiac disease diagnosis that I would be on it for life.....before diagnosis, my doctor had me switch from Synthroid to a natural ( animal) thyroxin- which did not have so many side effects as Synthroid. Because I was so ill on & off with the celiac disease, I don't recall how long I was on this...
  11. Kathinsearch
    Hi Merika, somehow I received a notice that you had replied to my post, when infact your reply quoted another post from 8/8/05. Since both posts were about cholesterol and malnutrition, I'll reply with a humble opinion...lol! I am not sure whether the high LDL and low HLD levels would be related to Celiac Disease but it certainly makes sense that they...
  12. Kathinsearch
    Hi Emeraldskies, I have always been facinated by the LOW cholesterol thing and Celiac disease because I have had this problem in the past and have also wound up with HIGH cholesterol after the gluten-free diet, as I am genetically predisposed. Don't let the doctors lack of understanding get in the way of your health... Celiac Disease can & does cause...
  13. Kathinsearch

    ARCHIVED Lupus

    Kathinsearch replied to a topic in Related Issues & Disorders

    Lupus... back in 1999 it was thought that I had lupus... certain tests came back positive and I had been feeling like I was dying... exhausted, in pain, mentally unable to focus orremember things..... and I had some terrible medical emergencies, hospitalizations and surgeries because of infections and inflammation. but eventually it was ruled out. I......
  14. Kathinsearch
    Hi... here are some articles on the diet, endoscopy & biopsy problematics . There are some diseases that have similar biopsy evidence but all seem to be worse to have than Celiac Disease.....so let's pray for your recovery. And like I said, beware of misinformation about the diet...... I've been on gluten-free diet since 1986 and I have an extensive...
  15. Kathinsearch
    Hi, thanks for the reply. If your positive blood tests of a few months ago were in the positive range, were the total's significantly lower than the original test results, or about the same or higher? It is important to compare them to see if progress is occuring. I ask because they should have been lower if indeed your diet had been 100% gluten-free. ...
  16. Kathinsearch
    Gillian, if you can, try to have your Celiac IgA EMA and IgG tTg tests redone before you go through all that! This will help you know how well you are doing on the diet and if negative, will provideassurance of compliance with the diet. These lab tests are always done before other tests and such. Have you had them done in the recent past 2 months? I don...
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