carolinagirl
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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995
Everything posted by carolinagirl
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Hi- I was reading about some gluten free issues online today & came across something new: refractory sprue on gluten free diet- can anyone explain to me what the doctors mean exactly when they say this?
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ARCHIVED Negative Celiac Gene Test- Still Need To Be gluten-free?
carolinagirl replied to carolinagirl's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Thanks- I do believe that my dr. ordered it from Prometheus Labs. I was planning on doing enterolab, but didn't know much about their genetic testing. Sounds pretty thorough. I want to avoid endoscopy- -
Ok- got a stupid question- if the celiac gene test comes back negative, does that mean that someone will never get actual celiac dz? can that person still have an intolerance? Also, does anyone know if you have no predisposition to celiac via genetics, can you still have villi damage? Thanks- I am so very very confused!
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ARCHIVED Gluten Intolerance Or Just Ibs/ Gerd?
carolinagirl replied to carolinagirl's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
hi- No, I haven't done that yet. Do you know what is involved in testing for that? Thanks -
ARCHIVED Gluten Free Abnormal Weight Gain
carolinagirl replied to calvert1's topic in Related Issues & Disorders
I also gained weight since becoming gluten-free. I have managed to now lose some of it. One thing htat helped me was I was having a lot of reflux. I am on Nexium & I think it is helping with the constant feeling of burning hunger. The main thing is making your calories count, don't eat empty ones & read labels. A lot of the gluten-free breads for... -
ARCHIVED Gluten Intolerance Or Just Ibs/ Gerd?
carolinagirl replied to carolinagirl's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Thank you for sharing your experience & knowledge. It is difficult to discern which problem you might have bc the symptoms are so similar. I got on Nexium last week & my reflux is a lot better, although still difficult to swallow. I think the main issue is finding a dr. who will work with you. Still waiting on my Prometheus blood test results for... -
ARCHIVED Modified Food Starch
carolinagirl replied to carolinagirl's topic in Gluten-Free Foods, Products, Shopping & Medications
Thank you for the insight on Mod. Food Starch. It all gets overwhelming, you certainly can't take chances -
ARCHIVED Modified Food Starch
carolinagirl posted a topic in Gluten-Free Foods, Products, Shopping & Medications
Hello- Does anyone know if someone on a gluten-free diet can consume Modified Food Starch? Also, what comprises this substance? I have avoided it since becoming gluten-free, but noticed it was in a lot of low fat foods. Don't want to keep gaining weight- -
ARCHIVED Gluten Intolerance Or Just Ibs/ Gerd?
carolinagirl posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Hello! I am new to this site & I have been going to and from different dr.s trying to figure this whole thing out. I had my Gallbladder removed in Jan 1999. Since then, I had the usual D after a high fat meal and then my "gasiness" for lack of a better term- began. I would not be that way all the time, though. Feb 2005, I got a horendous flu like stomach...