Jenybeen

Well, Isaac's appointment was a little disappointing. The doctor seems quite positive that the blood work that he did last year was accurate and Isaac had no "markers" and so Celiac isn't a possibility. When I suggested trying a gluten free diet just to see what would happen, he said that would be asking for more problems since we having such a hard time...

Very interesting...My son actually tested positive for Crohn's via blood work, but when they scoped him, they said they didn't find any evidence of the disease. They did find that he had chronic stomach and esophagus inflammation, scattered eosinophils, and gastritis. But they said those things weren't a diagnosis of any one disorder. Can't wait to see...

Thanks, Lynn! Actually, Isaac DOES have food allergies, he is allergic to peanuts, milk and eggs (possibly outgrown the egg allergy). So he is on a milk free diet already. I think his limited diet (no milk products or egg products) is what made him such a picky eater, and the few reactions that he has in the past have made him fearful of trying new foods...

Thanks for all the wonderful ideas, everyone! I tried to talk to Isaac last night about Celiac and the diet I'd like him to try out...he was SO upset. Tears and all. "YOU MEAN I CAN'T HAVE POPTARTS?!?!" LOL...6 year olds! Tried to get him to eat some meatloaf last night...wouldn't even touch it. Same with green beans. Everyone says to put the food...

No, not a single fruit or veggie. Amazing, because my other 3 kids LOVE fruit and 2 of them are veggie lovers! Guess I should've mentioned...Isaac (the son I am concerned about) is allergic to milk (and eggs and peanuts)! So there goes the dairy idea! So his food choices were already pretty limited... He will eat: breakfast=waffles, pop tarts, dry...

Hi all. Well, I visited this forum a while back when my son was undergoing testing for Celiac Disease, and when the results of blood and biopsy both came back negative, I thought I wouldn't need your support afterall! Well...countless tests later (ruled out Crohns, Cystic Fibrosis, bacterial infections, etc) and still with no diagnosis for my 6 year old...

Thanks for asking...been so busy I forgot to update you all. Well...we don't really have any answers, but this is what we know: Isaac has chronic inflammation of the stomach and excessive stomach acid so he is being put on Prevacid. The colon biopsy came back ok with the exception of a high level of eosinophils (a type of white blood cell) which signifies...

We're home! And sooner than we expected, too. Isaac did really well. He screamed when they were placing the IV, but he was fine as soon as it was done. Watching him be put under anesthesia was the most difficult thing I have ever had to watch. First he was yawning, then he started screaming for Zachary (his brother), it was so weird. He was obviously...

I am so nervous. Isaac has his procedure in the hospital tomorrow. He'll be having an endoscopy and colonoscopy. I have never been put under anesthesia, and I am going to put my 5 year old under tomorrow. I am so uneasy about that. I was crying last night. My hubby said if I this nervous about it, then maybe we shouldn't do it. But it needs to be done...

Thank you Celina! This was so helpful!! I hope Isaac does as good as your little one did...I am so nervous. I have this fear of anesthesia for some unknown reason, and I have never even been put under! Crazy. But that is my biggest issue, putting him under. Thanks for the reply! Jennifer

A couple questions about the endoscopy/colonoscopy procedure. My son's GI doc's office won't give me all the details til a week before, and it's a month away. I am curious NOW, lol! So if your child has had this done, could you please share some of the details with me? Oh, Isaac is 5 years old...Thanks! 1) What is the prep for it like? 2) How do...

Isaac was pretty upset about the thought of going back to have more blood drawn, so I called the GI doctor to ask if they can just draw the blood when he goes in for the endoscopy. They said yes! Woohoo! So they'll draw the blood for the celiac and Crohn's tests right before they pull his IV out in the hospital. Perfect. Endo is scheduled for 7am on...

Sorry you had to deal with such a frustrating situation, too...I mean, it's one thing if it was ME that had to go through it again, but I hate to have so much testing and poking going on with my child, know what I mean? Jennifer Thanks for the advice...I think we will still try to move the appointment. My husband has a really difficult...

(For those who don't know, Isaac is almost 5 yrs old with life long chronic diarrhea. We finally got a doctor who agreed that it is not normal, now that his growth is affected. We had bloodwork done over 2 weeks ago, and we're doing an endoscopy/colonoscopy in a couple weeks.) Here's why I'm ticked off:: Isaac's doctor called me just now to go over...

I posted here for the first time about a week ago. To read our story go here: Open Original Shared Link And here is our update: We saw Dr. Tran today, Isaac's new GI doctor. After a full exam and family history, the doctor thinks Isaac may have either Celiac Disease or Crohn's Disease, but it could also be a number of other conditions. Isaac had...