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capecodda

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by capecodda

  1. capecodda
    Yes, and it is really disturbing at first. I used to be a good dancer and very very coordinated. I feel like I am all thumbs sometimes, or just tip sideways all of a sudden. I don't feel dizzy though just embarrassed. I have dropsys too, like my hands just miss or fail to grasp things correctly.
  2. capecodda
    Hi! I am fairly new here too and like you, 8 years ago they said I had IBS. I struggled trying to juggle what foods worked and what didn't having no idea what gluten intolerance was. I lost so much weight in 3 weeks and became so dehydrated that I had secondary emergency problems happen. When someone said to me... "Just eat potatos..rice..maybe tapioca for...
  3. capecodda
    From what I am reading here, it appears that "Enterolab" is the best and most fool proof method for gluten intolerance testing..via stool sample? More so than endoscopy? Is this correct? If so, does one have to be actively eating gluten to show positive? And is it that Enterolab is more costly than other forms of testing that it may not be the first choice...
  4. capecodda
    "Gluten intolerance can affect so many different aspects of our health, not just digestive, so pay attention to any neurological manifestations, respiratory, mental, as well as sore muscles and joints and fatigue. "" Oh boy...are these neurological problems reversable with gluten free?? I most definitely have felt a sense of limited ability for some time...
  5. capecodda
    Yikes. I get up to "tinkle" at least twice a night. Thought that was normal for me. Will see now if anything changes though with gluten free. Living on protein shakes at the moment to choke down all the antibiotics for the ulcer but feeling great.
  6. capecodda
    That's true, but I have had food problems for many years and know that malt causes extreme bloat/gas. Years ago I had diarrhea for a month and they said I had IBS..and when I quit the farina and started eating potatos, it was all uphill. Will have to look inot ulcers too..Maybe you cannot digest grains well with an ulcer.
  7. capecodda
    Months..wow. That's what I am reading here and some folks still have intermittent trouble. My improvements are immediate..from the first baked potato..within 2 weeks the symptoms (aside from the ulcer) have completely calmed.
  8. capecodda
    By that I mean the main culprits for Celiacs; rye, barley, wheat , malt... Aside from the excruciating gastritis they produce, do you feel. 1. That the food just sits for hours and your body struggles to move it though. 2. Your heart beats faster because your body is working so hard and you can feel it pounding from your stomach to lower intestines....
  9. capecodda
    Thankyou for the replies! I had a total turn around with eliminating obvious glutens and corn products from my diet. Milk is taking care of the pain from the ulcer so am on the up and up. The GP has referred me to a GI Dr. but not sure how far I will go with that...been through enough at the moment and not interested in endoscopy for the time being!
  10. capecodda
    bump. It seems more often than not, from what i read here, that blood work proves negative for celiac though a person may very well have it. Am I correct? TIA.
  11. capecodda
    By the way, it is the medicine called "Verced" that causes the temporary amnesia. The purpose of it is just that...so that you do not remember any of the procedure. It does make one look silly though after . My husband asked me probably 8 times in 20 minutes if the Dr had been in to see him and what he said. (The Dr had, so i just repeated the info 8 times...
  12. capecodda
    H. Pylori. Ok..so I do have high H. Pylori but it was multigrain oatmeal that got me to the Drs. and I have many symptoms that really fit with Celiac. The page that uses words like t-Transgutaminase (tTG) IgA...Antigliadin ABS. Amylase, Lipase..etc etc came out negative. My question is, can one still have Celiac with such a shining report? It appears that...
  13. capecodda
    That is confusing. I just know that over the years, certain processed foods would cause bloat and the only similar factor I could find was maltodextrin so it has been a way of life to eliminate foods with that. I suppose there could be something else in those foods doing it. I justr ead somewhere her that there are 2 types of maltodextrin as well..one that...
  14. capecodda
    Thanks for the info! I rarely get into anything with sorbitol anymore as I have learned over the years what it's in so if I do, it's usually from walking in my sleep to the snack cabinet. (I have kids.) Pain is a good deterrant though. Eventually I nix another food from my list.
  15. capecodda
    Yes..true. That "contamination" word though is enough to keep me clear of any grain that swells up in water other than brown rice for right now.
  16. capecodda
    Rye, Barley, Oats, and Wheat. I am a bit embarrassed to even type those 4 words.. been learning a lot here in the past couple of days. Like... DUUUUUUUHHHHHHHHHH!!!
  17. capecodda
    It was Trader Joes Multigrain oatmeal that landed me at urgent care 2 weeks ago after ALMOST being back to par on rice and potatos...I am new and 8 years ago, looked into Celiac after what they called IBS and poo pooed my thoughts on possibly being Celiac. I have not touched (knowingly) any obvious oats, brans, breads, etc for the past 2 weeks and feel like...
  18. capecodda
    I feel like I have found my home..as far as what my body has been telling me for 45 years. I just hope the damage is not past the point of no return. I have known for many years that for some reason, maltodextrin blows my intenstines up like the Hindenburg . It took a while to figure out what was doing it but it has become a way of life to check labels. However...
  19. capecodda
    Woa..this is exciting and enlightening. I just found the No list for Celiac's and the lightbulbs are blaring! I knew there were certain things that caused me to bloat with excruciating gas (I have come to call it "the Hindenburg reaction")..like the additive maltodextrin that is in so many processed foods but didn't know there was a digestive disorder to...
  20. capecodda
    I am in the process of finding out if I have Celiac Sprue or something related. It seems to me that a couple of times when a digestive episode began, I had had an O'douls or a beer...but then again, I know I had been eating oatmeal or farina as well. Isn't beer made from grains that are on the NO list for Celiacs?
  21. capecodda
    I have thought all these years that is was my genital herpes. I have had increasing blisters in the past few months along with increased digestive problems that characteristically match Celiac. Sometimes in the past I do remember a cluster of little blisters/pimples on my rear as well. Just always thought it was GH.
  22. capecodda
    YES! Just by instinct, I started drinking Propel as I buy it for my son and have leraned the B vitamins are important during episodes. My naturepath Dr. gave me tryptophan with B6, B12 and green tea extract as well to suppliment my struggling digestive state.
  23. capecodda
    I am new here. The Dr. I went to recently during what seems to be a celiac episode asked me if I get rashes. I mentioned that I have what I thought was my herpes type 2 fairly regularly and typically around ovulation. In the past few months, I have had more outbreaks. One month, I had like 4 in a row. The pimple like sores itch intensely, and show up in the...
  24. capecodda
    Hi Carla. The tostada was at a local restaurant..though I had eggs and cheese this morning too and just read eggs can be a problem. I was doing better and better every day from my most recent intestinal upset..eating potatos, chicken soup, rice, yams..ate multi grqain oatmeal and ended up at the drs. Extreme fatigue, feeling of vessel pounding in intsetines...
  25. capecodda
    Hey folks. Just found this site. Had 7 vials of blood taken on an urgent care visit to the Dr after eating multigrain oatmeal...yeeeow! I was diagnosed 6 years ago with IBS and did fine with diet up till the past few months though I do tend to have inconsistand bowels and indigestion a bit. Wondering if other celiacs experienced rapid heart beat, slightly...
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