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Latest Celiac Disease News & Research:
Everything posted by Gemini
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So… I'm a coeliac
Gemini replied to OrangesAndMelons's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
As far as the oat issue is concerned, you can do what you feel best but when I was diagnosed, I was like you. Severe damage, blah, blah, blah.........and I did not wait 6 months to try oats. I ate oats around the 2 month mark and got the purity protocol oats that are very gluten free. I would not eat anything else. I had zero issues with oats. They went... -
Recently I have tried a few new gluten-free processed foods that I thought I would share. Yes, they are processed but if you eat a mostly whole foods diet, then it won't hurt to have some treats now and again. ? https://eatcaulipower.com/our-food I tried the veggie pizza and have to say, it was not bad at all. It was one of the best frozen pizza...
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Is Endoscopy Necessary?
Gemini replied to Olivia28's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Arlene....I am so happy that your family finally woke up and decided to have a better life. Once you push through the fear of the gluten-free diet, it just gets better. I wish my brother had listened to me. He just couldn't wrap his head around the fact he most likely had Celiac, along with his Type 1. He also had to follow a low protein diet, due to... -
Is Endoscopy Necessary?
Gemini replied to Olivia28's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Hey Squirmy! Looking forward to communicating with everyone again. I do see that nothing ever changes.......people STILL having trouble being taken seriously by the AMA. Well.....except for Olivia! There are more people in my family being diagnosed, which came as no surprise to me. We even recently got back in touch with some of my mother’... -
Is Endoscopy Necessary?
Gemini replied to Olivia28's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Hey Arlene! I'm still kicking but it's been an intense year. We moved Mom into Assisted Living last summer and she resisted it all the way. Made our lives hell....until she lived there for about 4 months and decided it wasn't as bad as she thought it was going to be. They have Happy Hour! ? But she thoroughly enjoyed trying to make us feel guilty...... -
Is Endoscopy Necessary?
Gemini replied to Olivia28's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
You have a very progressive and smart gastro to diagnose you on bloods only. Many will not do that, for various reasons. When blood work is that definitive, it is ridiculous to put people through invasive testing. I failed all the blood work on the full panel by huge numbers, had a positive gene test (it showed I have a double DQ2 gene so twice the fun... -
Is Endoscopy Necessary?
Gemini replied to Olivia28's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Olivia....from someone who opted out of the biopsy, I'll give you some info that might help. Not that I don't think you should have one but from what you posted above, having a positive tTg AND a positive EMA (Endomysial Antibody) is pretty much a slam dunk for Celiac Disease. If you have this combination, it's about 99% positive for Celiac without the... -
Are Halls Gluten Free
Gemini replied to 1morething's topic in Gluten-Free Foods, Products, Shopping & Medications
I have been using the Halls sugar free honey lemon cough drops for years and have never had any kind of issue with them. My blood work is always stellar and I am a very sensitive Celiac who does not play Russian Roulette with my food. The review just sounds like the usual disclaimer written by a company who doesn't want to get sued. I consider them safe... -
Alternative to Synthroid for Hashimotos?
Gemini replied to Charli61's topic in Related Issues & Disorders
Yes, it is a problem, isn't it? They all used to be dirt cheap and I, like yourself, pay cash for my thyroid hormone. I changed to a high deductible plan so now I get to see what these drug cartels are charging. ? NP is way more expensive than the Nature-throid. I liked the NP but switched back to Nature-throid. Nature-throid went through a "thing... -
Actually, they are, but many won't. Do you think people went out to eat all the time years ago? No, they didn't. 98% of the time, we ate at home, at the family dinner table. Eating out was a real luxury. If you are going out to eat that much or dine at other's houses and take chances with their food that they prepare, then that is being somewhat risky...
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Alternative to Synthroid for Hashimotos?
Gemini replied to Charli61's topic in Related Issues & Disorders
None of the thyroid therapies are drugs...anything you take is thyroid replacement hormones, if you are hypothyroid. If Synthroid is not working well for you, I would highly recommend desiccated because they contain BOTH thyroid hormones, instead of just the T4 only. I have been using Nature-throid for a long time and it has worked very well for me... -
The diet is not difficult to manage if you learn about food and nutrition, in other words, do your homework. It's the same for diabetics. The vast majority of people I know with either condition who are always complaining do not follow their diets well and continue to try and eat the standard, crap, American diet. Then whine they have been glutened and...
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You are correct with this but many people don't believe it. My attitude is that if you worry about this, then use gluten-free shampoo. If you understand the concept of cc and are comfortable with it, then use whatever you want. The bottom line is that you rinse your hair well after shampooing it so, unless you chew on your hair for hours on end, the odds...
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Cealic diease skipping multiple generations?
Gemini replied to CholoeS's topic in Introduce Yourself / Share Stuff
There is a big difference between not having Celiac for real and those who have not been diagnosed yet. My mother's family is huge and the dominoes are starting to fall. I have a niece and cousin who were diagnosed after me and there are many more symptomatic ones who have their heads up their butt in denial so will not be tested. My sister did our... -
While all of us are glad that you are doing world's better, you might fare better on a public forum if you weren't so arrogant towards people who know for a fact that some of what you say is absolutely false. Sorry you feel that you have been attacked but the only thing that happened here were members gave their educated and experienced opinions and you...
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Rituxan is not chemotherapy, it is an antibody treatment. I am well versed in this as my co-worker has ITP and has received Rituxan before when his platelet counts have gotten too low. It is NOT a cure for any autoimmune disease. It knocks it into remission for awhile. Some people have longer remissions than others. They only use this method of treatment...
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I am sorry I cannot help you with beer on tap, Brian as I don't drink it, but don't sweat Rome. Every celiac I ever knew who went there came back glowing about the food and how easy it is to find. I import some items from Italy myself because their gluten-free foods are fabulous. Like Ireland and London, everyone knows what Celiac is and are willing to...
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Anybody Experience Puffy Swollen Face?
Gemini replied to emryee's topic in Coping with Celiac Disease
One of the more common symptoms of hypo-thyroid is facial puffiness. Either the whole face or the eyes. You may want to look into your thyroid numbers to see if they are in the optimal range. As cyclinglady stated, steroids can really do a number on you and puffiness is also a side effect of steroid use. I do not understand why anyone would receive... -
I will also add that people who have skin sensitivities either have an additional wheat allergy or with DH, skin is almost always very sensitive overall. The gluten reaction is caused by gluten making it's way into your gut, which does begin at the mouth. So, if you cannot shower without ingesting wheat/barley containing shampoo into your mouth, or have...
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Exactly this! My pity party happens very infrequently but it always involves my inability to eat at a food festival and the food is cooking and smells so good! Those are the few things that make Celiac hard but it's only hard for a nano second and I move on. I have been doing this for 13 years now so for me, it feels completely normal. The gluten-free...
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Paper Towels And Toilet Paper
Gemini replied to celiac-mommy's topic in Gluten-Free Foods, Products, Shopping & Medications
Ohhhhh......I can hear the blow back from this statement already, even though it is true. -
Apothic Inferno Wine
Gemini replied to fryekelly0903's topic in Gluten-Free Foods, Products, Shopping & Medications
You will probably get the same answer from the wine maker. As whiskey is considered gluten free by distillation, and wine is gluten free, they will tell you that the wine is gluten free. The percentage of people who say they react to whiskey is pretty small.....most Celiac's can drink whiskey once they have healed their gut. I do not drink any hard liquor... -
New To This! Any Celiacs/gluten Free In Uk?
Gemini replied to Emma-jane88's topic in Introduce Yourself / Share Stuff
Had to mention........this made me laugh out loud and how true it is! -
New To This! Any Celiacs/gluten Free In Uk?
Gemini replied to Emma-jane88's topic in Introduce Yourself / Share Stuff
You do realize I am starting to drool all over my keyboard? Your second sentence said it all. It's been 12 years for me gluten-free so gluten free chewy is fine by me! -
New To This! Any Celiacs/gluten Free In Uk?
Gemini replied to Emma-jane88's topic in Introduce Yourself / Share Stuff
Bfree brand is in the US now and they are stocked at my local grocery store. I have not seen the wraps yet but I am going to request that they stock them. They have these dinner rolls that are actually a gluten-free sourdough roll and they are delicious! Read the link and see what they use for sourdough starter......excellent! The rolls have chew to the...