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Gemini

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Gemini

  1. Make sure you take these calculations to your appointment! Funny enough.........your numbers are very close to mine, Icelandgirl! My HDL is a little higher and my triglycerides are a little lower but the total is the exact same! OMG.........does this mean I am dying of high cholesterol?????????
  2. Not only that but I am pretty sure that the diseases/health issues mentioned in the article that can supposedly happen with the gluten-free diet DO happen when following a processed food diet. Guaranteed! I agree....these articles are more scare tactics used by the AMA.
  3. How true this is! I always tell people that disease does not happen without inflammation and then I get the weird looks. At the root of everything is inflammation and that is where people have to concentrate their effort on getting healthier........drive down the inflammation and that can happen by dietary change. My cousin is a triathlete at the age...
  4. This is great information! The dirty little secret is that it's the refined carbs and sugar that raise your chances of developing plaque and not animal fats. I am in no way saying eat steak every night but when people go in for bypass surgery, the focus is on their blood sugar, not steak and butter. Yet, do the mainstream panickers ever say that? Not...
  5. Iceland girl........your bad cholesterol has improved over last year and 116 isn't exactly panic mode! Not to mention that it has only been higher for the last 2 years and always Celiac low beforehand sooooooooo.........I think your doctor is a tad overboard on this. I always had very low numbers, even up to 10 years post gluten free. Then, I guess...
  6. I have been strictly gluten free for 12 1/2 years and never once have I been glutened by mushrooms or capers. I eat these at least a couple of times a month and nary a problem. If people need to see a certified label on a mushroom or caper, then that's your choice but it really is not necessary for the the vast majority of Celiac's. I am pretty sensitive...
  7. I've had nothing but excellent results with probiotics so for many, they are a good idea. But I had testing done to see what was going on in my gut and I had a need for certain strains. I do not have SIBO and never had a problem with that. If someone is doing well without them, then you don't have a need but if you are still having gut problems, they...
  8. I am really surprised that any doctor would recommend low dose aspirin to anyone with Celiac. Aspirin is hard on the gut and can cause ulcers and bleeding...even low dose ones. I know people this has happened to and they don't have Celiac. Personally, I find that drinking a glass of red wine with dinner does the trick as it is a blood thinner also. But...
  9. I don't know what insurance you have but most insurances will cover meds when there is no replacement (generic or otherwise) for the one prescribed. Your doctor may have to contact the insurance company or write a letter to approve it but that is the way it usually works. This happened to me with Restasis eye drops. They are insanely expensive and there...
  10. After reading the ingredients list on-line, they list cheese cultures (from barley), which is a first for me! I would not eat this because barley is no-no. Maybe there is another brand that is gluten free? You might want to do an on-line search.
  11. Zaditor is OTC now and that is what I use for my eyes during allergy season. It works well and I don't worry about it drying out my eyes even more because you only use 1 drop in each eye, 1-2 times per day. They help tremendously with the allergic response so well worth using! You can try some of the supplements mentioned for dry eye as you never know...
  12. All of the above mentioned treatments are worth trying but I have done almost all of them with little to no improvement. If you just have dry eye caused by anything other than Sjogren's, they might help but if you have Sjogren's with a lot of collateral damage to your glands, don't expect a lot of improvement. As far as using preservative free drops, as...
  13. Thanks! I just wish the doctors would put more thought into it instead of closing their minds when they see a negative or only 1 positive. It seems this board understands testing better than most GI's..........
  14. You really have been doing your homework, haven't you? I am quite impressed at your new knowledge and you have some really good idea's and opinions on the whole Celiac spectrum! I completely agree with most of what you have said and find it interesting because I am one of the ones with lots of collateral damage so find your thoughts interesting. I think...
  15. I am allergic to mold like in rain and humidity, not food wise, although I really try not to eat any moldy bread. If you have severe symptoms of allergy on a warm, rainy day or the day after when it's sunny and all those mold spores let go, then you probably have a mold allergy. It's very common.
  16. The AGA/IgA and AGA/IgG tests are reliable and I am not sure why some consider them not as reliable. They are just the older versions of the current DGP testing, which is more sensitive than the AGA testing. I have full blown Celiac Disease and I failed both AGA tests at diagnosis by high numbers but I was 46 years old at the time and was pretty much in...
  17. The only thing that I use is the Restasis eye drops (RX) and OTC hydrating drops. Did you have damage to your tear duct? I found that once I went gluten free, the eye problems got better. But that most likely is because the longer I ate gluten free, the more I tamed the systemic inflammation down and that helped with my other autoimmune issues. It...
  18. We really are twins, my friend! I could never, ever get my weight up beyond 105 my entire adult life. I ate like a lumberjack too. So, please tell me why someone who weights 105 pounds, has skinny arms and legs with a bloated belly could go soooooooooooooooooo long with the medical profession not figuring out Celiac?????? It was bizarre. I had all the...
  19. I hate to say it but you should be tested for Sjogren's. I have Sjogren's and yes, your eyeballs can hurt because they get so dry and allergy season does not help at all. There is blood work for Sjogren's and it's antibody testing but like Celiac, you can still have Sjogren's and test negative for it. Do you have dry mouth also? Most docs are useless...
  20. You are my twin so here is what happened with me after diagnosis........it took every bit of 6 months before I began to gain enough weight that my pants started to feel tighter. I was bone thin. You will start to notice (and you did) that your arms will not be as thin. That is the first place you usually start to gain and then the fat pads that you didn...
  21. I presented the exact same way as your daughter, only I was 46 years old at the time. I also have a double DQ-2 gene and that means it will be more severe...which you already know and I already know, from experience. My weight and height were about the same and I was down to 92 pounds at diagnosis. I was more fortunate, though, as I saw relief from my...
  22. No one is trying to silence you, I can assure you of that. All of the information supplied by our knowledgeable forum members is accurate. I am also a severe Celiac who nearly died from this disease and react very strongly to any ingested gluten so have to be very careful. I know where you are coming from. I think what is happening here is that you...
  23. https://www.walkinlab.com/catalogsearch/result/?order=relevance&dir=desc&q=celiac+panel&btnSearchSubmit= This one you can access directly without a doctor involvement. They send you to a draw site. Other forum members have used this or at least have linked to this site for others. I believe you have to pay cash but am not sure if they...
  24. I consider them healthy if they are just plain nuts with little to no salt on them and are not overly processed. I love nuts of all kinds! Unless you have trouble digesting fats or have an allergy, then nuts are good!
  25. Have you had the DGP repeated or was that done in the beginning? Relying on the tTg alone for dietary compliance is wrong. It can be elevated from other AI issues alone and other AI issues can mimic Celiac symptoms. I have 4 AI diseases in total and some of them overlap with symptoms. Hashi's thyroid disease is one such example. If your DGP is normal...
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