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Gemini

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Everything posted by Gemini

  1. Gemini
    I think I will stick to a few basic answers here because the rest of the post is too conspiracy theory based and I'm not going there. Celiac is a genetic disease which can be triggered by a number of things. Glyphosate is not the cause of Celiac Disease because Celiac Disease has been around for way longer than Monsanto has. Am I saying that pesticides...
  2. Gemini
    Actually, my advice was accurate. Digest hair? Maybe you do but I am pretty sure I do not digest hair. My hair is somewhat short and doesn't blow into my mouth so maybe for people with longer hair who get it in their mouth on a regular basis, it might be prudent to screen hair products. You really only have to screen them if you get them in your mouth...
  3. Gemini
    Now that makes sense.......not good sense, but I see the tactic. I think when it comes to food based diseases, good luck with that. People are so food obsessed today I am not sure that most people will ever get on board with eating better and smarter to control their conditions well. I hate doctors so figure if I never cheat, that will go a long way to...
  4. Gemini
    I disagree with regards to my analogy between diabetics and those with celiac......diabetics really should not be eating sugar, except in extremely small amounts on occasion and they need to test after EVERY sugar ingestion to learn exactly how much insulin to administer....none of which the diabetics I know do. But taking insulin using injection or via pump...
  5. Gemini
    I think if people are cheating on the diet, then its their problem. Same with diabetics....many do not eat as they should with the diet so now doctors tell them they can have sugar, as long as they maintain their blood sugar levels. Yeah...right. I know many diabetics and they do not do a good job of it. They are the ones eating donuts at break time and...
  6. Gemini
    Hello GFmom! You're in luck! New England is one of the best places to be gluten free and is probably comparable to the West Coast in that respect. I have lived here all my life in Massachusetts and know it well, for the most part, so will be able to help. As you do not have an itinerary yet, I will start you off with this website which is a wonderful...
  7. Gemini
    Will do, rarchy! I was planning on doing a write up here if the food is good but it certainly looks good on the website. I want one of those baguettes that keep calling my name........
  8. Gemini
    Hello sdlane! As another with thyroid disease (Hashi's) and Celiac, I wanted to mention that you have only been gluten-free for 13 months so you may not be absorbing well yet. Your cholesterol is still a bit low, like mine was for a long time after diagnosis, and your vitamin levels are in the toilet, which would indicate you are still not healed...
  9. Gemini
    The only people who don't have to worry about cc are those half ass, fad dieters. With a positive EMA, positive genetic screen and an inflamed duodenum, along with mild blunting of the villi, you need to be careful like we all do. In 6 months of following a strict gluten-free diet, go back and have them re-do the EMA. If it's negative, that should convince...
  10. Gemini
    While I do agree with you, Emma, that there are too many bad doctors and practitioners out there, and I am including those within the AMA, low stomach acid is not pseudoscience or quackery in any way. It is common in people with Celiac Disease and to those who are over 60. Like many things in our body, levels decrease with age. What bothers me is that...
  11. Gemini
    Yup.....another Celiac symptom that doctors never connect because it's from eating gluten and they just don't get that. I had extreme dizziness for YEARS and it all resolved on the gluten-free diet. Give it some time but it should resolve on its own.
  12. Gemini
    I do not live in England but visit on a regular basis. I know London well. I have had success at Starbucks and Nero's with their sandwiches, which are pre-made and wrapped in another facility. Starbucks had a delicious veggie and hummus wrap that was really, really good. The last time I was there was in October of 2014 and had them on a number of occasions...
  13. Gemini
    Sensitivity probably lies in the genetics of Celiac. The double DQ2 gene that is have is known to be associated with more severe cases of Celiac. So, some of the Celiac genes have their own criteria that make the whole disease state more severe. But I can eat gluten free processed food without issue. The longer I have been gluten-free, the more I can...
  14. Gemini
    I am a very sensitive Celiac and did not have any problems with many of the certified gluten-free foods. I have used Bob's Red Mill on occasion and never had a problem. If all of these foods were so contaminated, none of us would ever heal. I am not saying it does not happen but I think the problem is way over blown. Some of us need to eat grains for weight...
  15. Gemini
    Oh, my.... I love your sense of humor!!!!! I think you will be surprised at how much can be attributed to undiagnosed Celiac. The effects on your gut and neuro systems are mind boggling. Like I have said before, you really must wait at least a year, especially for neuro issues, for major improvements to show themselves. Small victories will happen...
  16. Gemini
    I couldn't have said this better. I go to Starbuck's because it's my only option for coffee/tea drinks when out and about. I have been drinking their Chai tea latte's since diagnosis 12 years ago and have never, ever been glutened. Ditto for coffee latte's and cappuccino's. But I do not drink any flavored coffee so can't comment on that. I tried the...
  17. Gemini
    Mermaid's Mom........I do not think that the MTHFR gene is responsible for all the problems your daughter is having. I have been tested for this because my homocysteine levels were ever so slightly elevated by 2 points over normal and my MD, not a naturopath, wanted to know if I had a mutation on this because it does interfere with your body's ability to...
  18. Gemini
    The reason they are not diagnostic (according to the AMA) of Celiac is because you don't have enough severe damage for them to bless you with a diagnosis. Some doctors will only diagnose Celiac with Marsh III damage...which is pretty much after the villi are gone and you are pretty miserable, if symptomatic. Let's see.......your duodenum is irritated/inflamed...
  19. Gemini
    Hi Caro! I will answer from the perspective you are looking for.....the person who was diagnosed based on bloods and refused the biopsy. It helped that I presented with classic Celiac so could have been a poster child for it. Small, thin female who, when I really hit the wall with it, was losing 1 pound per day. I had no GI doctor at the time and still...
  20. Gemini
    Caro..............monitoring only the TSH to gauge thyroid function is what endo's do who don' t do a good job of managing thyroid disease. They should do the full panel and check the actual thyroid hormone numbers.........T3 and T4. The importance of the TSH comes second to hormone levels. In order to track how severely the thyroid is under attack, you...
  21. Gemini
    I work out regularly and I would say NO to working out if you have been glutened or are really tired. You know what happens to people who work out when they are really fatigued? They suffer injuries. I was not well enough to work out until I had been gluten free for 4 years but I am much older than you so I doubt it will take 4 years for you. Drop the...
  22. Gemini
    Truer words were never spoken.......insurance companies operate like Ponzi schemes. I know there are times when a person really needs insurance but navigating their ridiculous policies is enough to make anyone go crazy.
  23. Gemini
    Welcome, Caro! As I told another poster (Gertrude) the other day, no other disease but Celiac Disease will cause a positive EMA. Why is it that many docs don't seem to grasp this? As for your tTg/IgA numbers falling a bit, thyroid disease will also affect that particular test. So, if your thyroid function has improved since the first testing...
  24. Gemini
    Although this was an incredibly informative and great post, I only took exception to one thing you said and that is what I put in bold lettering above. Eating gluten free is very healthy, if done correctly. The Western American diet is very unhealthy but it doesn't have to be either. If you feel badly after being on the gluten-free diet for awhile, you either...
  25. Gemini
    Gertrude.....just a few comments after reading your posts..........no other disease but Celiac disease will cause a positive on the EMA test. I have never heard of a false positive on that either. It is a test that is done by hand and not by a machine because of the way it has to be done, so having a false positive is almost impossible. Your doctor should...
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