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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995
Everything posted by Gemini
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New DX... Who do you tell?
Gemini replied to CatchyUserName's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Lotions used topically are not a concern at all unless they contain gluten and you ingest them into your mouth. Gluten has to get into your GI tract, (which begins in your mouth) for damage to occur. Ditto for hair care products. As most salons have you bend your head back into a sink to wash, the odds of any shampoo or conditioner getting into your mouth... -
Am I Missing Something? Seems too easy
Gemini replied to Deades's topic in Coping with Celiac Disease
You shave stumbled onto the biggest secret out there..........the gluten-free diet isn't as horrible as many would have you believe, including the medical profession. There is plenty of good food to eat and the biggest drawback is we have to prepare it ourselves the vast majority of times. That's the worst part. And like yourself, I have friends who have... -
Ha, Ha!!!!!! If I wouldn't get in trouble for practicing without a license, I would! I get it because that is what they did to me for years. I never had acid reflux but had enough other symptoms that all screamed Celiac but no.........they told me that my severe stomach pain might be acid reflux so take this script and go away. They never even...
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Lab work came back
Gemini replied to Fbmb's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Once your tTg is in the normal range, and it's only 1 point away from that, that would be considered excellent results. tTg just has to be in the normal range to be called a success. The number you want to be as low as possible within the normal range is the DGP or AGA testing, as that tests for dietary compliance. This is why it is a good idea to run... -
UK Cuts Gluten-Free Food Prescriptions
Gemini replied to Scott Adams's topic in Publications & Publicity
http://www.newburnbakehouse.com/gluten-free-artisan-bread I had no idea they now have artisan breads and now I am upset because these look amazing. Is it possible that people emigrate to other countries because of the bread? The wraps they have are really, really good. They roll without splitting and cracking. OMG...they even have crumpets... -
UK Cuts Gluten-Free Food Prescriptions
Gemini replied to Scott Adams's topic in Publications & Publicity
You have the best sense of humor! -
UK Cuts Gluten-Free Food Prescriptions
Gemini replied to Scott Adams's topic in Publications & Publicity
It has always been odd to me that the US, the land of innovation in the world, cannot make great gluten free bread. Of course, no one cares about that except Celiac nation. I am not saying there isn't good gluten-free bread here because there is. In the 12 years since my diagnosis, it has come a long way. However, every time I visit the UK, I am amazed... -
UK Cuts Gluten-Free Food Prescriptions
Gemini replied to Scott Adams's topic in Publications & Publicity
I think for adults who are disabled or have really low incomes, they should be allowed to keep their Rx. But anyone else who is an adult and has a job, they should pay their own way. There are so many options available in the UK now and their gluten-free options are really good. You have better bread than we do in the States and the cost in many instances... -
US Tax Deductions for gluten-free as a Celiac
Gemini replied to Ennis-TX's topic in Coping with Celiac Disease
Ennis....pertaining to food deductions, you can deduct the price difference between those items that you would have to buy a gluten free version of because there are no other options......like all the mixes and things mentioned. Chips, not so much, as many chips are already gluten free so it would not apply. Those would be your safest bet as you probably... -
Restaurant owner in need of help
Gemini replied to Nonceliac's topic in Gluten-Free Foods, Products, Shopping & Medications
That is not completely true, Ennis, and it all depends on what kind of cooking they are doing. I would never eat from a shared bakery because baking is different than cooking and they use flour in just about everything in the shop. Flour could literally be everywhere. However, in a restaurant where they cook main meals, the use of flour is limited and... -
Do I need the biopsy?
Gemini replied to lngmk's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
If you have continuous coverage with an employer, you would be charged the group rate and were not penalized for preexisting conditions. If you lose your job and were forced to apply through the government site, you WERE PENALIZED. You could be charged up to 3 times the amount of a young, healthy person and the bill that keeps dying in the Senate right now... -
Sjogren's, Celiac, or both?
Gemini replied to Eggs's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Yes, I would definitely say you have "in your face" Sjogren's symptoms! My eyes are the worst but not everyday. When exposed to outside molds during allergy season, they become very red and somewhat irritated. I use OTC moisture drops and Rx Restasis.....which you may want to give a try because it has helped me quite a bit. The problem will always be... -
So happy- got the ft job!
Gemini replied to Victoria1234's topic in Introduce Yourself / Share Stuff
Way to go! Working with the kiddies........that could be very fun. I hope it all works out and is a perfect fit! -
Do I need the biopsy?
Gemini replied to lngmk's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Yup....that's another whole issue that I hope will not explode on us. It's a problem until you reach the age of 65, when you can go on Medicare. They seem to not penalize people so much with that because you are older anyway and will have some age related stuff going on. As much as I don't want single payer, insurance companies hold everyone with preexisting... -
Do I need the biopsy?
Gemini replied to lngmk's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Thank you, and I am glad there are others who feel the same way I do. It could be that we both have been doing this for so long, it is normal for us. It definitely becomes so much easier the longer you are gluten-free. I also was so grateful to be validated, after having docs telling me for years that it was all in my head. I was grateful that I didn't... -
Do I need the biopsy?
Gemini replied to lngmk's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Something I keep hearing and do not quite understand is why people think this diet is so hard and demanding. I never found it to be at all. I think it is very inconvenient, at times, especially when there is a social function because you may have to bring your own food. But that does not isolate you in any way. You bring your food and eat with everyone... -
Do I need the biopsy?
Gemini replied to lngmk's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
For another opinion from someone who did not have the biopsy but did have a positive full Celiac panel that was off the charts.......your doctor should have done the FULL PANEL. She did one test that was very positive but the reason for doing the full panel is important. Not only for a more solid diagnosis, but you should have the DGP or AGA/IgA testing... -
Is it possible to pay for the blood screen out of pocket? If not, then if the gluten-free diet helps, you must assume you have Celiac and follow the diet strictly because that's the only way it will work. I am pretty sure that if your symptoms improve dramatically, you would not want to cheat on the diet or would doubt you have a problem. I did not have...
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Holy Crap, Darla!!!!!! Your symptom list almost screams of Celiac Disease and you should get tested ASAP! I have Reynaud's also and I am so sorry you have gone through all of this with no help. As long as you are not on any systemic, immuno-suppressant drugs for your RA, then you should demand a full Celiac panel and possibly an endoscopy. I have anxiety...
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Wow...so much going on here and they are all intertwined! Welcome and howdy back....I love the Texas greeting! I'll address the testing results because I have comments.......you seem very intelligent because you have already figured some things out that many do not notice. You will need that intelligence as many doctors still run on the notion that...
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Positive Blood Tests
Gemini replied to jenna3's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
OK...I'll bet on this one because it's a no brainer. With a positive EMA and tTg, you have Celiac Disease. I don't what they are teaching these docs today but as no other disease causes a positive EMA except Celiac, what doesn't he get? Oh, yeah...money from the endo. I am sorry you have to pay that much money for the test because you really don... -
Although I can't eat large amounts of dairy, I do ENJOY that bit of cream I put in my coffee! I think dairy is fine unless you have a problem with it and then you have to find your happy balance with it. Sue's post was a good one and has valuable information for those who may be in denial a bit about the dairy issues. It can be daunting to give up both...
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Positive gliadin is now normal
Gemini replied to Runningmomma's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
You know, they really ought to standardize testing protocol a bit better for some diseases like Celiac so we have some consistency here! I have never seen the combined assay before and I am not really sure why they would combine antibody testing like that but hey, I am not wearing the white coat! Increased IEL's also happen in the early stages of Celiac...