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Gemini

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Everything posted by Gemini

  1. Gemini
    I would agree that you may have Celiac because your tTg is slightly elevated and your Gliadin Peptide is very elevated....which means you are producing antibodies to the gluten in your diet. Yes, there is another test called the EMA that is usually not done without other positives (which you have) because it is an expensive test that has to be done by hand...
  2. Gemini
    With the numbers that you got back from your blood work, it is highly probable that you have Celiac Disease. I an not sure what this test means as I have never seen this before: Celiac Disease Dual antigen screen: 199 but having a tTg of over 100 points heavily to Celiac and your DGP shows that you are reacting to gluten in your diet.......significantly...
  3. Gemini
    Like Ennis suggested.....protein, healthy fats and bread. Yup...gluten-free bread. I am a thin Celiac and I did not really gain until I started eating gluten-free bread. Udi's has a couple of choices that are very healthy breads........they are very whole grainy. I sometimes eat PB&J sandwiches for snacks. Or load it up with tuna, luncheon meat and...
  4. Gemini
    You know, Rosie, it is perfectly OK to eat out when gluten free but it does take awhile to learn the ropes as far as what is safe. I would not recommend eating out on a regular basis but occasionally or when traveling, it can be done quite successfully. The FindMeGlutenFree site has reviews by other Celiac's and they do a pretty good job of helping to make...
  5. Gemini
    Rhiannon.........you may be interested to hear that OCD, anxiety and depression are all things can happen with undiagnosed Celiac. Seratonin is made in the gut and when your gut is compromised from Celiac, then you aren't really producing much seratonin. Many people notice improvement with these issues when they go gluten free and heal. The gut-brain...
  6. Gemini
    Steroids will interfere with testing so you may have to wait a couple of weeks after stopping them to be tested for Celiac. All of your health problems can be directly related to Celiac so I think it important for you to be tested. FYI....hives can happen just from having autoimmune diseases. I started having a problem with them about 3 years ago...
  7. Gemini
    Just blame it on a brain fog day.........that's what I do!
  8. Gemini
    Have fun eating your heart out and Happy Birthday!
  9. Gemini
    I guess it depends on what you have for insurance. I have a group plan through my employer and they approve everything that a doctor orders...... except for testing that is not mainstream. They also should "approve" bone density testing in petite, small boned women with or without Celiac. There are many other risk factors involved in having compromised...
  10. Gemini
    With the blood results that you have, you most likely have Celiac Disease. It's shame that the doctor failed to do a complete Celiac panel because if they had run the EMA along with it, and it was positive, that's a slam dunk for Celiac, from a blood test point of view. When both tTg and EMA are positive, I think the percentages are 99% likely for Celiac...
  11. Gemini
    Here's what I tell people who have not been diagnosed long.......it is perfectly OK to eat gluten free bread after diagnosis IF it agrees with you and does not produce or aggravate existing symptoms. The blanket statement that eating anything processed right away will slow down healing is just not true for everyone. Sorry, but it isn't. As one of the...
  12. Gemini
    I am happy you are getting the help you need and that you seem to have found a GI doctor who knows what they are doing. Hang in there.......I know how tough it is to eat gluten when it makes you feel horrible. Best of luck with the testing!
  13. Gemini
    Hi kelzz..........the only way you will find out if the increase is from gluten exposure is to have your doctor run the correct test. I have said this a million times on this forum but I will say it again.....the DGP/IgA tests for reaction to gluten ingested. The tTg/IgA tests for intestinal damage and that can be elevated from other autoimmune diseases...
  14. Gemini
    Nice to see another poster who doesn't live with extreme food fear. If people want to believe that everything is contaminated, I have no problem with that. To each his own. I am a sensitive Celiac who has to be very careful but also learned what reality is with the food I eat. With certain foods and drink, cc is so unlikely its not worth getting your knickers...
  15. Gemini
    Teva is a great company for gluten-free drugs. I have used their Z Pak before, which is Azythromycin, I believe, and never had any issues with it so I stick with Teva brand. They are an Israeli company.
  16. Gemini
    GFMom...just so you have peace of mind regarding my recommendations, I am about as sensitive a Celiac as they come and take this diet very seriously. I do not dine out that much at all but have some personal favorites, both of which are run by people with Celiac or have Celiac's in their family. I would never recommend any place that I thought was not safe...
  17. Gemini
    I am going to have to say it and then I will say no more. This website is literally filled with people who give the most current, up to date information on Celiac Disease. We take it very seriously here. It is also difficult to dispense information on the web when everyone has different health issues tied to Celiac BUT I know personally we have helped...
  18. Gemini
    If you have been a diagnosed Celiac for 20 years, then your reactions to gluten may have changed and become less severe. I have been diagnosed for 12 years and there have been big changes to my reactions since diagnosis. At first, they were debilitating with severe GI issues. Fast forward 12 years and, I admit to only being glutened 2 times in the past...
  19. Gemini
    I never said I was the sole source of experience with gluten and I will forgive your snarkiness because I understand you are not well. I will also forgive your comment about being a careless Celiac because you do not know me, you do not know that I almost died from this disease and I can pretty much guarantee you that I am as careful as a Celiac can be with...
  20. Gemini
  21. Gemini
    AristotlesCat. I have not been freely drinking just any coffee and stick to a couple of brands, for taste preference. But when I travel and they ask me if I want a cup of coffee after the meal, I do not grill them on where they get the beans from. In 12 years, I have never been glutened or cc'd by coffee and that is not a really astounding fact. Most...
  22. Gemini
    If they are normal then I wouldn't worry about it. I have the same issue but I eat a lot of fiber. Many docs will think this is too much but I don't agree. Every one is different and diets vary, along with motility in the gut.....how fast food moves on through the pipeline! If you feel good and BM's are well formed and normal......you are going easily...
  23. Gemini
    Here is a quick explanation of lab testing reference ranges: Open Original Shared Link It is important to use the same lab for re-testing antibody levels for a more accurate comparison. Her antibody levels are coming down so that is a good thing. However, the doctor should also be retesting her DGP, which tells you if she is getting any gluten...
  24. Gemini
    ....and if this were actually a real problem in life, Celiac organizations would be warning us to find gluten free, certified coffee. This is overkill and it really misinforms and scares people. The vast majority of Celiac's do not have to follow the Fasano diet. We heal well on the standard, strict gluten-free diet. Key word....strict, with no cheating...
  25. Gemini
    You will never find certified gluten-free coffee because coffee is naturally gluten free. In 12 years of being gluten-free and many, many cups of coffee later, I have never been cc'd by coffee either. It is highly doubtful that coffee would be cc'd. However, coffee is an irritant to the gut so maybe you should just stop drinking if for awhile to see...
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