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Gemini

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Gemini

  1. Gemini
    While all of us are glad that you are doing world's better, you might fare better on a public forum if you weren't so arrogant towards people who know for a fact that some of what you say is absolutely false. Sorry you feel that you have been attacked but the only thing that happened here were members gave their educated and experienced opinions and you...
  2. Gemini
    I did have a lengthier response to this but since moggy is done, I thought the only thing that needed mentioning here is this paragraph is nonsense. Privilege is such an overused word today that it has lost it's meaning. It also offers an insight to what the real problem is for her/him. I only hope that down the road, the attitude will change for the better...
  3. Gemini
    Rituxan is not chemotherapy, it is an antibody treatment. I am well versed in this as my co-worker has ITP and has received Rituxan before when his platelet counts have gotten too low. It is NOT a cure for any autoimmune disease. It knocks it into remission for awhile. Some people have longer remissions than others. They only use this method of treatment...
  4. Gemini
    http://www.findmeglutenfree.com This is a great website to help us with finding reputable restaurants that serve gluten free options/meals. I can't promise every one of them is safe but there are plenty of reviews by other Celiac's to read and help you make a decision on whether it is safe for you. I have had good luck with it when traveling.
  5. Gemini
    Most Celiac's everywhere react to food with gluten in it. The 20ppm rule came from scientific research that proved the vast majority of people do not suffer intestinal damage at these levels. That may change down the road but for now, it is the number that works for most. Not all, but most people. DH is a different animal. You can have IgA deposits...
  6. Gemini
    Being tested once with a negative only means you don't have it now. Family members are supposed to be tested every couple of years or if they become symptomatic. Believe me, there were family members of mine who happily proclaimed they didn't have it but 10 years later, they have been diagnosed. If they had listened to me in the beginning, they wouldn...
  7. Gemini
    I don't think Squirmy was being rude, either. There seems to be this pervasive attitude going on today against people who adjust well to challenges in their life. Couple that with people who probably have additional health issues, along with Celiac, and aren't healing as fast as they think they should and this is what you get. Whether you like it or not...
  8. Gemini
    I’m pretty sure I would not even go to someone’s house for Easter dinner if they were serving take out Chinese food, Celiac or not! I would stay at home and cook myself an awesome meal and be much happier for it!
  9. Gemini
    I agree with Kareng........your doctor’s office clearly have no clue what they are talking about and could certainly be classified as idiots. Your numbers are fine.......really. In fact, if they were really that good at what they do, they would know to run more than the paltry tests that are not really for compliance. They should also be running the D...
  10. Gemini
    I take a lot of Vitamin D and my levels are the highest they have ever been. They have gone from the twenties to 62 so I keep plugging away at that. I just have a lot of collateral damage from going so long as an undiagnosed Celiac. I also take 2,000 mg per day of omega fish oil and flax seed oil, which is supposed to specifically help with dry eye. This...
  11. Gemini
    Two of the four drugs listed are immuno-suppressive drugs. Leflunomode and Plaquenil are the two so there is a strong possibility that either of these 2 (or both) could have affected antibody testing. If you are testing an antibody level in autoimmune testing (Celiac) and take meds that suppress the immune response, testing results may be useless. I am...
  12. Gemini
    Are you on any immuno-suppressive drugs for your RA/Sjogren's? Some of them can interfere with blood testing results. If not, then it is entirely possible for blood work to be negative and biopsy positive.......that happens to a lot of people. Neither one is more accurate than the other as damaged villi can be missed on biopsy if damage is patchy. I am...
  13. Gemini
    I don't know if you have Starbuck's near you but they have a gluten free egg sandwich that is not too bad. They follow good protocol when heating it up. It comes wrapped and is heated up fully wrapped to avoid cc. Yes, I know they are more expensive but you will have to get used to that if you want "fast food" that is safe for a Celiac. I wouldn't even...
  14. Gemini
    I took a look at the studies and, while they do have some merit, there isn't enough there to convince me just yet. It can take a long time and many studies to actual prove, beyond a doubt, that long term use of Benadryl may cause dementia in some. That is kind of hard because many things can cause dementia and doctors never look for the cause........they...
  15. Gemini
    I never have headaches so consider myself lucky on that front. I only need to take them if I have dental surgery and for that, it works quite well. But I usually only have to take one and it gets rid of any lingering pain. I have been told by doctors that I have a very high tolerance to pain. I had an incident with an Erythema Nodosum, which is inflammatory...
  16. Gemini
    I am sorry I cannot help you with beer on tap, Brian as I don't drink it, but don't sweat Rome. Every celiac I ever knew who went there came back glowing about the food and how easy it is to find. I import some items from Italy myself because their gluten-free foods are fabulous. Like Ireland and London, everyone knows what Celiac is and are willing to...
  17. Gemini
    Lacey........Benadryl or any other antihistamine does not cause early onset Alzheimer's. There is a genetic component to that and it is pretty rare, compared to the version that strikes people in their 80's and 90's. I have allergies myself and, while it does not cause widespread body pain, it causes fatigue and right now for me, hives. The minute...
  18. Gemini
    Why would you worry about gluten cc from a cannabis plant? Oh, wait...maybe I shouldn't even bring that up!
  19. Gemini
    Great post and so common sense! Not sure if I would take a bike ride when having severe menstrual cramps. For some women, and me when I was younger and it mattered, have excruciating cramps to the point of passing out. Good old Ibuprofen worked wonders but you do need to read the label and not abuse the amounts taken. I rarely, if ever, need any...
  20. Gemini
    Those figures are very high and strongly point to Celiac. If your doctor had done a full Celiac panel and the rest of the testing came back positive, then you wouldn't need a biopsy for diagnosis but to check on level of damage. But they did not do a full panel so if you need more convincing than what they have done, you would progress to a biopsy. You...
  21. Gemini
    If your daughter's tTg/IgA was very high at diagnosis, then her EMA may not be normalized after 5 months. The EMA is an IgA based test so that number will have to come down before the EMA turns negative. It will be interesting to see what her tTg/Iga is now but don't sweat this. Five months is not a long time and she also has Crohn's so that's a lot of...
  22. Gemini
    I eat their products and have never had a problem. Enjoy!
  23. Gemini
    Repeat antibody testing, for those who are serio-positive at diagnosis, is extremely useful as a tool for monitoring improvement. Many Celiac experts (MD's) have written books detailing which ones are important to use as another tool in monitoring recovery so I would take their word over the FDA. It will not be 100% in all cases but with immune testing,...
  24. Gemini
    This is what I thought myself. It is a shame that labs do no give a definitive number , once the results go over the low threshold they usually give. Your tTg could have been 4,000, for all we know. It could be coming down but you won't see that until it reaches 250 and lower. The lab which tested me did the same thing. They only went to 100 and my result...
  25. Gemini
    Those 2 GI docs are wrong when they say the DGP is unnecessary. That is the test that shows gluten ingestion from the diet. However, you would have had to have them done at diagnosis for comparison to newer results, to be more relevant. It could still be done because your daughter was serio-positive on the testing she did have done, which is not the case...
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