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Gemini

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Gemini

  1. Gemini
    As someone with 4 autoimmune diseases myself, I can agree that diet management can drastically reduce symptoms and improve blood work in many people. I do not have lupus, though. Was tested for the various presentations but no lupus, thank God. I managed this with a strict gluten-free diet, including animal protein because I weight train, and a small...
  2. Gemini
    I had the same experience with dairy, not wheat/gluten in Europe also. I cannot tolerate American milk but can eat dairy with abandon in Europe, specifically Britain and Ireland. I was mystified why this was and kept on digging and think I have found out why. Has nothing to do with the quality of milk in the States or how it is processed. Read up on A...
  3. Gemini
    I agree, notme. The only illness I have had in recent years was norovirus and I got it from close contact with my mother-in-law before she was symptomatic. Honestly, the virus was nothing compared to the week I hit the wall with undiagnosed Celiac. Nothing will ever be that bad. I am being careful now because I just don't want to be sick. I have never...
  4. Gemini
    You never fail to make me laugh, notme! As far as the age thing, hubby and I made the threshold last year as we both turned 60. They card you at the grocery stores here. Hubby has been going, for the most part, to the grocery store as my husband has an immune system they should study, it’s so good. In 38 years if work, he has missed about 4 days due t...
  5. Gemini
    Hello cyclinglady and notme! So good to hear from you both! After reading your posts, I remembered that the insect bite problem happens to me also. Mosquitos became an issue and the bite site would swell up and turn bright red and itch like I have never itched before. It was so annoying and I didn’t realize until I researched mast cell issues that a...
  6. Gemini
    To all of those who are having issues with hives......I have been a member of this forum for a long time and thought I would share my experience with the hive problem. Starting about 6 years ago, I started having a problem with hives. Now, I have Celiac, Hashi’s, Sjogren’s and Reynaud’s so I guess it was inevitable that I would get hives. It start...
  7. Gemini
    Why would anyone be supportive of someone who is openly telling people they are going to drop acid? That is not judgemental at all, it is common sense. I have a cousin who was a young adult in the 60’s, when a lot of people did acid. She did acid also. She disappeared for a week and no one could find her. Her car was found abandoned in a less than d...
  8. Gemini
    Having a topical reaction to wheat is an allergic reaction, not a Celiac reaction. If you have DH, the skin version of Celiac, you would have to ingest gluten to cause the skin eruption. But Kareng is correct.....these two items are so highly refined, they pose no threat to the vast majority of Celiacs. I am a sensitive Celiac, have been doing this...
  9. Gemini
    NNowak.......you have hit the nail on the head with your critique of the medical profession as it stands today. I understand there are many people today going to doctors but that is no excuse for doing business the way they do. It is now quantity over quality and if you don’t have something that is easy to find, you are not going to get the help you need. ...
  10. Gemini
    NNowak...... Geez.......and I thought I had a bad experience! ?. How horrible you had to endure such arrogance from the GI crowd! Your post was well written and very typical of how people with potential Celiac are treated. What is it about this diet that makes these doctors so resistant to obtaining a diagnosis? Why do so many think all the symptoms...
  11. Gemini
    You know, Amanda, your experience is the norm, unfortunately. Doctors are terrible at diagnosing things they cannot see clearly on a simple x-ray. I think liability has a lot to do with it. However, no one has ever been hurt by following a gluten free diet to clinch a diagnosis. Like many have said, it is not a terrible disease, it is not hard to learn...
  12. Gemini
    It’s usually the dentists that might pick up on a problem before the doctors do. Sjogren’s really affects the mouth but there are other symptoms too. I do not know if IBS is one of them because I never looked that far.......I have zero gut issues since going gluten free. It might be because of overlap of symptoms with many AI diseases. I think that doc...
  13. Gemini
    Ha! I knew it! Never believed the 1 in 10 results. I worked with a man from Ireland and he had 4 other siblings. He was a fraternal twin to one of them. The only ones who didn’t have Celiac were my friend and his father. Mom and the other 3, plus his fraternal twin all were diagnosed. This is why everyone in Ireland knows what Celiac Disease i...
  14. Gemini
    Hi Amanda, Doctors just love to be vague, don’t they? Scalloping may happen with other GI issues but I have never heard of any others except Celiac......and that doesn’t mean much because I am not a GI doctor. However, I bet I have helped more Celiacs get diagnosed than they have. ? The reason it appears in the bulb and not further down is bec...
  15. Gemini
    Scalloped mucosa is Celiac Disease, along with your high numbers from blood work. Having a positive tTg and Endomysial means there is a 98% chance of it being Celiac. Scalloping happens when there is enough damage to the small intestine that it changes surface tension and results in scalloping of the mucosa. But there is still the chance they could...
  16. Gemini
    If you have already had a course of allergy shots, then sublingual therapy may not be as effective. I have done both and the paperwork that came with the sublingual therapy warned about this. Must be true as I had great success with the shots when I was younger but the sublingual.......not so much. I am thinking of discontinuing it because the Benadryl...
  17. Gemini
    With a positive EMA and Type 1 diabetes, I would say you are a strong candidate for Celiac Disease. The normal range for the tTg IgA test was not listed so I don’t know if 12 is positive or not. I think the latest numbers show that 10-15% of Type 1’s are Celiac and they tend to be silent, meaning no noticeable symptoms. Type 1 and Celiac have a genetic lin...
  18. Gemini
    Hi Caryn, I just wanted to give you another opinion on diagnosis without biopsy. It can be possible but a few things to point out..... I failed all the tests in the panel by very high numbers and presented with classic Celiac. I was also very sick at the time and just could not go through with the biopsy. According to most medical information...
  19. Gemini
    You never know........we could be! Some of us Celiac's on here have identical health profiles and experiences so we could actually be Celiac twins. ?
  20. Gemini
    Yes, I had elevated blood protein at diagnosis of Celiac Disease. From all the research I did at the time (2008), Celiac Disease was listed as one of the many causes. I went YEARS before I got a diagnosis of Celiac so having an elevated protein level was not surprising to me. I was shuffled off to a hematologist, who was one of a few of really good...
  21. Gemini
    Celiac's, even very sensitive ones, are not affected by what a chicken eats. Even if the chicken is fed a grain diet, it does not translate to contaminated eggs. If that were the case then none of us would be able to eat chicken, eggs or red meat, for that matter. I know there are some who take issue with that but it is true. We do not have to be concerned...
  22. Gemini
    When it comes to food related health issues, families can be the worst. You are not alone and many of us have had clashes with family over Celiac and all that goes with eating safely. I was the first one diagnosed in my large family and everyone pretty much ignored my advice on getting tested. It has been 14 years for me and things are only marginally...
  23. Gemini
    Good point, Raven! I did not start on this med to combat any Celiac related issues because my gut is still doing just fine, 14 years post gluten-free. However, when you have multiple AI issues, you can have periods where you have flares or other symptoms that I don't always think are related to Celiac. I think some posters on here assume that these will...
  24. Gemini
    I mentioned this treatment on another thread a couple of weeks ago and the response? Crickets! ? I think there are many people who shy away from anything that the mainstream AMA crowd doesn't endorse because it's hard to know if these treatments are legit or not. That is a legitimate concern. However, LDN is an FDA approved drug, for what that is...
  25. Gemini
    Hey Squirmy, I don't have much time to write in detail but take a look at this: https://www.amymyersmd.com/2017/05/low-dose-naltrexone/ It is an off label treatment of an FDA approved drug, but many people have had good results. I started using it about 2 months ago because the hives thing was starting to drive me crazy. My thyroid was also...
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