RBnorth66

9 minutes ago, Guest Donalda said:

I was diagnosed in my 60's with celiac disease but likely had it for most of my life-thus much gut damage. I have been following an AIP diet without actually knowing it. Over the last few years I've gradually eliminated all the foods on your list as they continued to cause pain and other symptoms. The last 5 years have been so much better although I often wonder if I am getting all the nutrients my body needs. I do take supplements for this such as a complete multi vitamin with minerals, glucosamine, omega-3, and magnesium.

 

I was 70 when I was diagnosed and probably also had Celiac for years.  I did not have the usual symptoms.  It's very difficult for me to figure out which food is causing the problem since my symptoms don't appear for anywhere from a few hours to 24 hours.  

I am not taking any supplements right now and since I am not eating any dairy I do have concerns about whether I am getting proper nutrients.   

I find that this disease is a very difficult one to manage and I am thankful for the comments here.  My doctor tries his best, but in reality, the medical community knows very little about this disease.  

It's very weird to have some of my rash healing while still breaking out with new ones.  

I have DH and Celiac.  The DH is quite severe.  I am very sensitive and it seems like I have the rash everywhere.   I have been gluten-free since March of 2019.  I have taken Dapsone since then and it does help.  My rash did not begin to fade until I went on the AIP diet.  It is VERY SLOWLY fading.  

I have been on an AIP diet since April 19, 2021.  I have re-introduced coffee without an issue.   The diet is very difficult to maintain and I sometimes find it difficult to think of something that sounds good to eat.  

I recently tried introducing almonds/almond flour and now have an outbreak of rash and itching.  Almonds are off the list.  Back to square 1.  

A positive is that I can eat eggs.