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Ottonegirl

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  1. Thanks so much for the responses! I really appreciate it. Lyme may be one of the few things my dd hasn't been tested for. We do know, though, that her red blood cells do not destruct & live the expected time frame. I searched the thread you were talking about (but there were 13,000 replies) & never found the person with lyme - could have missed...
  2. Hi everyone, I am pretty certain that I am going to order the Enterolab genetic celiac panel for my dd. But, I'd love feedback on whether you think it would be a waste of time or not. Here's her story: 4 years ago she presented with anemia (at age 11) - her lowest HgB was 8.2. She didn't present with iron deficiency for 3 months so she was tested...
  3. Thanks! That's so helpful - I'm going to take time this afternoon to read through everything! Karen
  4. Thanks everyone - I actually am excited! I have hope that this will change my life! All those years doing the yeast connection diet & feeling better & then going back to eating normal & then feeling worse were so frustrating. All along I'd attributed all my symptoms to yeast without realizing that I was also responding to the gluten-free part...
  5. I thought I'd update. Over the weekend my legs swole up like balloons & that was the final blow for me. So, I saw my Dr yesterday to talk about the issues I've been having & she said that she wants me to go gluten-free immediately. Her opinion was that with confirmed wheat allergies (blood tests & skin tests) in addition to all my symptoms that...
  6. Thanks everyone - I'm beginning to get a handle on this. I'm thinking going Entero lab sounds like the best for my family. My daughter has been biopsied & got a negative result - she'd only been back on gluten for 5 weeks when she had the biopsy. I know her GI doc won't run the blood tests & therefore, her pediatrician won't either. I've already...
  7. Well, I know I'm allergic to milk too... I always stay away from it (almost always ) & eat goat's milk yogurt. I'm OK with the goat's milk yogurt so I don't think it's casein - just cow's milk. This has been an ongoing problem - years of it. I'm thinking that I'll test my daughter & probably just go gluten-free & keep my goat's...
  8. I'm new here - just joined yesterday & posted about my daughter. Now, I have questions about me. I'm wondering if I could have celiac - the more I think about it the more it seems like it really could be. So... here's my history (could be long sorry!) I was extremely sickly as a child - allergic to everything. At 33 had 1/2 thyroid removed...
  9. I'm so new to all this & have read tons of posts & am still not sure what I'm looking at here. Entereloab tests for the gluten gene - right? Do they test for antibodies? The blood tests look for anti-bodies. But, if you haven't been back on gluten long enough then you might not get a + because you won't have anti-bodies. Is this correct? ...
  10. It is now, but we lived with well water when the bulk of her permanent teeth came in. So, it seems to be something with her. thanks
  11. She's been back on gluten for a year now... her allergist pulled her off rice & corn because he thought she was allergic to them (from a patch test) so she's only been consuming wheat. Almost immediately she started having headaches, more gas & hives everytime she takes a shower. Would this be enough time to get postivie results from Enterolab?...
  12. My 12 yo daughter has struggled with horrible anemia for the past 1 1/2 years. When it first started the hematologist swore that it wasn't iron deficiency. She was so skinny, gassy, tired, etc. that I investigated things & pulled her off gluten. Immediately, the gassiness subsided, but her anemia didn't improve. After 2 months, the hematologist realized...
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