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Checks

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Everything posted by Checks

  1. Checks
    You poor thing Ceslater yes it's so frustrating. I had also been told to continue having gluten so was feeling very unwell. My poor family, I was very hard to live with! And yes Cristiana you're dead right about IT issues and hospitals. I think I fell down a crack as our hospital was transferring itself on to the (spectacularly mis-named) EPIC system.
  2. Checks
    Ceslater am so sorry to hear about your situation and that of your daughter's. Yes I had blood done in Feb then biopsy May and didn't get results til September, ended up chasing through PALs patient liaison. My daughter is now diagnosed too, but purely on ttg blood test as her levels were really high .. keep pushing your hospital, it felt soul destroying...
  3. Checks
    Thanks Onegiantcrunchie! Definitely looking forward to taking the next step and getting myself well again. Great to have found such a friendly and supportive group ☺️
  4. Checks
    Thanks Cristiana 😊 Yes definitely a huge relief, and just in the nick of time! I started back today but the first three days are training days, pupils go back next week. Most of the schools seem to be doing that locally here too although my children's school is a bit different and they started back today. Have just signed up for Coeliac Society, as you sa...
  5. Checks
    Hi everyone, thought I would let you know that I had a call from my Gasterentorologist in person today, she was really lovely - and very apologetic, as she confirmed that I do have Coeliac they found blunting of the villi. She did say that she was surprised that she hadn't had my results sooner, and that she felt really bad I'd had to persevere with the gluten...
  6. Checks
    Thanks Cristiana! Yes definitely relieved, and there's a part of me that's dying to know what my results actually are, although the blood tests and horrible reactions I have to gluten are convincing enough for me personally. I agree with you that it's likely due to Covid, with staff on other duties or isolating... there's definitely a staffing issue as PALs...
  7. Checks
    Thanks Onegiantcrunchie! The bone broth sounds really good, have ordered the beef one to try. Looking forward to saying goodbye to the various fun symptoms I've been having 🙂 Hope all well with you too!
  8. Checks
    Just thought I'd post an update (albeit a bit cryptic!) on this. So, after some to-ing and fro-ing between myself and PALs, I received an email today from the latter, telling me the Gasterentorologist has just received my results, that I can stop eating gluten and that they will be in touch with me as soon as possible to organise a clinic review.. Not quite...
  9. Checks
    Thanks Cristiana and Onegiantcrunchie! Will let you know how it goes.
  10. Checks
    I was surprised too when they said it (well, as surprised as you can be when coming around from the sedative!) I checked with the Coeliac Society and they did endorse the advice. Perhaps because of the scope limitations in hitting on patches of flattened villi which just so happen to have occurred in the area it can reach to? I really wish I had found the...
  11. Checks
    It's been a horrible experience, especially with the lack of information and support from the hospital/ GP, and my family are so frustrated with having to watch me do this. Now with school looming over me am starting to feel a bit desperate, but still hoping I can hear before September.
  12. Checks
    Thanks for explaining, Onegiantcrunchie. Agree definitely not helpful! I checked with the GP a few days ago and am waiting for phone consultation, but have also contacted PALS to chase up just in case it's some kind of clerical error somewhere. I keep thinking I'm going to have to stop the gluten, or reduce it if this carries on much longer. Like you, i have...
  13. Checks
    Hi, thanks for getting in touch and no worries, hope you are doing ok now. Did you manage ok with keeping the gluten going til you found out?
  14. Checks
    Thanks Cristiana, yes that's a good idea, will try going through PALS. Definitely worth paying that for peace of mind!
  15. Checks
    Hi Cristiana, Thanks for the swift reply, goodness 12 months overdue is staggering, hope you are feeling well and doing ok. Definitely highlights the plight of the NHS... Fingers crossed you get your follow up soon!
  16. Checks
    Thanks for the quick reply Trents. I stupidly dropped the gluten for a while after the serology, not knowing any different as was feeling pretty rough, but did introduce it again 4 weeks prior to endoscopy, the advice from my GI was one or two slices of bread for a few weeks before... They told me when I was coming round from the sedative to keep the...
  17. Checks
    Hi, Wondering if anyone has had a similar experience to this, biopsy for Coeliac took place two months ago and still waiting for the results? I'm in the UK. I've tried chasing up via GP, and secretary for the Gasterentorologist, with no success. Theysaid the results should be with me by four weeks after biopsy, then when I chased it was told it might...
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