MsssSqueaks
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Struggling to get a diagnosis
MsssSqueaks replied to MsssSqueaks's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Be cautious with B6 as it is the only B vitamin that can cause toxicity, easily for some people, and even at moderate doses. -
Struggling to get a diagnosis
MsssSqueaks replied to MsssSqueaks's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I really appreciate your help. So it seems this is an all-or-nothing diet situation for me then. Do you know if there's any connection with the ANA test and celiec? I had a "weak positive" result of 1:80 speckled that doctors so far don't see as significant. It could be another clue... -
Struggling to get a diagnosis
MsssSqueaks replied to MsssSqueaks's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I'm having more bloodwork done soon, but last CBC/CMP in May was fine. I hope my ferritin hasn't dropped but was finally corrected with an iron infusion in April. Endoscopy #1 showed "no h. pylori-like organisms" but I am pushing for more investigations of that and SIBO just in case. Based on symptoms I don't think either of these are that likely. ... -
Struggling to get a diagnosis
MsssSqueaks replied to MsssSqueaks's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Not on NSAIDS and try to avoid all painkillers right now. I did have an 8-month period where I took them a few times a week, probably more than I should have. I use QVAR for asthma, but no other medications. I don't have heartburn or take anything for GI issues, at most I will have Pepto if my stomach is upset. Since I have PA I require B12 injections... -
Struggling to get a diagnosis
MsssSqueaks replied to MsssSqueaks's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I agree it's super weird and I am beyond frustrated. I've had the blood tests run twice already (just not EMA yet, asking for that and genetic). My first GI doctor was terrible so I specifically sought out my current doctor who is supposed to be a celiac expert. During the endoscopy he saw "gastric mucosal atrophy and duodenal mucosal atrophy". He already... -
Struggling to get a diagnosis
MsssSqueaks replied to MsssSqueaks's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Thank you, yes, I was eating gluten before all tests and have yet to change my diet. I ate quite a lot of gluten because I tried to eat everything I love that I might soon have to cut out. Is there any special significance to the Deamidated Gliadin Peptide IgA test? I tried googling to see if those antibodies are associated with anything other than Celiac... -
Hello and thanks in advance for any help! I'm very sad today. So my Celiac blood tests were inconclusive. I recently had an endoscopy/colonoscopy to get an official diagnosis, and the doctor visually saw atrophy to my stomach and duodenum. Biopsies came back with mild stomach inflamation BUT normal duodenum and negative for Celiac! My doctor even had...