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Lindsay GFMom

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Lindsay GFMom

  1. Lindsay GFMom
    This is very helpful, thank you. But what would you do if your kiddo showed no symptoms when he was on dairy? As I understand it, gluten can do long term damage but dairy can't....i.e. if the dairy is a problem, you'll want to go back off of it because it's causing you trouble, not because you're doing huge bodily harm. You're right that it is casein...
  2. Lindsay GFMom
    Per Enterolab, my son is gluten and dairy intolerant and has the Celiac gene. He has been gluten and dairy free for six months. He has never really had any symptoms of gluten or dairy intolerance. I've read that dairy intolerance is often secondary to gluten intolerance and that after you've been off of both for several months (or a year) that it's...
  3. Lindsay GFMom
    My 4.5yo son was dxed gluten/dairy intolerant & has the gluten AND Celiac gene by Enterolab testing. We just got blood test results from Prometheus lab: AGA IgG 0.7 U/ml (normal <10.0) AGA IgA 1.3 U/ml (norm <5.0) TTG IgA 0.3 U/ml (norm <4.0) EMA IgA negative TOTAL IgA 171 mg/dl (norm for ages 3-13: 41-395, norm for...
  4. Lindsay GFMom
    Our 4yo had these results from Enterolab: Fecal Antigliadin IgA 29 (Normal Range <10 Units) Fecal Antitissue Transglutaminase IgA 21 Units (Normal Range <10 Units) Quantitative Microscopic Fecal Fat Score <300 Units (Normal Range <300 Units) Fecal anti-casein (cow
  5. Lindsay GFMom
    It took 2 weeks to get our results. We sent them on a Monday and we had the results first thing in the a.m. exactly 2 weeks later on Monday. We did the full test tho--gluten, dairy, and gene. Good luck!
  6. Lindsay GFMom
    I'm in the middle of reading "Gut and Psychology Syndrome" by a doctor from the UK. Her son had autism and she started on a quest to heal him. In the process, she noticed the connection between gut issues and a lot of prevalent problems with kids--ADD, ADHD, autism spectrum issues, etc... She advocates for a much more rigorous diet for these kids than...
  7. Lindsay GFMom
    Ironically, my son was born in South Korea. I've heard that it's unusual for people of Asian descent to have the Celiac gene. Don't know if that's true. I wish I knew more. I guess it seems like statistics on Asians and Celiac gene may be iffy...if you rarely eat gluten, your chance of developing full-blown Celiac would be less, so even if you have the...
  8. Lindsay GFMom
    Thank you SO MUCH to everyone who responded to my questions. It's very helpful to know that others have also had asymptomatic kids who turned out to test blood +. Next week he goes in for the blood test. The interesting thing is that it's been very obvious that we have a gluten problem based on his behavior when we went back to a gluten diet in prep for...
  9. Lindsay GFMom
    I'm very interested to know whether we're wasting our time and unnecessarily traumatizing our son with a blood test. Here's our story. I'd love to have feedback... Our 4.5yo son was just dxed with both gluten & dairy intolerance per Enterolab. Also with both Celiac and gluten intolerant genes. But he currently has no symptoms other than dropping...
  10. Lindsay GFMom
    Our 4.5yo son was dxed with both gluten & dairy intolerance per Enterolab. Also with both Celiac and gluten intolerant genes. But he currently has no symptoms other than dropping off in growth %. (He has no gut issues that we're aware of other than very occasional mention of tummy ache.) Yesterday we met with both our pediatrician and our naturopath...
  11. Lindsay GFMom
    I don't understand the number line either, but it looks like the subtypes are what count. I'm mostly going by the interpretation which they included on the same paper. Here's what it said. I bolded the part about Celiac: Serologic equivalent: HLA-DQ 3,1 (Subtype 8,6) Interpretation Of HLA-DQ Testing: HLA gene analysis reveals that you have one...
  12. Lindsay GFMom
    Tupperware type containers. I did run them through the dishwasher. Is that adequate?
  13. Lindsay GFMom
    I appreciate (so much!) the feedback I've gotten on my earlier post. I made my husband just sit down and read it all. We have not decided whether or not to do a Celiac blood test for our 4.5yo. (You'll recall that he has gluten & dairy intolerance as well as a gluten sensitive gene and the Celiac gene, per the Enterolab test.) I think I want to call...
  14. Lindsay GFMom
    Just to clarify, yes, he does have Celiac genes, although it doesn't specify whether he has #2 or #8.
  15. Lindsay GFMom
    Really? The Celiac gene too? If you could tell me where the post is, I'd love to read it. Thanks everyone who has posted so far!
  16. Lindsay GFMom
    You have cleared up a few things. I hope you can clear this up... He is showing "active gluten sensitivity" per the Enterolab test. He also has the Celiac gene. He has NOT ever had any blood tests done. He also doesn't have any "gut symptoms" of gluten intolerance. We had him tested because from age 6 months to age 4.5 he's gone from 75-90% in...
  17. Lindsay GFMom
    I'm emptying my kitchen of gluten. If I wash the flour storage containers in hot, soapy water, can I use them to hold gluten-free flour, or is the risk of cross-contamination too high? Someone told me that gluten molecules are very small and very sticky and you really shouldn't use anything that has had flour in it. Do you agree?
  18. Lindsay GFMom
    My 4.5 yo son has the following results from Enterolab: Gluten Sensitivity Stool and Gene Panel Complete Fecal Antigliadin IgA 29 (Normal Range <10 Units) Fecal Antitissue Transglutaminase IgA 21 Units (Normal Range <10 Units) Quantitative Microscopic Fecal Fat Score <300 Units (Normal Range <300 Units) Fecal anti...
  19. Lindsay GFMom
    We just received tests results from Enterolab for my 4.5yo son. He was found to be both gluten & dairy intolerant. (For the gluten he had: High fecal Antigliadin IgA & autoimmune reaction to human enzyme tissue transglutaminase) He also carries two gluten marker genes--one for gluten intolerance and one for Celiac disease. Does this mean that...
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