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rickops

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  • Jen1104

    Jen1104

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  1. Hi, I have an update and a question: As I posted before, my daughter has a rather severe peripheral motor neuropathy, and though we've been to the Mayo Clinic, we have no explanation for the cause, or a plan for a treatment. Basically, Mayo said they thought that she'd recover the use of her hands and feet. That this was not progressive. We have an app...
  2. Thanks to all of you who took the time to offer anecdotes and advice. You have been a tremendous encouragement to my wife and daughter and I. Nora, I visited the site you listed, and printed off a number of the articles to show to our doctor. I'm not convinced that we need to go back to the Mayo Clinic at this time. I think we can do the tests you folks...
  3. Hi, this is my first post on this forum, but I've been reading the posts all day. Hopefully someone can help... My daughter just turned 18 last month. This summer she developed a motor neuropathy in both feet (they were both unable to be raised), and her right hand (extreme weakness and uncoordination, and atrophy of the muscle between thumb and index finger...
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