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PINKYPAL

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  1. Hi Dave, Discuss with your doctor that you feel the wait for the biopsy is unacceptable, but I am the odd one out on this issue. The gold standard for diagnosis is biopsy. Period. You are so close to having one done it would be a shame to remove the gluten at this point, when it is very possible your doctor could put you on a cancellation list in order...
  2. Hi Dave, I was initially diagnosed with Lymphocytic Colitis and then a biopsy confirmed that I also have Celiac. When I was first diagnosed I wanted to curl up into a ball, stop eating and starve myself to death. I thought this would be far more humane than having to adjust to a gluten free life. It seemed impossible to me that in the year 2007, when...
  3. Hi Lacy, After sending you the long note, I looked at the header and chuckled because I didn't even get around to answering your question regarding the difference between being a celiac and being gluten intolerant. It is my understanding that if you are gluten intolerant, ingesting gluten will make you ill, but will not destroy the villi in the small...
  4. Hi Lacy, It is never advisable to remove gluten from your diet before being propoerly diagnosed with celiac because removing the gluten may then produce a negative result, and you wouldn't know for sure if you are indeed a celiac. If I am understanding you correctly, you are not in the position to have the testing done so have decided to remove the gluten...
  5. PINKYPAL

    ARCHIVED Refractory Sprue

    Thanks so much for the replies. I went back to read the article on RS written by Michelle Melin-Rogovin on this website and she mentions that when ruling out RS a colonscopy should be done to see if Lymphocytic Colitis is present. This has me a little nervous because I was first diagnosed with LC by colonoscopy and then diagnosed with Celiac by gastroscopy...
  6. PINKYPAL

    ARCHIVED Refractory Sprue

    Hello, I am seeking information regarding refractory sprue. I was diagnosed with celiac in January of 2007, and my follow-up biopsy this January was normal due to strict adherance to the gluten free diet. Since the end of April I have severe diarrhea, and yet have made no changes whatsoever to my diet. I am wondering if it is possible to have...
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