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Thanks for all the info... Any news yet?? The waiting must be so hard.... here's hoping you get good news and good news quicky!!! J

Thank you for clearing that up!!! Jane

Rez, Thank you for your amazing post... I have been so blessed here with an amazing amount of info and support. The MD's didn't do the endoscopy b/c they were looking for Celiac...they thought it was reflux, but when the path came back-it pointed toward the blunting of the villi and the deepening crypts in the duodenum. They are puzzled at why no...

I'm calling him today...just ordered his book.... I need a second opinion..and the MD that I am using is from Mt.Sinai...It will be interesting to hear what he has to say. Thank you very much for this information... I am so stressed right now...I just want to find out what it is, and start to deal with it..you know? This in-between is killing...

Laura, He said that the pathologist siad there had to be 3 things present: 1. the blunting of the villi 2. the deepening of the crypty 3. the lymphocytes present... The lymphocytes were not present so he would not say that it was Celiac... This disturbed me...how could one thing ,missing make them so unsure??? I know he has Celiac, or Gluten...

So did she test positive to the blood test? Have you noticed a change in her since the diet change?

The "no lymphocyte" thing is puzzling to the MD's as well... I asked if he could have missed it and he said no.... THat there were no lymphocytes... Could he be gluten intolerant, but not Celiac??? Please forgive me if that is a stupid question...this is truly not my area ( I'm in maternal health/ob/gyn) WHat's the difference? If so, what would...

Carla, Thank you for that information... I'm a nurse practitioner, and I needed to read something like that... The pathologist said the villi were blunting...so that would make sense. I guess what I dont' understand is can you have celiac disease without having the lymphocytes present, and will they eventually be present. OR will he just present...

Wow!!! Thank you guys so much for responding so quickly. I am overwhellemed, scared, and just don't know where to turn. Did your husband ever feel this way as a child? So he presents with just nausea? But after the diet, he felt better? Charlie doesn't really have many symptoms except the vomiting, and as soon as he does, he's fine and...

Hi, My son Charlie had an endoscopy last week. The MD called yesterday and wants to do a blood test for Celiac disease. His biopsy came back with 2 of the 3 markers for thise disease. He had crypts, something in the villi, but did not have lymphocytes... his duodenum was the site that was affected...nothing in the stomach or esophagus. The pathologist...