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smw

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  1. Hi I had the entire Celiac workup 2 years ago. I had pitting edema on my legs, arms, hands, and sometimes my face. I could push and leave a dent I could pour water in and would stay until I rubbed it out. I was anemic and had been for quite some time. I had suggestive bloodwork, but not what they called definitely postivie. I had thyroid issues, insulin...
  2. Thanks for the info. They have checked for protien in my urine and run a lot of labs on kidney, heart, and liver. This has been going on for quite some time and they don't know what it is. That is when I asked to be tested for Celiac. My family doc did the basic screening and I went ahead and went to a GI doctor on my own. I also see an endocrinologist...
  3. I live in Atlanta Georgia and there is a doctor in Atlanta that speaks at different Celiac events and seems to be well respected for Celiac. She doesn't take insurance so it is expensive, but I think I will go see her and see what she says about all of my results and see if she still recommends a colonoscopy even if I do the celiac diet. Thanks for all...
  4. No my doctor doesn't want to do the gene test on me since she is "100% sure" I don't have it. Now she wants to do a colonoscopy and another study where I drink stuff and they xray me for 4 hours and watch it come through me. I don't think a colonoscopy is needed.
  5. My son and I are being tested for celiac. He has the gene...don't know if I do. My biopsy came back negative. We have a family history. I have many of the GI symptoms and other symptoms. I also am anemic, low B-12 and have bad pitting edema on my legs, and several autoimune problems associated with celiac. I was sure I had it. The bloodwork and biopsy...
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