momof2sn

Hello Everyone, I have a five year old silly who was diagnosed at 21 months old. She has been gluten-free since the diagnosis. My concern is she has appeared to have some difficulty remebering things. Her teacher said some days she is on it gets everything and then other days she appears to have no clue. I noticed memory issues before she started school...

Thanks for that info. I really appreciate it. momof2sn

Hi All, My dd is 4 and we are having our first case conference in a couple of weeks to get prepared for kinder next year. I was wondering what particular things I should ask for. Do most of you just have a 504 for you child?? Has anyone had luck with asking for a gluten-free lunch? Isn't the school legally responsible for providing a gluten-free lunce...

The celiac genetic testing was done. His pulmonoligist and allergist ordered nearly every food and enviromental blood test as well as immune definicy. I think the GI also does a nutrition test. They took 9 tubes out of the poor guy....they couldn't do it while he was under either. The GI doc mentioned she may have to check his panel every 6 months for awhile...

Hello All, Everyone here has always been such a great help so I have some more questions. My daughter is the only celiac in the family. My hubby carries the HLA-DQ8 gene, but has a negative panel test. My son who is NOT celiac had an endoscopy for EE. The esophagus was better, but the intestine had red bumps all over. She said it could be possible celiac...

What dose of fish oil do you use?? Mom son would benefit from taking it. He is nearly 7. Shealey

OH MY GOSH!!!! THANK YOU!! THANK YOU!!!! THANK YOU!!!! This will give me a start. I trust doc's but yet I don't. I wanted to go into our neuro visit with some info and was wondering if celiac had anything to do with what is going on. I SOOOO appreciate this. Did I say "THANK YOU" Shealey

When my daughter was first diagnosed I wanted to try digestive enzymes as well and our doc said no, because it would make the intestines lazy, basically they would become dependant on them and not do the job on their own...the intestines that is. He said just to follow the gluten free diet and the body would heal on its own. Are the stomach cramps due...

That scares me a little because I have one already with autism. My son has PDD. But she is very different. We have talked to the doctor and she wants us to see a neurologist, just in case. She had the cord wrapped around her neck and was blue when she came out. She also has a liver disease and then celiac. It could be nothing, but my kids are anything but...

Yeah, She is caught up...just has some odd jerky movements with her arms when running, kicking a ball etc. Just didn't know if it was related to celiac. She walked at 14 months and rolled over at 11 months. We have always been told she has tight muscles and was in physical therapy for awhile. Shealey

I was just wandering if anyone has a child with Celiac that has gross motor delays?? My daughter has had them since birth, she is now 3. She was late at rolling over and walking. She is now having some jerky arm movements while trying to run etc. Anyone experience anything like this?? Shealey

Hi I just wanted to say I have a book called "The Kid-Friendly ADHD & Autism Cookbook" by: Pamela J. Compart, M.D. & Dana Laake, I got mine on Amazon. I know your child is not autistic or have ADHD, but it talks about what you are asking. I have been researching some of this myself. The books tells how phenols are beneficial to the system; it is...

Yeah, I have already read How to do it, I was just wanting to know from other parents if it has been worth it for them??? Or should I not waste my time adding up all the cost??

Hi All, Well, I put this topic here because I am sure there are alot of parents that have included their celiac kids on their taxes. This will be my first year with having celiac expenses, and I was wondering is it really worth it to deduct the cost of gluten-free food?? What about a letter from the doctor stating that your child or children are on a gluten...