chiefsilverback

1 minute ago, Scott Adams said:

It's doubtful that his original test results were incorrect, and younger people recover more quickly, so once gluten has been eliminated his villi should heal, and the tTg-IgA antibodies should decrease, if his diet has been 100% gluten-free. It sounds like you're doing a good job with his diet, so keep up the good work.

Hi Scott - he's been gluten free since July 2023, but his TTG IgA increased from 12 to 48 over the course of 5 months, and then dropped from 48 to 8 in the space of 3 weeks. It makes me wonder if that 48 result was some sort of error?

Thanks for the replies. His doc ordered repeat labs last week and his TTG IgA came back at 8.3 so a significant decrease from 48.4 a month ago. I don't know how quickly TTG IgA level change, but it could be that there was an error with the test that showed elevated levels?

My son was diagnosed with Celiac last year after developing quite severe iron deficiency anaemia, Haemoglobin was 5.9g/dl. He got blood transfusions and then was tested (TTG IgA 12u/ml) and finally scoped to confirm Celiac.

He had follow up labs a couple of weeks ago prior to his 6 month check up with his Gastroenterologist and his TTG IgA has increase to 48.4u/ml and his Haemoglobin has dropped to 8.6g/dL. We have been pretty strict with a gluten-free diet for him since he was diagnosed, and he is very good about checking anything before he eats it, but his Dr thinks he could still be getting some gluten, possibly through cross-contamination as we haven't gone fully gluten-free in the house.

He hasn't complained about feeling like he's eaten gluten for months, so as a test he ate a single Joe's O (Trader Joe's 'Cheerio' containing wheat) and he was up for half the night and didn't feel well enough to go to school the next day. I don't know how gluten exposure is/can be measured, but it's hard to imagine he's consuming enough gluten to cause the elevated TTG IgA and iron deficiency anaemia, but without triggering any stomach pain.

Has anyone else experienced similar?