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tsomo

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  1. No, I haven't had a biopsy but Im considering it. Its DH though, there can be no doubt about that. I get it after I ingest gluten, intensely itching, burning rash that ....anyways, you have to have it to know it. I dont just get DH though, I have the whole gastro thing too and I can also tell by my stool when Ive ingested gluten. However, at this time...
  2. My understanding is that if something has under 200ppm it can be labeled as gluten free. At least this is the law in Canada and I believe its true for the U.S. also. I can't begin to describe how retarded that logic is, however, there have been numerous times I have gotten contamination from a product claiming to be gluten free. Only to discover after...
  3. I didn't think it would waft through the air either, and I dont kiss my dogs or let them lick me at all. I dont go near them after they eat either. So I dont think its the dog food. I think I am ingesting the gluten in my diet. (my DH has gotten worse day by day and I need more than ever to get to the bottom of this because of sleepless nights). I...
  4. Gluten contamination gives me anxiety and bloating. I think youre being contaminated but you would have to review everything youve eaten to find the culprit. Do you keep a food journal? Tsomo
  5. Queenofhearts - I dont eat manufactured tortillas, I make them myself from Maseca (ground corn) and water. Carla - good question, I dont put anything on my lips. I dont use lotions. And I use Garnier Fructose shampoo and conditioner which, last time I checked about 1 year ago, was gluten free. Richard - yes the dry dog food has gluten but my husband...
  6. This sounds so familiar. Gina - good advise. Its been hard for me to accept that just because people are your family doesnt mean that they are going to care in a meaningful way. Unfortunately, my relationship with my parents was corrupted all those years I was sick and no one knew why. They labeled me as "lazy" and told me to get out of their house...
  7. I need help. Due to several contaminations this summer I am on a strict diet, but I am still getting gluten! I developed a bad dermatitis herpetiformis rash two days ago and I can't see where the gluten is coming from? This is the totality of what I eat - Pinto beans, ground beef, dried chillies and corn tortillas made from Maseca (ground corn), Tillamook...
  8. Thank you ALL for your replies. I avoided reading the responses for awhile because I was so embarassed by the state of my condition its painful to acknowledge it. I think you are all right in that I am still being glutenated. Youre right, I shouldnt be bloated all the time. I thought I was being really careful. I dont eat out, but clearly I am...
  9. Do you have DH? If so, as far as I know it is caused soley by gluten. Therefore, you must have had gluten. Unless its not DH but another rash and then i dont know what affects it. I also seem to get DH when I eat candy and I think there are remote glutens in candy. The reason why is because if you look at the list of ingredients in a lot of candies...
  10. As far as I know, dairy and sugar doent cause DH. If I get a outbreak of DH Im assuming I've ingested gluten. I dont get any intestinal discomfort from the M&I. I wonder if people with DH are more sensitive than Celiacs without DH. Because, Ive often thought that if I didnt have DH, I wouldnt know I was ingesting gluten (except when I have a significant...
  11. I love your picture penguin, so cute I have celiac disease and DH, and Ive gotten the rash from the candies. The thing is, I have a very strict diet. I eat pretty much the same foods everyday only introducing one new food, like the candy, at a time. So I can't be in doubt that it was the candy (and not the homemade corn tortillas, beans, cheddar, beef...
  12. I've tried peanut butter cups, hersheys chocolate, mike and ikes, junior mints...all say they are gluten free but Ive been contaminated by all of them. Does anyone know of a candy that IS totally gluten free? Its so hard to live with zero candy..please help. Tsomo Also been contaminated by chewing gum that says its gluten free.
  13. I want to go to a retreat with other Celiacs where I can talk about this disease for a week. I feel like no one knows what I go through. My husband is very accomodating and patient but Im worried because of the strain it puts on our relationship. I almost always have symptoms and so our sex life practically went out the window years ago. Celiac Disease...
  14. Im very sad to say that I got contamination from Hormel Black label bacon. I was eating it every weekend and started getting sick. I didnt know where the contamination came from so I cut out everything I was eating at the time. Just when I got over the contamination (3-4 weeks for me), I ate some bacon again, thinking it wasn't the bacon and bam! got...
  15. I get a message that the administrator has not enabled me access permission to post my picture? How do I solve this?
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