SuffolkLady

You're quite right, I'm getting myself totally muddled. Brain fog is a pain the wotsit!! The only celiac related blood test they did was the anti tissue transglutiminase, the result was 0.4 but they didn't do the iga defiency test which would account for a false negative.

Sorry, I should have written that they didn't do any antibodies tests. I actually used that post from someone else's topic and triple checked my online blood results over the weekend. Thank you so much for your help, you've been fab.

Normal ttg range is 0-6. They didn't do the iga antibodies test. GP has started me on B12 injections and highest available doses of D3 and folate. I've learnt loads about celiac over the last week but I'm scared the biopsy will be negative. I know celiac isn't a fun thing to live with but it is manageable. Better that than something scarier. So...

Newbie here looking for words of wisdom or kindness. Sorry if this is a little long winded but I just feel the need to vent. I'm going a little crazy as the hospital told me that I would get my biopsy results within a week and gastroenterology receptionist has just told me it will be weeks more until I hear anything. I have Ehlers Danlos (hypermobility...