Matt8949

24 minutes ago, trents said:

Matt, ditto to what RMJ said about continuing to consume gluten until the endoscopy/biopsy is done. Many have made the mistake of not knowing to do that and there was enough healing of the villous lining of the small bowel to provide results that were not clear. They you are in the dilemma of conflicting test results. Having said that, there are some cases where the individual's health is so fragile that continuing to consume gluten in order to ensure a valid biopsy result is contraindicated. 

Thank you both, that makes sense. I will treat myself over the week and will limit it so that I can give myself the best chance of a conclusive result but not overboard. 

10 minutes ago, RMJ said:

For an accurate diagnosis you should continue to eat gluten until you have the endoscopy. How long have you been gluten free?

I have avoided gluten since last Monday so a week and a half, another 10 days until my endoscopy so it would be around three weeks if I continue to avoid. 

41 minutes ago, Sabrine said:

I am hoping for exactly the same as you Matt. Does the endoscopy give any indication of how bad damage is that has been done? I wish I hadn’t ignored the constipation for the two years but I really thought it was caused by other medication I was on. From what I am reading, I am hoping that damage done can be repaired or am I being too optimistic?

 

 

From what I have read the endoscopy will give the clinicians a good level of understanding around the damage if there is any, this will need to heal and there would be a healing process over time where the body would naturally repair as it would a wound, but of course depends on the extent of the damage. 
You can only work with what you know, so many things cause similar symptoms so it’s hard to get on top of early I guess. 

8 hours ago, Wheatwacked said:

Hello Matt,

     You don't say how you were diagnosed, but I assume at your age it was verified by damage to your small intestine found by endoscopic visualization or biopsy.

     That needs to heal.  Afterwards, you can experiment with ‘may contain’ and ‘made in a factory' foods.  

I was diagnosed via two blood tests, I have an endoscopy in about 10 days which I am assuming will confirm (or tell me that the Dr gave a misdiagnosis which I hope but is very unlikely). 
 

Thank you all for your answers, I have immediately adopted a gluten free diet, and am very cautious. Hopefully it’s something that I developed recently and the damage to my innards isn’t too bad. 

Good evening,

I’ve just been diagnosed with celiac last week at 35 years of age. Quite surprised I have not known before but it makes sense looking back at symptoms. I generally don’t eat pasta/pizza but it’s the enjoyable bits like beer/cake/biscuits that’s hard to manage. 
I’m seeing a lot of ‘may contain’ and ‘made in a factory where wheat and gluten is handled’ etc and I’m wondering how safe do people play this and how people find package reading with new understanding developing all the time. 
 

Matt