KimMS
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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995
Everything posted by KimMS
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Thank you! Very helpful.
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Thank you! This is very helpful. Quick followup: what is your recommendation re: gluten-free prepared foods (labeled gluten-free or certified gluten-free) during this time of being more strict about eating gluten-free? Is it necessary to eat only whole foods prepared at home, or is it safe to include prepared / packaged foods in her diet (I'm thinking particularly...
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Quick follow up: with strict "home-only" eating, how does this apply to drinks (soda/tea at a restaurant or coffee at Starbucks)? Would you avoid these as well? At times when I know I can't eat something when I'm out with friends, I will just order a drink, but is that okay (for this time period while I'm being strict)?
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Hello, My daughter (almost 13) was diagnosed with celiac 1.5 years ago. I also have celiac and gluten ataxia so we are on this journey together. In another post, I mentioned how my AGA IgA has not really gone down even though my ttg IgA is down in normal range, and a biopsy one year ago showed my villi were healed/basically normal. My daughter's GI is...
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Thank you! This is great. I take Pure Encapsulations for my multi, magnesium, and Vit K (I forgot to mention I also take that). My doctors have prescribed all of the supplements for various things in addition to nutritional deficencies - migraines, low bone density). I will have them take a look at my multi vitamin though to make sure there isn't excessive...
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I'm sorry I have been inactive here for awhile - a lot going on! I started IVIg in Oct 2024 and because of a blip with insurance, I have only had seven cycles (interrupted with two months off). I tolerated the medication well (Octagam), but didn't see much improvement until the last cycle. My vision and ataxia symptoms were noticeably better afterwards. The...
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Another question related to lowering antibody levels and gluten-free eating: What are thoughts about celiacs and shared kitchens? I and one of my children have celiac but the other two family members don't. We have removed all gluten flours from our kitchen, and we have separate toasters. Most of our meals are gluten-free, but the other two family members...
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I'm sorry if this is addressed elsewhere, but I couldn't find it! It seems like from this thread that people generally avoid Starbucks other than black coffee. Is this because of the cross contact risk? I'm wondering about things like flat whites or lattes that are only milk and coffee. Do you recommend avoiding altogether?
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Thank you everyone for your responses. Quick clarifying question (if there is an answer for this!): If my gliadin antibody iga is positive but it has been trending down (rather than going down and then back up), does it necessarily mean I have had gluten exposure? Or could it mean that I haven't been on a gluten-free diet long enough to get it down to normal...
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Thank you so much. This is very helpful!
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Thanks for your reply. IvIg is Intravenous Immuno globulin (immunotherapy used often for autoimmune diseases). Longer story but in 2022 doctors realized that several neurological symptoms were due to the fact that I lost part of my cerebellum (showed up on MRI). So they ran lots of tests to figure out what was causing it. The only thing that showed up positive...
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Hello, I was diagnosed with gluten ataxia and celiac about 18 months ago. I have been on a strict gluten-free diet (only gluten intake has been accidental). I don't have digestive symptoms but I have neurological symptoms. These have improved but not fully resolved (and might never). My doctor wants me to try IvIg treatments. I have read that before...
