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nanny marley

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by nanny marley

  1. nanny marley
    Hi still the same unfortunately, they had to cancel my colonoscopy due to my trapped nerve , I'm awaiting some kind of scan , it was the nurses who told me to refuse and asked a docter , and I was told to cancel and go back to my consultant , I think because my sciatic nerve is compressed between my herniated discs , the prep was enough I could handle ,...
  2. nanny marley
    Has anyone had any feeling in the throat like Phlegm , thick throat feeling after eating gluten ? Just wondering if this could be a symptom ?
  3. nanny marley
    Has anyone had any feeling in the throat like plemb, thick throat feeling after eating gluten ? Just wondering if this could be a symptom ?
  4. nanny marley
    Thankyou I will definitely have a look your very insightful and a lot is making sence 👍
  5. nanny marley
    This is so very interesting I love all this information, knowledge is so very important for us to help ourselves heal, I have been so wrapped up with my dogs nutrition after vets told me she needed a operation, which turns out I can help with this for her myself also , I may have been missing the tap on the shoulder to say integration into your own health...
  6. nanny marley
    The only vitamin supplement is vitamin d , I do eat some processed gluten foods yes , I'm new to all this change over , I have purchased a gluten free cookbook which I am currently learning ,so but the looks from wat you have shared with me I'm on the right path , thankyou for the pain information also I will give that a try too seems very promising 🤗 c...
  7. nanny marley
    Oh wow thankyou so much for this information that's is very eye opening , you see I always say talk to the ones who have experienced , my analogy was always you can never feel the pain of a broken leg untill you have one, I'm so glad you reached out to me and will definitely look into all this advice , the docters don't listen one said to me have you been...
  8. nanny marley
    I ment nan not van 🤗
  9. nanny marley
    Ii wasn't asked about that she just said if you can't tk the gluten diet have colonoscopy to check for cancer has my van had it and because I'd had naproxen for stomach ulcers but I stopped that a while back but I've been very ill this week with the back issues so I can't have the colonoscopy too someone said ask for the virtual one it's much easier for...
  10. nanny marley
    It's been postponed due to my sciatic nerve being in high flaring mode I had a feeling I was worrying about something turns out because of the extent of the disk in my spine with the nerve how it's trapped its a risk my back specialist always told me to be very careful with that area so now it's 1st July I'm glad I contacted the nurses with my worries
  11. nanny marley
    Thankyou so much for your reply I decided to skip the senna has I've already had very loose stools last few days I've cut my portions down on the low fiber diet too and drinking lots of liquid has I just thought it would be wise to listen to myself too I've probably already done wat the senna would of done myself naturally by drinking clear apple juice which...
  12. nanny marley
    So I have been going threw celiac testing for some time unfortunately I had been 1 year gluten free Wen I had the blood test do came back negative I had other blood tests done my calprotein came in very high and my crp was elevated have been sent to gastroenterology she has put me in for a colonoscopy wat I can't understand it says take 2 tablets 6 days...
  13. nanny marley
    Hi thanks Scott I had a phone call from the docters they gave referred me to gastroenterology as a urgent appointment because of the inflammation the kidney test went from stage 2 to stage 3a within 11 month I had one in February too so it's quite a concern at the minute so that is being looked at too the celiac test came back negative but I have been gluten...
  14. nanny marley
    I have recently had tests for calprotein in a fecal test has come back apparently high at 2500 and flagged up stage 3a GKD and GFR 59 and 95 on the serum creatinine the test I was sent for also for milk allergy and celiac hasn't come back yet because it's had to be sent off to a different place I was just wondering if anyone had these addition tests going...
  15. nanny marley
    This literally happened to me today I had gluten after not eating it for over 6 months doing the elimination diet has I'm trying to get help with a diagnosis I ate gluten a few days ago and then stopped because I went for my blood test today unfortunately it's not enough has I've now learned from some helpful people on this forum it has to be a lot longer...
  16. nanny marley
    Fantastic info 👍
  17. nanny marley
    Thanks for posting that Scott I will arm myself too I had a blood test today and a fecal test for calprotein I'm not expecting any positive results I've been gluten free for over 6 months but I will be back has Arnold says with that information 👍
  18. nanny marley
    Oh yes same here I've been called a weirdo and health aniexty nut even at first my own daughter's were making fun of me but now they have seen the results there's too doing the gluten and lactose free has they both now older have realised they have problems too and threw me ranting on and changing it's helped them to stop suffering early so you keep doing...
  19. nanny marley
    Could you not try to cut oil out and use a alternative method ? Is there really any health benefits for oil ? If it has caused do much did discomfort for your little one I'd be inclined to source a different way my granddaughter has a nut allergy it's been a roller coaster ride but we cut whatever was causing issues out and found a alternative and she's been...
  20. nanny marley
    I too have blood tests booked a Wilson and was told it's ok that I've been gluten free since for over 6 months they have also put me in for a fecal test for calprotein and a milk allergy has I had to stop lactose too and a IBS blood test I didn't even know you could test for IBS ? I'm going Tuesday but since reading on here I'm thinking now why bother I...
  21. nanny marley
    I was also told I had IBS years ago like literally it's just IBS the docter said I've had lots of the symptoms you say there plus much more but I'm convinced it's not just IBS although I feel very sorry for people who get told this too because IBS is a real problem for people too it's awfull how much ignorance is around in the world these days from docters...
  22. nanny marley
    Thankyou for that information yes I totally relate to that it's a very good read and I've felt like that too to the point were going out for dinner was aniexty before I even left home and it's funny her name is jean because that was my grandma's name and I also believe she coeliac undiagnosed because I look back now and she couldn't tolerate most things...
  23. nanny marley
    Your on the right track lactose was a good change for me too this is a great forum keep asking questions I think we both found a pot of gold here to help us 😊 x
  24. nanny marley
    Hello mantooth nice to meet you it's so uncanny what you wrote you sound just like me even the back issues are exactly the same and I'm new here too trying to find out if I have the same had I too have been struggling to find answers with my docters I don't have a diagnosis but I've been struggling like forever and was told ibs and health aniexty was my problem...
  25. nanny marley
    I call it the fish because I can't spell the other word at times 🤣 don't want to make myself look silly but yes I have this symbol on many items so nice to see it today wen I'm needing help gives me faith I'm on the right track
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