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nanny marley

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Everything posted by nanny marley

  1. nanny marley
    Thanks rmj when I first rang up it was we can't do it without , but I talked to a lovely lady and she sorted it all out for me, so it pays to be persistent , I would have had to decline if I hadn't been given the water option too , so yes I'm glad too 😌
  2. nanny marley
    Had my MRI today I didn't have to have the manitol with my allergy's , I just had a litre of water , they were great with my concerns , so let's see if anything comes of if will keep posted once I have results 👍
  3. nanny marley
    Oh yes I can understand the tiredness after going threw all that, must be exhausting especially on the mind I have high aniexty so I can understand that , I wish there more easier ways for people to get help , I had a MRI on my spine some years ago without anything it was really quick and no prep , I understand the need for them to see better with the bowel...
  4. nanny marley
    That seems at lot of solution to have put threw you when you already have bowel issues , I will phone them tomorrow because it's sorbitol I have reactions too, thankyou for the input how do you feel now ? I'm not sure I can keep still for that long with my back issues either unfortunately I didn't know it could take that long 😕
  5. nanny marley
    Thankyou I will 👍
  6. nanny marley
    Thanks for the list too makes me realise why I still get symptoms after cutting gluten , all that reading has just made sense to why I'm still struggling , thankyou Scott Adams very insightful , I've been baking to and there is xanthum gum in the flour , I understand now why I still have issues with that too, and ive had to cut dairy also , i had a terrible...
  7. nanny marley
    Thankyou yes I read up on it beforehand , because or my trapped nerve when I have a bowel flare up it's impossible to keep still which I will have to do for the MRI ,and it's so painful , and I know if this is what I'm thinking it to be it will cause me terrible issues , sometimes I get to the point where I just want to diagnose myself and act accordingly...
  8. nanny marley
    Oral drink: You will be given a solution of mannitol mixed with water to drink over a period of about 30-60 minutes this is what it says it is ,?
  9. nanny marley
    Brilliant thankyou for the information I will contact them tomorrow, I was just concerned because I'm already in a bowel flare too , and I didn't want to take anything that would cause me more issues , especially with the way sweeteners make be feel I've had a really bad throat from this type of stuff before , and it upsets my digestive system too and I have...
  10. nanny marley
    Hi I've been told I need a MRI on my bowels , I was booked for a colonoscopy, but because of my sever back issues and trapped nerve it can't be done , the nurse told me I will have to have a manitol drink a hour before the scan , I'm just a bit worried has I have issues with sweeteners like even a little, I get a weird throat and ears and I've read it is...
  11. nanny marley
    Hi still the same unfortunately, they had to cancel my colonoscopy due to my trapped nerve , I'm awaiting some kind of scan , it was the nurses who told me to refuse and asked a docter , and I was told to cancel and go back to my consultant , I think because my sciatic nerve is compressed between my herniated discs , the prep was enough I could handle ,...
  12. nanny marley
    Has anyone had any feeling in the throat like Phlegm , thick throat feeling after eating gluten ? Just wondering if this could be a symptom ?
  13. nanny marley
    Has anyone had any feeling in the throat like plemb, thick throat feeling after eating gluten ? Just wondering if this could be a symptom ?
  14. nanny marley
    Thankyou I will definitely have a look your very insightful and a lot is making sence 👍
  15. nanny marley
    This is so very interesting I love all this information, knowledge is so very important for us to help ourselves heal, I have been so wrapped up with my dogs nutrition after vets told me she needed a operation, which turns out I can help with this for her myself also , I may have been missing the tap on the shoulder to say integration into your own health...
  16. nanny marley
    The only vitamin supplement is vitamin d , I do eat some processed gluten foods yes , I'm new to all this change over , I have purchased a gluten free cookbook which I am currently learning ,so but the looks from wat you have shared with me I'm on the right path , thankyou for the pain information also I will give that a try too seems very promising 🤗 c...
  17. nanny marley
    Oh wow thankyou so much for this information that's is very eye opening , you see I always say talk to the ones who have experienced , my analogy was always you can never feel the pain of a broken leg untill you have one, I'm so glad you reached out to me and will definitely look into all this advice , the docters don't listen one said to me have you been...
  18. nanny marley
    I ment nan not van 🤗
  19. nanny marley
    Ii wasn't asked about that she just said if you can't tk the gluten diet have colonoscopy to check for cancer has my van had it and because I'd had naproxen for stomach ulcers but I stopped that a while back but I've been very ill this week with the back issues so I can't have the colonoscopy too someone said ask for the virtual one it's much easier for...
  20. nanny marley
    It's been postponed due to my sciatic nerve being in high flaring mode I had a feeling I was worrying about something turns out because of the extent of the disk in my spine with the nerve how it's trapped its a risk my back specialist always told me to be very careful with that area so now it's 1st July I'm glad I contacted the nurses with my worries
  21. nanny marley
    Thankyou so much for your reply I decided to skip the senna has I've already had very loose stools last few days I've cut my portions down on the low fiber diet too and drinking lots of liquid has I just thought it would be wise to listen to myself too I've probably already done wat the senna would of done myself naturally by drinking clear apple juice which...
  22. nanny marley
    So I have been going threw celiac testing for some time unfortunately I had been 1 year gluten free Wen I had the blood test do came back negative I had other blood tests done my calprotein came in very high and my crp was elevated have been sent to gastroenterology she has put me in for a colonoscopy wat I can't understand it says take 2 tablets 6 days...
  23. nanny marley
    Hi thanks Scott I had a phone call from the docters they gave referred me to gastroenterology as a urgent appointment because of the inflammation the kidney test went from stage 2 to stage 3a within 11 month I had one in February too so it's quite a concern at the minute so that is being looked at too the celiac test came back negative but I have been gluten...
  24. nanny marley
    I have recently had tests for calprotein in a fecal test has come back apparently high at 2500 and flagged up stage 3a GKD and GFR 59 and 95 on the serum creatinine the test I was sent for also for milk allergy and celiac hasn't come back yet because it's had to be sent off to a different place I was just wondering if anyone had these addition tests going...
  25. nanny marley
    This literally happened to me today I had gluten after not eating it for over 6 months doing the elimination diet has I'm trying to get help with a diagnosis I ate gluten a few days ago and then stopped because I went for my blood test today unfortunately it's not enough has I've now learned from some helpful people on this forum it has to be a lot longer...
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