AdelaW

Thank you so much for your reply! Yes, I am definitely struggling with my GI and support, I wish that I had been warned to not change my habits after the biopsy and posting of results as I then would have continued to eat gluten and would have no need for a trial. But I unfortunately need an official diagnosis as I cannot get accommodations in college without one, so I am thinking to do the gluten trial! Do you think 2 weeks will be long enough, by the time I begin I will only have been gluten free for about 2 months. I'm considering looking for another GI or a celiac specialist like you mentioned, that could really help! Thank you for your response and advise, hopefully I won't feel too horrible during the trial (although it is hard to imagine going back to gluten after feeling good for the first time in months without it), but I hope it will work out! Thanks again

About a month ago I had a blood panel done for digestive issues and tested weak positive for celiac. My tTG IgG was a 6 with the range being 0-5 negative, 6-9 weak positive and 9+ positive(I have an IgA deficiency so they measured with IgG). Afterwards my doctor requested I have an endoscopy with a biopsy done and received results with symptoms in my small intestine such as DUODENAL MUCOSA WITH MODERATE VILLOUS BLUNTING, MODERATE CRYPT HYPERPLASIA AND INCREASED INTRAEPITHELIAL LYMPHOCYTES (MODERATE MUCOSAL LESION, and a final note stating "The findings are consistent with celiac disease in the proper clinical setting. Correlation with serological studies is recommended". I got these results 3 days after testing before my doctor contacted me and cut out gluten seeing I likely have celiac and feel much much better. However, I just met with my doctor and they informed I must get another celiac blood test done to confirm my diagnosis because my original blood test is so weak, despite the fact that my endoscopy showed strong indication of celiac, therefore I must reintroduce gluten into my diet and start feeling horrible again. And I am curious on whether or not this is a typical diagnosis route and if I should consider reintroducing gluten again to ensure or just assume I have celiac. And will I still be able to get an official diagnosis without another positive blood test and reintroduction of gluten?

1 hour ago, trents said:

Well come to the forum @AdelaW!

One positive celiac blood antibody test with flattened villi in the small bowel would strongly support a diagnosis of celiac disease. There are some other medical problems that could cause these things but the odds of this being the case are very small when compared to the likelihood of celiac disease being the culprit.

Thank you so much! I appreciate it, I was thinking the same thing so I guess it's just waiting for the biopsy results now! Thanks again!

Hi! In the last couple weeks I had a blood panel done for digestive issues and tested weak positive for celiac. My tTG IgG was a 6 with the range being 0-5 negative, 6-9 weak positive and 9+ positive. All my other test levels were normal such as tTG IgA, deamidated gliadin Abs IgG and deamidated gliadin Abs IgA. However I must note that my level of IgA was too low and could cause skewed test results so they had to run a second blood panel with the IgG and used that as my main test due to the deficiencies of the IgA antibodies in my immune system overall. So for me the IgA test results seemed to be null due to the deficiency. My doctor stated she was unsure whether this was a false positive and I got an endoscopy today (still waiting for results) but she mentioned my small intestine had some flatness which can be an effect of celiac. With this weak positive and flatness in my small intestine does it seem likely I could have celiac? I just wanted to get some opinions from others in the community, thank you!