Katiexox

Desperately in need of some advice of possible 🫠 (sorry for the long post but I’m one exhausted mama)

My daughter is just gone 2 years old, for as long as I can remember she’s had problems with her stomach, she was diagnosed with a Dairy and Soy allergy so has been dairy and soya free since around 7 weeks old. I’ve been begging the doctors to listen to me and to look into it, I came across celiac disease a few months ago and pushed for her to be tested. Some of her symptoms are 

- Extreme stomach pain, she’s never had a night where she isn’t rolling around in her bed screaming in pain (not just a cry, she will be fast asleep and then let out a high pitch scream and start crying) this will go on all night!
- Gas, I know gas is normal but she just doesn’t stop all day and night, and it smells so so bad! You can hear her from the other rooms in the house 
- Bloating 
- Slow growth and weight gain she’s still in 9-12 size clothes at 28 months
- Iron deficiency 
- Diarrhoea or constipated, or really mushy 
- Constantly tired 
- Complains of leg pains and gets cramps
- Mouth Ulcers 
- Gets infections like ear and tonsillitis every few weeks

She’s super super fussy with food and just won’t eat! So trying to get gluten into her wasn’t easy as most days she just point blanks refuses 

She had her blood test done last week and they said it came back clear but was showing she was pretty anemic! We are currently waiting for a referral to see a pedantic doctor and her dietician. 

Im just completely exhausted, she’s constantly poorly and miserable and I hate seeing her like this and being fobbed of by doctors who just don’t seem to understand that I know my baby and I know something isn’t right! 

Can the test be unreliable? 

Any advice welcome🥺