annapumpkin

So, my doctor's appointment was actually in a way very encouraging. My new doctor spent literally 25 min with me answering all my questions! On the bad side I was told that there is nothing more that the GI department can really do for me due to the fact that they cant solve my issue. They referred me to start up with an endocrinologist. My new doctor...

Hey all! Sorry it has been awhile since I have posted. Here is an update. I am still staying away from all the specific carbs and sticking with the high fiber, high protein. It really hasnt made a difference though...in fact I am still gaining weight! I really dont know what to do anymore. When my doctor transitioned me from the prednisone to the...

Ok just an update! My GI Doctor is now thinking that I may be a refractory celiac, which means that I am still showing most symptoms of celiac even though I am on the gluten free diet. The only thing is is that I am going to be on a steriod called Entocort for awhile. I did look into the previous links that you guys sent me and brought them up to my doctor...

YAY!!!! I heard from Deborah and they had no listing for a Bakersfield Support Group...so I signed up! So I have to get through some paperwork but I hope to start a Bakersfield Support group here shortly! So everyone in the Kern County area you are MORE than welcome to come! I am also going to be going to the Celiac Foundation convention on May 3d....

Hi Owen thanks for the information...unfortunately, the phone number and email address are no longer correct. I did have a listing with her name on it but it was 5 years old and the support group is no longer running. Thanks for trying though Momma Goose....i emailed Deborah and was never given a response back...and that has been since you posted...

WOW! that was alot of information to digest...literally...lol. I never even knew that it can go that far. I am definately going to take a closer look at that and try it....I mean at this point I am willing to try anything just to get rid of that pain. Thank you so much for all that information AliB, wow, dont mean to sound redundant but I never even...

Wow that is interesting you would say that....my GI doctor just put me on the powder form of cholestyramine about a week and a half ago...so far no improvment...but it might be too early to tell. She is having me take it for the next year! My GI doctor also is going to try to take me off the prednisone due to the fact im starting to show signs of diabetes...

Thanks momma goose...ill do that today. and sorry tom im in Bakersfield California...the nearest support groups I have found are at UCLA or Fresno.

Hi all, I am looking to start a support group in my area because from what I am seeing we dont have one for 2 hours in each direction and I know there is a need. My problem is, is that I have no experience with this besides leading hospital volunteer groups. So I am wondering if there are any pointers you all can give me or show me the ropes so to speak...

Yes it is truly amazing at how much of our society and social functions revolve around food and we dont realize it til we cant participate in the way we used to. It seems impossible and depressing at times...depending on the way you look at it. There are always two sides to every coin. For the inter-office parties I just found that is was less stressful...

Hey Judy thanks for the advice im definately going to check out that link. Raven, to answer your question before all this started I was totally medication free. They started me on prednisone last month...and they started me on vicodin about 3 months ago I called the companies and was informed they were gluten free medications especially the prednisone...

Hey all, more depressing news unfortunately. I went to my Dr on Monday and she never showed and I was passed on to a new Dr that knew totally nothing about me...he didnt even bother to pull my medical record! I explained what was going on and the guy tried to convince me i wasnt a celiac!!! I almost laughed at him...if he had bothered to look at my record...

My GI doctor has run the 24-hour urine cortisol level test and it came back all normal...the other tests I have never even heard of! That link was soooo helpful...thanks. I have another Doctor's appointment on Monday and I will know then if she decides to take me of pregnisone and do more tests. Im kinda freaked out. -cheryl

Hi I was diagnosed with Celiac about 6 years ago and have been gluten free ever since, August of 05 I had to have my gallbladder removed due to a 1/2 inch diameter gallstone that took gallbladder function to 13%. After that i have been fine and pain free. About 5 months ago i started to get intense abdominal pain again, kinda like gluten only it never subsides...

LOL...I just have to say I really enjoy all your posts! They are always in a positive light...thats a really good sign! Like the others said, you are limited on what you can eat but thats only because you have had one perspective of cuisine all your life! Being gluten free is a challenge...but a good one! I have found endless substitutes and posibilities...