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stomica

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  1. Hi! Well, we did the no dairy, no gluten diet for several months with my 3 1/2 year old daughter. It was tough, but not impossible. Actually, I found it harder to keep the dairy out of her diet than gluten! Anyway, what about soy ice cream and soy yogurt? My daughter wouldn't eat the soy yogurt at first, but now she loves it. I basically just mixed it with...
  2. Hey Michelle - Sorry I'm so delinquint in responding, but I've been out of town...Anyway, I wanted to thank you for your response! The information has been very helpful. It's always nice to know there are actual facts out there! Thanks again! Sue
  3. My 3 1/2 year old daughter has had poop issues (sorry for the bluntness!) since she was about 18 months old. She's been diagnosed with colitis through a colonoscopy. She's taking medication for colitis, which is a non-specific topical anti-inflammatory for the colon. She was tested for celiac but only the IgG's and IgA's were elevated. The other two more...
  4. Sorry you've had such a long few years with all the medical testing! My daughter, who's now 3 1/2 years old, has undergone similar things. They initially dx her with a milk allergy. The elimination diet did nothing. In fact, it made her worse. (Though now we suspect a wheat allergy or gluten sensitivity...taking her milk away caused her to eat more wheat...
  5. My daughter is 3 years old. She's always been a poor sleeper, rarely sleeping through the night. However, she's had night sweats frequently as well as night terrors almost nightly. She's a very restless sleeper! She was tested twice via bloodwork for celiac disease. Initially her IgG's were elevated (52), but the others were all negative. The ped GI feels...
  6. I don't really have any answers for you, but I wanted to add that allergy testing is not always accurate, especially for such a young child. Our allergist said prick/blood tests can help guide you, but elimination diet is the ONLY true test for food allergies. Food allergies can be associated with IgA or IgG response, not IgE response. Standard allergy testing...
  7. Hi! My daughter had a colonoscopy when she was 26 months old. She was extremely anxious about being in the hospital with all the medical staff. They gave her some versed orally, which completely calmed her. (Actually, they gave it to me to give to her so she wouldn't be afraid.) She just watched as they inserted the iv. NO crying. NO anxiety. My husband and...
  8. Hi! I feel for you, since we've gone through something very similar. My daughter started having loose stools around 17 months. All bloodwork and stool tests were negative. We saw an allergist, who thought she had a dairy intolerance. The dairy elimination diet didn't work. In fact, she become worse. She actually had some trace amounts of blood in her stool...
  9. I think people are misunderstanding your question. We just went through this so maybe I can help. Our ped GI just ran the immunoglobulins as well. IgE's are most often correlated with allergies. However, you can also have allergic reations with IgA's and IgG's - those are usually delayed reactions. My daughter's IgA's were double the normal amount. The allergist...
  10. Thanks for all the info! Yes my daughter does have symptoms, but she was actually diagnosed with inflammatory bowel disease. I still am a bit skeptical about the diagnosis, so I find myself questioning other possibilities. Her ped GI said she could have celiac in addition to IBD so that's why she's been tested. Her symptoms include loose, foul stools with...
  11. So you're saying if the endomysial antibody is positive, along with the anti-gliadin IgG...then celiac is almost certain? Well, my daughter's EMA was negative on two different occasions. Funny, the allergist said that many people can have elevated anti-gliadin IgG's, but the IgA's were the ones that were most correlated with celiac. I would definitely be...
  12. My 3 year old daughter was tested for celiac about 6 months ago...the antigliadin IgA's and IgG's were both elevated but the reticulin and endomysial antibodies were negative. Because the antigliadin antibodies were elevated, the ped GI wanted to retest her, which we just did last week. Course they performed different tests this time, so we're unable to compare...
  13. Just a general question since you're both talking about skin reactions...can celiac cause eczema? My daughter has it, mostly around her mouth, and it seems to be getting worse. We haven't gone gluten-free yet because the ped gi wanted to retest her bloodwork...her igA's and igG's were elevated but the other two were negative. Anyway, just curious! Thanks...
  14. Hi! You mentioned you went to the doc because of some bleeding...just wondering what kind of bleeding your son experienced? I just ask because my daughter had some blood/mucous in her stool and the ped GI said that celiac does NOT cause blood in the stool. What did your say? Thanks! Sue
  15. I just wanted to add something in the doctors' defense...my 3 year old daughter has been undergoing testing the past year for loose, foul smelling stools. We've seen two peds, two ped GI's and an allergist. She had a colonoscopy which showed colitis. Amongst many other tests, they did the celiac panel which showed elevated IgA's and IgG's, though the other...
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