keepinthefaith
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Latest Celiac Disease News & Research:
Everything posted by keepinthefaith
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I know it is going to be hard for a teenager. It has been a bummer for her brother at times, and he's been gluten-free for 4 years. Thank you for your words of inspiration. I am trying to figure out if anyone knows about rash flares within the first few days of going gluten-free. I don't know why a rash would be starting when she is not exposed to...
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We got negative blood work, but positive DQ5 and DQ7 genes, and positive enterolab stool test. My child agreed to go gluten free (along with her sister, who just got positive enterolab results). They joined their brother and me, who have been on the diet for a while. You know how hard it is to give up stuff in the beginning....it must be extra hard...
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ARCHIVED What About Phenol Foods?
keepinthefaith replied to skikat's topic in Parents, Friends and Loved Ones of Celiacs
I am not a doc, but I do have experience w/ a child who had serious illnesses as a toddler, and multiple rounds of antibiotics, with resulting behavioral changes. We did end up treating for yeast infection for a while, and for us, a lot of the yeast symptoms, which we did have success getting rid of, were similar to later phenol issues. When I got proficient... -
ARCHIVED What About Phenol Foods?
keepinthefaith replied to skikat's topic in Parents, Friends and Loved Ones of Celiacs
I doubt your doc would be up on this stuff, by the way. Most of the garden variety MDs are not, sadly. I have some links of stuff you could print out, and lots more info on this stuff. W/ behavioral things like your daughter has, it sounds like you are barking up the RIGHT tree. Was she on antibiotics when she was sick? -
ARCHIVED What About Phenol Foods?
keepinthefaith replied to skikat's topic in Parents, Friends and Loved Ones of Celiacs
I just took all phenol foods out of the child's diet for a month, then introduced them in one by one. Kind of like an allergy rotation diet. We used an enzyme for a while that worked quite well. For this child -- pineapple is the WORST -- was like a drunken monkey, and it was so awful that I just don't give that anymore. It is a methionine transsulfuration... -
ARCHIVED Would Someone Like To Coment On Confusing Genetics Results?
keepinthefaith replied to keepinthefaith's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Thank you Nora and to everyone who replied. It makes a difference. -
ARCHIVED What About Phenol Foods?
keepinthefaith replied to skikat's topic in Parents, Friends and Loved Ones of Celiacs
I have a child who reacts to phenol foods. We have examples of how the child's handwriting changes before and after apple juice. Before-- fine, after -- a complete mess, with an emotional breakdown in the middle of writing that included breaking the pencil and rubbing a hole in the paper with the eraser. Plus it looked like it was scribble from a preschooler... -
ARCHIVED Would Someone Like To Coment On Confusing Genetics Results?
keepinthefaith replied to keepinthefaith's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Thank you for the post and for the link. I've gotten valuable information and encouragement from it, and from the two replies I received over in the dermatitis herpetaformis forum. I guess I want to make sure that that result did indeed mean what it looked like it did -- that she had DQ7 show up, and find out what the heck DQ5 is..... and why they had... -
Got test results back for my wonderful, yet mule-like teen daughter. Her genetics results read exactly as written: HLA-DQB1* -- 03(DQ7) HLA DQB1* -- 05(DQ5) HLA-DQ2 -- Negative HLA DQ8 -- Negative I can tell that DQ 2 and 8 are negative, obviously, but don't understand the first two parts. Can't get doc to return...
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ARCHIVED Dh With Negative Bloodwork?
keepinthefaith replied to keepinthefaith's topic in Dermatitis Herpetiformis
Thank you for your replies. Paula, I am afraid to gluten-load her because the outbreak was so bad last time -- she is multi-racial (her white side of the family has a LOT of celiac symptoms) and the scars are just terrible. But if she needs a diagnosis to follow the diet.... Ravenwoodglass -- I thought I would mention this. I have a middle child -- not... -
Hi, My daughter developed a very bad rash that looked like DH. Some months before this rash, she had positive stool test from Enterolab, then went off of gluten for a few months. She went back on and within one month got obvious blisters in typical DH places that hurt her, and have ended up scarring -- even her face! We went to a derm. doc, who said...
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We just went to Dr. Lesley Smith in Miami/Miramar area. She was wonderful with my 14 year old daughter. Is English, and knows celiac well. After seeing my daughter's rash, and taking a history, she agreed that testing for celiac was a must-do. She jumped right on it. She does think that stool testing is a load of well....stool. My daughter with...