threedee

My colleague offered her gluten-free sandwich to me a week ago: It seems I might be having issues with grain also I have been doing some hard running exercises now that I can run, but either I overdid those or the gluten-free sandwich had some negative effects on me: First my bowel movements skipped two days, then one. Now back on once a day. Resting...

Thanks for replies! I am definitely continuing gluten-free diet for a while. If I don't get any setbacks that way I'll then do some gluten exposure testing. First I'll try double blind with gluten/wheat filled and "placebo" capsules. There's a limit how many capsules I can eat, so final option is to test with real food if I don't get any reaction from capsule...

What could be the root cause of my misery? All the blood tests for celiac disease are negative, biopsy was also negative. All other blood tests are in normal range. Hypothyroidism is ruled out. I have been having depression, anxiety, poor memory and motivation problems for at least 12 years. I am sure some of the symptoms are not related to the original...

Visual examination during operation didn't indicate celiac disease. Final results will be ready in three weeks. I have now started gluten-free diet and tomorrow I will schedule appointment with a doctor who knows functional medicine. I'll post results of my gluten tests in couple of months . threedee P.S. It wasn't THAT horrible, so I bravely...

Thanks for all replies! After so many messages I now feel that I really want to do some testing after couple of months on gluten-free diet. It may have some negative short term health effects for me, but should be nothing serious. My main motivations for doing this: 1. Independent of my celiac disease & gluten sensitivity status I am genuinely...

That is an excellent idea! I might have access to empty capsules as I know someone who works in medical drug development (and I am sure some company does retail trade also). I am not sure, but I think uncooked wheat flour might give problems to anyone, at least in "larger" quantities? Well, that's just one more detail to sort out. The basic idea of hiding...

I am a naive puppy . I reach for the sky, but will definitely settle for gluten-free diet without further explanations if that works for me. threedee

Our 9m baby girl is having reflux and diarrhea problems. She is being nursed because we haven't found working formula. Mom currently eats naturally gluten-free diet. We switched away from pork and chicken to avoid any grain molecules (suggested by our doctor). It seemed to improve condition of our baby, but it's a bit hard to tell because it's almost full...

My misery has lasted for so long that I am ready to do some serious testing if there is hope for the better. I am also willing to suffer some more if that gets me positive measurable diagnosis (elevated tTGA levels would be "good"). Positive diagnosis by a doctor would be my ultimate pay back to all the other doctors who have told me I can't have celiac....

Barb, Thanks for very thorough reply! I am aware that I might not get any measurable reaction now, but if I manage to develop a working test setup, I can use it again later. Like you pointed, the reaction may anyway be purely autoimmune, so I might later make an arrangement with some doc, so I go to lab at certain days and then we look at the results. ...

Thanks for feedback RiceGuy and Ridgewalker! It's possible that I won't get any meaningful results, but we will see The two sets don't have to be identical, just hide the obvious properties of gluten... My wife could make (hidden from me) two set of biscuits etc. and use gluten free flour on both + wheat with with the other set. Adding...

I have a gastroscopy in a week, so I have plenty of time to experiment. Since I think my diet is relatively low gluten I figured now would be a good opportunity to see if I manage to get some measurable reactions from gluten. I bought a packet of soft pure wheat bread (no milk or other flour). This is something I would not normally eat, usually I eat "skandinavian...

Wow, I would have assumed your doc would be interested to find out the cause of your arthritis after one possibility is "ruled out"... Something should be done about the "tests always tell the truth" attitude of doctors. (Luckily not all doctors think like that!) It's so easy to see how many docs see things: - they have certain assumption about some...

I had an appoinment today with a GP. I explained that I wanted to make sure I don't have celiac disease because I've been having anxiety, depression, fatigue etc. symptoms for at least 12 years. A cousin from my mothers side is diagnosed with celiac disease and my mom has had all sorts of digestive problems for ages, but has avoided tests (why? I really don...