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Chiron

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Everything posted by Chiron

  1. Chiron
    Thanks for the advice so far. I think I will try a modified elimination diet and see if there is anything else food related. I have heard that many people with Celiac have other intolerances. To be honest I am not looking forward to it- my diet is very carb/grain heavy. I eat a lot of gluten-free breads, rice, gluten-free pasta, and potatoes. I am one of...
  2. Chiron
    I have been poking around and have seen a couple of other threads on Crohn's and Celiac so I know there are several of you (us?) out there. In 2005 I was diagnosed with Crohn's after an abscessed mass in my terminal ilium was surgically removed, the biopsy showed the Crohn's pattern of inflammation. In 2008 I was diagnosed with Celiac (biopsy confirmed)...
  3. Chiron
    My nutritionist has suggested a number of supplements to be on to help symptoms related to celiacs including Fish Oil, B12, Iron, C, Cal/Mag, Glutamine, ProBiotic. My question is this: are my vitamins making me sick? I stopped taking them all at once for a lab test and didn't go back on them immediately and feel so much better. My first thought of course...
  4. Chiron
    Thanks for the ideas so far, they are very helpful. I think that giving up tomatoes is proving harder than dairy. I put salsa, tomato sauce, or ketchup on almost everything. THere are foods that I can still eat that I am having trouble imagining without a tomato product... turkey burgers, tortilla chips- or anything mexican like tacos, pasta, even my...
  5. Chiron
    I have read enough posts to know that many folks with Celiacs have other food intolerances so I know I am not alone on this, but am feeling really discouraged. I was dx in January and have been gluten free and dairy free since. I have responded very well with almost all of my symptoms. The one that still plagues me, and has acutally gotten worse, is joint...
  6. Chiron
    I am going to try and be patient and hope this symptom clears up in time. I don't want to put myself through surgery unless I know for sure the tonsil stones are here to stay. I have lived with them for years now, I can last a bit longer. I don't relish the idea of surgery but just can't help but think living in a state of chronic infection is not good...
  7. Chiron
    I have my first GI appointment this week since my biopsy confirmed diagnosis. My follow up was bumped back several times with a Dr that is very hard to get in to see. This is of course, the Dr who on the day of my biopsy before the procedure said I do not have celiacs, but he would be happy to rule it out. You can read my symptoms in the signature and...
  8. Chiron
    I have read previous posts on the forum and realize that a condition that has plagued me since childhood called tonsil stones or cryptic tonsils is related to celiacs. It seems that most people see a reduction in this symptom- nastly smelly white lumps, swollen tonsils, terrible odor. I have been gluten free for four months now and am still having chronic...
  9. Chiron
    I work in a deli but am careful only to prepare vegetable based salads even though much of what we serve includes pasta salad and other gluteny treats. Someone called out sick tonight and I had to step in and help out at the retail counter serving the salads we make. Though I tried to be careful, you can't on a high volume night- which means my forearms...
  10. Chiron
    Thanks for all the replies. I found a support group locally and we had a pot luck style appetizers and it was one of the first times in a few months I have eated with other people! I hate feeling so isolated. I think I am going to have to be more assertive about meals out because I am realizing how important it is to me. There is a restaraunt that a group...
  11. Chiron
    I have only been gluten free for 2 months now since my biopsy confirmed celiacs, but when exposed to gluten I have a terrible response. I seem to be very sensitive to the smallest amounts. I have only tried to eat in restauraunts twice. The first time was at Outback Steakhouse and I got very sick, the second was yesterday at Pei Wei and am having another...
  12. Chiron
    I have been looking at the model you suggested and I like that it has two paddles and programmable cycles. Can this machine be used to make 1 or 1.5 lb loaves? I am just cooking for myself and can't come close to finishing off a 2lb loaf.
  13. Chiron
    Does anyone have recommendations for a bread machine that works well for gluten free breads? I have an old Sunbean machine that I used to make some gluten-free bread- and as I suspected it would, it made me very sick because I have used it for regular bread in the past. I used Bob's Red Mill mix and it made a decent bread - at least compared to the stuff...
  14. Chiron
    Ignorance is not bliss. The rice milk I have been drinking says "Gluten Free" on the label. Rice Dream, Enriched, Organic. I searched past posts on the site which say that this brand contains gluten. Has the product been reformulated- or can they falsley claim gluten free? Evidently past labels admitted to trace amounts, this one claims "Gluten Free...
  15. Chiron
    "Have you gotten a new toaster, new cutting surfaces, new wooded spoons, replaced you scratched pots and pans. Check you toiletries and all supplements for gluten. Although some of Amy's are gluten free, it still is manufactured in a facility that processes wheat. Some people here have reacted to some of Amy's products." ------ I did indeed do a...
  16. Chiron
    I have been gluten free for 3 weeks now and my day to day health has felt like a roller coaster. About 1 week after going gluten free I had what feel like two miracle days. I felt better than I have ever felt in my life (celiac symptoms went undiagnosed for 12 years, now biopsy confirmed celiac). I had incredible energy and my joint pain and GI symptoms...
  17. Chiron
    I was diagnosed with Crohn's Disease in the Fall of 2004 after having an abcessed mass removed from my terminul illeum. They were hesitant to call it Crohn's before surgery, but said the pahology reports showed Crohn's. I just relocated and so switched GI docs and he ordered a colonoscopy to see what was going on with the Crohn's. In the meantime a...
  18. Chiron
    Thanks for the link to the Vegiac site- a great site too!
  19. Chiron
    I was just diagnosed last week and can't start gluten free living until after my biopsy on Friday. I am a vegeterain and was just wondering how realistic it is to try and go wheat free and meat free. I originally went vegeterian as part of an anti-inflammatory diet. Even though it seems gluten has been the real culprit, I am not sure I want go back to...
  20. Chiron
    I am in the diagnostic stage with Celiacs. I have been chronically sick for the past 12 years and have been to doctor after doctor who have not been able to figure me out. I have been diagnosed with Fibromyalgia, Crohn's, Peripheral Neuropathy, Thyroid Disorder, and Major Depression but after reading a number of posts here I am wondering how much may be...
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