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SCookie

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by SCookie

  1. SCookie
    Thanks. Bubba's mom- it could be fructose, soy, anything. at this point I have no clue. I guess I do have to be the detective but I'm not doing a very good job at it. Gemini- thanks, it's helpful to hear that the waxing and waning of symptoms over time is not uncommon. As to the dismissive doc, what I posted here is nothing! my husband is shocked at...
  2. SCookie
    Thanks to everyone who replied to my previous query here. As I mentioned in my other post, my son had a negative anti tTG and normal total IgA. I'm not convinced one way or the other at this point. Gastro doc effectively dismissed us. (Some kids are tiny. I am feeding him food that is 'too healthy' which is why he has diarrhea) Anyway, the diarrhea...
  3. SCookie
    Well clearly they didn't do all the available tests. I just don't know whether its worth pushing for others or how much stock I should place in the tTG result and where I should go next. I am not convinced that there's nothing going on...I mean, should I really have to be making all this effort to feed him high fat food if nothing else is going on? (And the...
  4. SCookie
    I posted in this forum about 3 years ago about my then 2 yr old son who was very underweight. He was never evaluated for celiac for a variety of reasons. His growth recovered enough to be above the 10th percentile, thus alleviating medical concerns (although a 10th percentile height and weight is way out of sync with other family members and siblings). ...
  5. SCookie
    Amazing! I haven't checked this site in weeks or more and there's my post from way back when, back on the front page! I am so glad my request has helped other people. (And judging from the number of views of this post, LOTS of other people were interested in the same kind of info.) Awesome. I am still on my search for answers. We were referred to a...
  6. SCookie
    Hi there- My child is also driving me crazy. I'm gonna post about this later. My son just turned 2 a few weeks ago. He's not diagnosed or currently gluten free, but it's something I'm pursuing. I just weaned him from nursing right around his birthday. He was driving me a bit bonkers with the constant nursing, honestly, and I was concerned that...
  7. SCookie
    Thanks everyone! I'm really sorry I did not get on here and say thanks sooner. tavweavmo - your photos were helpful. My son does look like your daughter did. I spoke with our medical care folks and arranged to meet the pediatrician when he is here in February. (We're remotely located.) Meanwhile, I had my son seen again by our local clinic, and...
  8. SCookie
    Thanks! I looked at the drawing and the stomach is definitely there, the butt is more of a maybe. I don't think my son's bum looks as bad as the one in the drawing, though he does seem to have some sag. So who knows. The stomach can't be normal though- there's no fat there, it's just bloated and hard feeling. And enormous. Next step is to figure...
  9. SCookie
    I guess I'm just trying to figure out if his abdomen is *really* distended- which I think it is - or if it's just a toddler belly and I'm nuts. Or if his tiny butt that can't hold up 18 mo pants at 21 months is *too* skinny. What does "wasting' look like vs. just skinny? He's fallen from the 65th percentile at 9 months into below the 5th percentile now...
  10. SCookie
    I think my 21 month old is FTT. Celiac is a possibility based on family history. We're in a place where our medical care is sporadic, but he's been slowly dropping off the growth chart since 10 months or so. Maybe earlier... I think his stomach looks distended and he has a skinny butt - definitely moreso than his older siblings, who were chubby things...
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