Blitz

Oh, no worries there. I haven't give up yet, despite everything... I have an appointment in late April with a new Dr. who is an MD but also does some naturapathic medicine. The first appointment is a 1 hr consultation, so I should have time to go through all the details. And I think I'm going to make some notes so I don't leave anything out too. ...

Well, just to update, we're now at 12 months of gluten-free and still no positive change. In fact, I feel more tired and spacey than I can recall in the previous couple of years. I went off dairy completely for a period of about 2 months, which had no effect on me, so I opted to start back up on that. Perhaps that was a mistake, but I'm not really sure. ...

Hi Everyone, Thanks to everyone for their input. I have been following along by email (those handy daily digests), but have been too busy to actually log in and reply. I ended up opting to postpone my Mayo visit to an as-yet-undetermined date. I'm fairly sure I am celiac, given the positive Dx (blood test and biopsy), and the family history of it ...

Wow, this sounds like a recreation of my experience. Except I was 18 when I got the hives, so started taking Benadryl. During this time I was tired, fatigued, low energy, etc., but assumed it was the "drowsy" effect of the Benadryl. The hives went away (and returned for good about two year ago), so I stopped taking Benadryl, but the tiredness and fatigue...

Well, I did get the info from Mayo, and they have set a tentative date for me in early February. But I'm rethinking the wisdom of spending that kind of money, and have been trying a few changes around here. For example, I've eliminated dairy where I can find it, started taking an iron supplement, and I've stopped eating at restaurants and using processed...

Yes, I've heard of that... it's called Floravit I believe. But it's mighty expensive around here.. $26 for 250mL, $40 for 500ml (Canadian dollars). Not sure how long either of those would last though.

Well, just to update everyone... I went dairy-free as of Monday, and also started taking an iron supplement. I was trying to avoid soy, but I realized yesterday that a few items I ate do contain it. I'll slowly wean myself off those by week's end. For the iron supplement, my pharmacist recommended Palafer. I had her check if it's gluten-free, and she...

That's what I always thought, but it just occurred to me to ask. I always make sure to wash my hands thoroughly after touching any gluten item, but perhaps I should wear gloves just to be on the safe side. And I don't part with my money easily either, especially the $3,400 USD Mayo wants for a deposit before I see them.. yikes! But 12 years of being...

No, I'm not an athlete... and in fact I doubt I could run down the block these days. :| I will make sure to ask my doc for the occult blood test next time I'm there, though I'm not sure I can poop on command, but we'll see.. lol. I mentioned this test to my mother, and apparently my Dad gets these on a regular basis to keep tabs on his ulcerative colitis...

I really don't eat as much rice bread as it sounds like... takes me about 3 wks to go through one of those tiny frozen loaves. And I have been doing baked potatoes (microwave style) a couple of times a week anyway, but only because I happen to like them. Regarding Mayo, yes it probably is the same... but I'm just getting so fed up with my doctors here...

Thanks for the reply. I have copies of most of my lab tests, which I make a habit of asking for each time I visit to get results (if any). And yes, I have done all the normal thyroid tests several times. On last test TSH was 1.73, before that it was 2.00. But I'm still not convinced this isn't playing a role, as someone previously suggested that Adrenal...

I tend to agree with this way of thinking, because I was told for nearly 12 years that I had Chronic Mono or CFS and there was nothing they could do. It was only through my sheer persistence and research that I realized it could be celiac disease, and then prompted my doctor to do the blood screening test (then followed by the endoscopy/biopsy). So,...

Where would one find the more detailed lab value source you describe? I tried googling for more information on the ferritin test, but it only gives generic information. Just for curiosity's sake, I looked back at my blood tests as far as they go (2006), and I found that my Ferritin levels were low even then (41). So at least we know it's not a one-time...

Sounds like purgatory to me... calling every company that is... lol. I doubt it's cross-contamination at home, as I have my own foods which are labeled and separate, as well as my own utensils, dishes, cutting boards, pots and pans, etc. Although I must confess I don't do a lot of cooking at home... probably owing to the fact that I'm a 30 y/o guy.. heh...

Thanks for the reply... I have read that going off dairy and soy can help, but my main reason for not wanting to is that going gluten-free was difficult enough since I don't really like to cook. As for the vitamins and minerals, I have had most of them tested and they all came back fine according to my doctor. Looking over my lab results (I always get...