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Blitz

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Blitz

  1. Oh, no worries there. I haven't give up yet, despite everything... I have an appointment in late April with a new Dr. who is an MD but also does some naturapathic medicine. The first appointment is a 1 hr consultation, so I should have time to go through all the details. And I think I'm going to make some notes so I don't leave anything out too. ...
  2. Well, just to update, we're now at 12 months of gluten-free and still no positive change. In fact, I feel more tired and spacey than I can recall in the previous couple of years. I went off dairy completely for a period of about 2 months, which had no effect on me, so I opted to start back up on that. Perhaps that was a mistake, but I'm not really sure. ...
  3. Hi Everyone, Thanks to everyone for their input. I have been following along by email (those handy daily digests), but have been too busy to actually log in and reply. I ended up opting to postpone my Mayo visit to an as-yet-undetermined date. I'm fairly sure I am celiac, given the positive Dx (blood test and biopsy), and the family history of it ...
  4. Wow, this sounds like a recreation of my experience. Except I was 18 when I got the hives, so started taking Benadryl. During this time I was tired, fatigued, low energy, etc., but assumed it was the "drowsy" effect of the Benadryl. The hives went away (and returned for good about two year ago), so I stopped taking Benadryl, but the tiredness and fatigue...
  5. Well, I did get the info from Mayo, and they have set a tentative date for me in early February. But I'm rethinking the wisdom of spending that kind of money, and have been trying a few changes around here. For example, I've eliminated dairy where I can find it, started taking an iron supplement, and I've stopped eating at restaurants and using processed...
  6. Yes, I've heard of that... it's called Floravit I believe. But it's mighty expensive around here.. $26 for 250mL, $40 for 500ml (Canadian dollars). Not sure how long either of those would last though.
  7. Well, just to update everyone... I went dairy-free as of Monday, and also started taking an iron supplement. I was trying to avoid soy, but I realized yesterday that a few items I ate do contain it. I'll slowly wean myself off those by week's end. For the iron supplement, my pharmacist recommended Palafer. I had her check if it's gluten-free, and she...
  8. That's what I always thought, but it just occurred to me to ask. I always make sure to wash my hands thoroughly after touching any gluten item, but perhaps I should wear gloves just to be on the safe side. And I don't part with my money easily either, especially the $3,400 USD Mayo wants for a deposit before I see them.. yikes! But 12 years of being...
  9. No, I'm not an athlete... and in fact I doubt I could run down the block these days. :| I will make sure to ask my doc for the occult blood test next time I'm there, though I'm not sure I can poop on command, but we'll see.. lol. I mentioned this test to my mother, and apparently my Dad gets these on a regular basis to keep tabs on his ulcerative colitis...
  10. I really don't eat as much rice bread as it sounds like... takes me about 3 wks to go through one of those tiny frozen loaves. And I have been doing baked potatoes (microwave style) a couple of times a week anyway, but only because I happen to like them. Regarding Mayo, yes it probably is the same... but I'm just getting so fed up with my doctors here...
  11. Thanks for the reply. I have copies of most of my lab tests, which I make a habit of asking for each time I visit to get results (if any). And yes, I have done all the normal thyroid tests several times. On last test TSH was 1.73, before that it was 2.00. But I'm still not convinced this isn't playing a role, as someone previously suggested that Adrenal...
  12. I tend to agree with this way of thinking, because I was told for nearly 12 years that I had Chronic Mono or CFS and there was nothing they could do. It was only through my sheer persistence and research that I realized it could be celiac disease, and then prompted my doctor to do the blood screening test (then followed by the endoscopy/biopsy). So,...
  13. Where would one find the more detailed lab value source you describe? I tried googling for more information on the ferritin test, but it only gives generic information. Just for curiosity's sake, I looked back at my blood tests as far as they go (2006), and I found that my Ferritin levels were low even then (41). So at least we know it's not a one-time...
  14. Sounds like purgatory to me... calling every company that is... lol. I doubt it's cross-contamination at home, as I have my own foods which are labeled and separate, as well as my own utensils, dishes, cutting boards, pots and pans, etc. Although I must confess I don't do a lot of cooking at home... probably owing to the fact that I'm a 30 y/o guy.. heh...
  15. Thanks for the reply... I have read that going off dairy and soy can help, but my main reason for not wanting to is that going gluten-free was difficult enough since I don't really like to cook. As for the vitamins and minerals, I have had most of them tested and they all came back fine according to my doctor. Looking over my lab results (I always get...
  16. Glad to know I'm not the only one out there w/o the acute GI symptoms. It's kind of a blessing and a curse, in that it's impossible to know when you've ingested something containing gluten. At least the other way if you make a mistake, you'll suffer a bit, but you won't do it again! Some may beg to differ though... Interesting about the back being the...
  17. Wow, lots of questions... but that's good. Breakfast: gluten-free cereal like Nature's Path Corn Flakes w/ milk. Lunch: rice cakes w/ peanut butter, or soup (no wheat on label) and rice bread, etc. Dinner: varies, but I read the labels on everything. No, but I take multivitamins every day. I did try taking sublingual B12 tablets...
  18. Hi Everyone, Just a quick backgrounder... experiencing slowly worsening chronic fatigue since 1996; diagnosed positive for celiac by both bloodwork and biopsy in Feb/08. Went on gluten-free diet almost immediately after that and only had one gluten incident in March/08 (which I spat out). I do still go to restaurants, but only ones that publish...
  19. Bump. Boy, it's been a long time since I posted in this thread... been very busy with family stuff. Aside from maintaining the gluten-free diet over the past while, I haven't made any changes to supplements taken. The logic behind this was that I had planned a one-week trip at the end of March, and I didn't want to screw it up. By luck alone...
  20. Hi Liz, Thanks for all the info. I don't have time to sift through it all at the moment (it's 2:30am), but I will surely do that when I get a chance. My doc is away for another week and a half, but I'll be sure to follow up with him upon his return... possibly including some begging and whatnot. Thanks again, and cheers! -Geoff.
  21. Hi Paulina, Thanks for your input. I have no experience in this regard, so just wondering if you could expand on what you consider normal and high B12 levels. On a related note, I asked both my pharmacist and doctor about where/how to get sublingual B12 tablets, and both looked at me like I had three heads. So, apparently these are either (i) a...
  22. Hi Liz, Sorry for the delay, got tied up with some family stuff (got two members currently in hospital - and not the same one either). I was a bit disappointed with the results, as nothing conclusive showed up (according to my doc's diagnosis). I've included the complete test results below, although I honestly don't know what many of them are (I'll...
  23. Hi Liz, I will certainly post the results. Perhaps the docs up here are more enlightened than elsewhere, but somehow I doubt it. Thanks for the info on Cortef, I will ask him about that for sure. Cheers! Geoff.
  24. Bump. Well, just to update, I got my Doctor to run a bunch of the tests as recommended on StopTheThyroidMadness.com a few weeks back. And just yesterday I got a call from his office saying that he wanted to see me to discuss the results. I managed to make an appointment for tomorrow evening, which is good because he's away for 2.5 wks after that, and I don...
  25. Liz, as I said before, no worries about that. I know people are busy, it's the nature of our society (unfortunately). The doctor didn't give me any resistance to running the tests I requested. The only one he couldn't get was the saliva cortisol test, although he did check. He said it may be a US-only test, and simply not available here in Canada. Or...
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