
Blitz
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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995
Everything posted by Blitz
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ARCHIVED gluten-free 9 Mo. But Still Not Improvement - Should I Go To Mayo?
Blitz replied to Blitz's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Oh, no worries there. I haven't give up yet, despite everything... I have an appointment in late April with a new Dr. who is an MD but also does some naturapathic medicine. The first appointment is a 1 hr consultation, so I should have time to go through all the details. And I think I'm going to make some notes so I don't leave anything out too. ... -
ARCHIVED gluten-free 9 Mo. But Still Not Improvement - Should I Go To Mayo?
Blitz replied to Blitz's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Well, just to update, we're now at 12 months of gluten-free and still no positive change. In fact, I feel more tired and spacey than I can recall in the previous couple of years. I went off dairy completely for a period of about 2 months, which had no effect on me, so I opted to start back up on that. Perhaps that was a mistake, but I'm not really sure. ... -
ARCHIVED gluten-free 9 Mo. But Still Not Improvement - Should I Go To Mayo?
Blitz replied to Blitz's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Hi Everyone, Thanks to everyone for their input. I have been following along by email (those handy daily digests), but have been too busy to actually log in and reply. I ended up opting to postpone my Mayo visit to an as-yet-undetermined date. I'm fairly sure I am celiac, given the positive Dx (blood test and biopsy), and the family history of it ... -
ARCHIVED *********help, I Need A Hive Expert**********
Blitz replied to azmom3's topic in Food Intolerance & Leaky Gut
Wow, this sounds like a recreation of my experience. Except I was 18 when I got the hives, so started taking Benadryl. During this time I was tired, fatigued, low energy, etc., but assumed it was the "drowsy" effect of the Benadryl. The hives went away (and returned for good about two year ago), so I stopped taking Benadryl, but the tiredness and fatigue... -
ARCHIVED gluten-free 9 Mo. But Still Not Improvement - Should I Go To Mayo?
Blitz replied to Blitz's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Well, I did get the info from Mayo, and they have set a tentative date for me in early February. But I'm rethinking the wisdom of spending that kind of money, and have been trying a few changes around here. For example, I've eliminated dairy where I can find it, started taking an iron supplement, and I've stopped eating at restaurants and using processed... -
ARCHIVED gluten-free 9 Mo. But Still Not Improvement - Should I Go To Mayo?
Blitz replied to Blitz's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Yes, I've heard of that... it's called Floravit I believe. But it's mighty expensive around here.. $26 for 250mL, $40 for 500ml (Canadian dollars). Not sure how long either of those would last though. -
ARCHIVED gluten-free 9 Mo. But Still Not Improvement - Should I Go To Mayo?
Blitz replied to Blitz's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Well, just to update everyone... I went dairy-free as of Monday, and also started taking an iron supplement. I was trying to avoid soy, but I realized yesterday that a few items I ate do contain it. I'll slowly wean myself off those by week's end. For the iron supplement, my pharmacist recommended Palafer. I had her check if it's gluten-free, and she... -
ARCHIVED gluten-free 9 Mo. But Still Not Improvement - Should I Go To Mayo?
Blitz replied to Blitz's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
That's what I always thought, but it just occurred to me to ask. I always make sure to wash my hands thoroughly after touching any gluten item, but perhaps I should wear gloves just to be on the safe side. And I don't part with my money easily either, especially the $3,400 USD Mayo wants for a deposit before I see them.. yikes! But 12 years of being... -
ARCHIVED gluten-free 9 Mo. But Still Not Improvement - Should I Go To Mayo?
Blitz replied to Blitz's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
No, I'm not an athlete... and in fact I doubt I could run down the block these days. :| I will make sure to ask my doc for the occult blood test next time I'm there, though I'm not sure I can poop on command, but we'll see.. lol. I mentioned this test to my mother, and apparently my Dad gets these on a regular basis to keep tabs on his ulcerative colitis... -
ARCHIVED gluten-free 9 Mo. But Still Not Improvement - Should I Go To Mayo?
Blitz replied to Blitz's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I really don't eat as much rice bread as it sounds like... takes me about 3 wks to go through one of those tiny frozen loaves. And I have been doing baked potatoes (microwave style) a couple of times a week anyway, but only because I happen to like them. Regarding Mayo, yes it probably is the same... but I'm just getting so fed up with my doctors here... -
ARCHIVED gluten-free 9 Mo. But Still Not Improvement - Should I Go To Mayo?
Blitz replied to Blitz's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Thanks for the reply. I have copies of most of my lab tests, which I make a habit of asking for each time I visit to get results (if any). And yes, I have done all the normal thyroid tests several times. On last test TSH was 1.73, before that it was 2.00. But I'm still not convinced this isn't playing a role, as someone previously suggested that Adrenal... -
ARCHIVED gluten-free 9 Mo. But Still Not Improvement - Should I Go To Mayo?
Blitz replied to Blitz's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I tend to agree with this way of thinking, because I was told for nearly 12 years that I had Chronic Mono or CFS and there was nothing they could do. It was only through my sheer persistence and research that I realized it could be celiac disease, and then prompted my doctor to do the blood screening test (then followed by the endoscopy/biopsy). So,... -
ARCHIVED gluten-free 9 Mo. But Still Not Improvement - Should I Go To Mayo?
Blitz replied to Blitz's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Where would one find the more detailed lab value source you describe? I tried googling for more information on the ferritin test, but it only gives generic information. Just for curiosity's sake, I looked back at my blood tests as far as they go (2006), and I found that my Ferritin levels were low even then (41). So at least we know it's not a one-time... -
ARCHIVED gluten-free 9 Mo. But Still Not Improvement - Should I Go To Mayo?
Blitz replied to Blitz's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Sounds like purgatory to me... calling every company that is... lol. I doubt it's cross-contamination at home, as I have my own foods which are labeled and separate, as well as my own utensils, dishes, cutting boards, pots and pans, etc. Although I must confess I don't do a lot of cooking at home... probably owing to the fact that I'm a 30 y/o guy.. heh... -
ARCHIVED gluten-free 9 Mo. But Still Not Improvement - Should I Go To Mayo?
Blitz replied to Blitz's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Thanks for the reply... I have read that going off dairy and soy can help, but my main reason for not wanting to is that going gluten-free was difficult enough since I don't really like to cook. As for the vitamins and minerals, I have had most of them tested and they all came back fine according to my doctor. Looking over my lab results (I always get... -
ARCHIVED gluten-free 9 Mo. But Still Not Improvement - Should I Go To Mayo?
Blitz replied to Blitz's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Glad to know I'm not the only one out there w/o the acute GI symptoms. It's kind of a blessing and a curse, in that it's impossible to know when you've ingested something containing gluten. At least the other way if you make a mistake, you'll suffer a bit, but you won't do it again! Some may beg to differ though... Interesting about the back being the... -
ARCHIVED gluten-free 9 Mo. But Still Not Improvement - Should I Go To Mayo?
Blitz replied to Blitz's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Wow, lots of questions... but that's good. Breakfast: gluten-free cereal like Nature's Path Corn Flakes w/ milk. Lunch: rice cakes w/ peanut butter, or soup (no wheat on label) and rice bread, etc. Dinner: varies, but I read the labels on everything. No, but I take multivitamins every day. I did try taking sublingual B12 tablets... -
Hi Everyone, Just a quick backgrounder... experiencing slowly worsening chronic fatigue since 1996; diagnosed positive for celiac by both bloodwork and biopsy in Feb/08. Went on gluten-free diet almost immediately after that and only had one gluten incident in March/08 (which I spat out). I do still go to restaurants, but only ones that publish...
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ARCHIVED Newly Diagnosed
Blitz replied to Blitz's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Bump. Boy, it's been a long time since I posted in this thread... been very busy with family stuff. Aside from maintaining the gluten-free diet over the past while, I haven't made any changes to supplements taken. The logic behind this was that I had planned a one-week trip at the end of March, and I didn't want to screw it up. By luck alone... -
ARCHIVED Newly Diagnosed
Blitz replied to Blitz's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Hi Liz, Thanks for all the info. I don't have time to sift through it all at the moment (it's 2:30am), but I will surely do that when I get a chance. My doc is away for another week and a half, but I'll be sure to follow up with him upon his return... possibly including some begging and whatnot. Thanks again, and cheers! -Geoff. -
ARCHIVED Newly Diagnosed
Blitz replied to Blitz's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Hi Paulina, Thanks for your input. I have no experience in this regard, so just wondering if you could expand on what you consider normal and high B12 levels. On a related note, I asked both my pharmacist and doctor about where/how to get sublingual B12 tablets, and both looked at me like I had three heads. So, apparently these are either (i) a... -
ARCHIVED Newly Diagnosed
Blitz replied to Blitz's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Hi Liz, Sorry for the delay, got tied up with some family stuff (got two members currently in hospital - and not the same one either). I was a bit disappointed with the results, as nothing conclusive showed up (according to my doc's diagnosis). I've included the complete test results below, although I honestly don't know what many of them are (I'll... -
ARCHIVED Newly Diagnosed
Blitz replied to Blitz's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Hi Liz, I will certainly post the results. Perhaps the docs up here are more enlightened than elsewhere, but somehow I doubt it. Thanks for the info on Cortef, I will ask him about that for sure. Cheers! Geoff. -
ARCHIVED Newly Diagnosed
Blitz replied to Blitz's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Bump. Well, just to update, I got my Doctor to run a bunch of the tests as recommended on StopTheThyroidMadness.com a few weeks back. And just yesterday I got a call from his office saying that he wanted to see me to discuss the results. I managed to make an appointment for tomorrow evening, which is good because he's away for 2.5 wks after that, and I don... -
ARCHIVED Newly Diagnosed
Blitz replied to Blitz's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Liz, as I said before, no worries about that. I know people are busy, it's the nature of our society (unfortunately). The doctor didn't give me any resistance to running the tests I requested. The only one he couldn't get was the saliva cortisol test, although he did check. He said it may be a US-only test, and simply not available here in Canada. Or...